Helping women with chronic illnesses

When Rest Is Just Not Optional

Wow! It has been nine days since my last post. It is extremely unusual for me to have so much space between posts. However, my body has made it clear that I have reached the “rest is just not optional” zone. I have learned to heed the warnings from my body when things reach this zone.

Beginning HERE in March, I have been really busy working on various awareness days, weeks, and months. By “really busy”, I mean striving to avoid burnout. Too busy.

Some of the advocacy work I have been doing was posted here and other information was posted on other sites such as Facebook.

Also, I set up a new group in March called Endometriosis and MCS for patients who have both chemical sensitivity and endometriosis on The Canary Report’s NING network. Unfortunately, I have been so busy with all of the awareness activities that I haven’t really spent very much time, as of yet, on that group. However, the good news is that I have identified many women who have both chemical sensitivity and endometriosis and several of them have joined the group. So, I think we’ll get it active once things have calmed down and I have a chance to focus some energy on it. I believe it’s important to look at connections between conditions that have overlapping populations and look forward to talking with the group members who’ve already joined and those who will do so.

In addition to the awareness issues I’ve been working on, I picked up several Facebook friends who have interstitial cystitis (IC) during the course of Endometriosis Awareness Month. As many readers here are already aware, endometriosis and interstitial cystitis are considered to be co-existing (sometimes called “overlapping) conditions. Here is a shout-out to Melissa Bachoo. She is an IC patient I have had the privilege of getting to know via Facebook over the last few months and she is a very thoughtful, caring person. If you have IC and you are a Facebook user, I recommend getting connected with Melissa Bachoo.

I have had a great deal of off-blog communications 1:1 with people. While I am very happy to have gotten to know some new people and have also interacted with people I’ve known awhile, it does take time to try to keep up communications with people. If you are one of many people that sent me a message via Facebook or The Canary Report’s NING Network in March, April or May who I have yet to respond to, please consider this my blanket apology for recently finding it quite impossible to keep up with replies. I am not ignoring you and I’m really sorry for the delay. I have never felt so behind in replying to people’s messages. Please don’t take it personally. I have just been trying to tackle way too much in the last couple of months.

Regarding endometriosis and IC as overlapping conditions, please see related press release here from the Overlapping Conditions Alliance:

The Overlapping Conditions Alliance Launches the ‘Campaign to End Chronic Pain in Women’ on Capitol Hill, to Fight Discrimination Against Women in U.S. Healthcare

I am far too exhausted and drained right now to compile a comprehensive list of awareness posts from the last couple of months (which you can easily find in the archives or by searching via topic words). However, I did select a few recent posts that were either written specifically for awareness days/weeks/months or that were written during that same time period that I thought might be of interest. This is just a sampling. Again, there are more related posts available and I encourage you to check them out by using archives or search (both located in the right sidebar).

Here are some topics covered during the last couple of months in conjunction with awareness days, weeks, and/or months (in no particular order):




multiple chemical sensitivity (MCS)




endometriosis and MCS

Last but not least, I wanted to give a shout-out to a blogger I met relatively recently. Her name is Jenn and her relatively new blog has already covered an array of endometriosis-related topics. If you haven’t yet checked out her blog Endo Friendo, I encourage you to do so.

In the short time Jenn has been writing a blog, she has talked about alternative nausea treatment, preparing for surgery with methods like guided imagery and Jin Shin Jyutsu, infertility awareness week, our endometriosis awareness petition, and much more. Jenn is passionate about the endo cause and has a great sense of humor. She is a shining example of how not to let endometriosis get you down. Please drop by her blog and say hello. Her open-minded, caring manner makes her a pleasure to know. I feel like I’ve known her longer than I have thanks to our off-blog communication.

This post was written by Jeanne at Copyright Β© Jeanne β€” All rights reserved.

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Reading: When Rest Is Just Not Optional


1 JasmineNo Gravatar { 05.21.10 at 11:06 pm }

I’m running myself a little ragged at the moment, so after this comment I am going to rest up. I’m trying to promote my ebay auction, so forgive my shameless plug.

100% of the winning bid will go to the Breast Cancer Fund. The only catch: because I don’t have the energy to ship all of the items, the winning bidder must be able to pick items up at my home.

I chose BCF because they’re not afraid to admit the link between the chemicals in our environment and breast cancer.

Glad you rested up, Jeanne!
.-= Jasmine´s last blog ..Selling Jem dolls and accessories to support the Breast Cancer Fund =-.

2 JeanneNo Gravatar { 05.21.10 at 11:22 pm }


I’m sorry you’re running ragged and I’m glad you’re now heading to rest up. I normally never plug anything in blog comments BUT any cause you support automatically gets my vote because I know how carefully you check these things out!! πŸ˜‰ Best of luck with your auction!

I know that you and I shared outrage at the way another organization out there claims to support the breast cancer cause. Kudos to you for finding a tangible way to help the breast cancer cause while ensuring that 100% of the winning bid will go to the Breast Cancer Fund. That is awesome that you found a breast cancer organization that admits the link between chemicals and breast cancer. If only other breast cancer organizations operated like this (as opposed to, say, promoting companies that sell foods that cause breast cancer)!

Best of luck getting a winner who is able to pick items up. Rest up. πŸ™‚


P.S. For readers who are unfamiliar with the pinkwashing campaign that outraged Jasmine and me, you can read about it here… in a post written by Susie Collins, a breast cancer survivor:

KFC and Susan G. Komen launch huge pinkwashing campaign

3 JennNo Gravatar { 05.21.10 at 11:46 pm }


I’m happy to hear you had some time to rest. You really have been busy! Thanks for all the information you share.

Thank you so much for your kind words about my blog! I feel like we’re old friends too. πŸ™‚ Your support & advice have encouraged me more than you could know, as a new blogger & an endo sufferer. Your passion is truly an inspiration.

I hope your rest did you wonders. πŸ™‚

Take care,
.-= Jenn´s last blog ..HAPPY ABOUT GLADRAGS =-.

4 JeanneNo Gravatar { 05.21.10 at 11:59 pm }


Relatively speaking I had some rest time. Taking 9 days off between posts is very unusual for me. It seemed like forever. I’m afraid I am not out of the woods yet. I’m still very drained and those who are not connected with me on Facebook may wonder where I disappeared to again in the near future. (I can work on quick bursts on Facebook). I’ll have to see how it goes.

I have been pushing it pretty hard and my body is letting me know it. In particular, my fibromyalgia has been saying, “hello”. Although, it has a much nastier way of announcing its presence than a cute little “hello”. Every cell of my body hurts and I know I need to back off. So, I’m trying to pace myself. There’s no need to thank me. I’m just impressed at the volume of information you’ve shared on your blog in a relatively short span of time. πŸ™‚

I am hoping that some of my readers will stop by and visit your blog. Yes… we clicked from Day 1, didn’t we? Like old friends indeed. While I try to limit the endo information to “ideas” and “suggestions” (since I am not qualified to give “advice”), I happily share any tips I can to make blogging easier… When I started out blogging, I had several nice, helpful people give me tips that saved me time and energy. I think you know a thing or two about passion yourself. πŸ˜‰

I think I need more rest but the key is that I am forcing myself to pace myself. So, I’m just proud of myself for making it 9 whole days without a blog post. Seriously, that almost never happens. So, I have been pacing myself better than I was but I need to rest more.

Take care,


5 JasmineNo Gravatar { 05.22.10 at 2:54 pm }

Thank you Jeanne, I know you understand! And great idea to include Susie’s link on pinkwashing, so your readers get a better sense for what we’re talking about. *hugs* and have a great day!
.-= Jasmine´s last blog ..Selling Jem dolls and accessories to support the Breast Cancer Fund =-.

6 JeanneNo Gravatar { 05.22.10 at 5:20 pm }


Yes, I thought it was the perfect opportunity to link back to Susie’s informative post. Many people are not familiar with the term pinkwashing.

*hugs back your way*



7 AmandaNo Gravatar { 05.23.10 at 10:21 am }


try to remember that the people you meet whilst networking regarding your many chronic illnesses will understand completely when you need to slow down, so try not to feel so guilty about it xx

I shall go check out Jenn’s blog, it sounds great, thanks for the recommendation!

Also, while I think about it, if you ever need some help collating bits and pieces you have written about just let me know. I have a fair bit of time here and there and am more than willing to take some of the time pressure of you if you need something doing, as your blog is so helpful to so many people and it might give you some more time to catch up with people and give yourself more time too xx

8 Tyconda CooperNo Gravatar { 05.23.10 at 2:33 pm }

I often read your blog just don’t think to leave a message. I get a lot of good things from you. I think the work you do is very selfless. I thank you from the bottom of my heart, I don’t have the energy to do all the research that you do. But I do benefit from your hard work. Thank you again, hope you feel better soon.

9 JeanneNo Gravatar { 05.23.10 at 5:01 pm }


You hit the nail on the head… The guilt monster got to me. That happens sometimes. πŸ˜‰

You’re right that others with chronic illness do understand such delays. Somehow I still feel badly when I get this backlogged anyway. I know I just need to recognize “it is what it is”, though. It’s not worth getting myself sicker.

Yes, I’m sure you’ll find Jenn’s blog interesting!

Yay! You and I will have to touch base offline so I can take you up on your offer. πŸ™‚ Thank you!!

Welcome Tyconda!

Thanks for leaving a message. I know you are in a great deal of pain and I hope you get SIGNIFICANT relief SOON! Thank you for your kind words. You don’t need to thank me. I’m just happy to see your network of fellow patients growing since I know how imperative support from fellow patients has been for me (both emotionally and in terms of access to information). You are doing an amazing job keeping your spirits up in the face of such a sudden, severe immersion into the land of chronic illness. I’m sending positive thoughts and energy your way! πŸ˜‰



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