Helping women with chronic illnesses
ChronicHealing.com

Two Years: Reflecting

On June 1, 2008 I set off on an adventure. I had no idea where it would lead. That was exactly two years ago today. It has been a labor of love to be sure and I am extremely grateful for the opportunities and joy it has brought. It has been a wonderful journey and learning experience. I have met some of the kindest, funniest, sweetest, most compassionate people from around the world the past two years!

On that day, I began writing a blog called Jeanne’s Endo Blog. It was never really a blog about just endometriosis at all.

However, when I started writing a blog I knew endometriosis would be one of the illnesses on which I would focus my writing. After all, my journey with chronic conditions began 28 years ago with endometriosis. I was then just thirteen years old when my symptoms started in 1982. Ten years after that, I had a laparoscopic surgery that finally gave me a name for the illness that had turned my life upside down at age 13: endometriosis. It has been said that the average diagnosis of endometriosis occurs 9.9 years after the onset of symptoms. So, the time lag for my diagnosis was a textbook case. This type of delay is absolutely unacceptable. (There are many previous posts about why such a delay occurs – in the 373 posts that preceded this. I encourage readers to check my blog’s archives and/or search box in the right sidebar to locate such posts).

Regular readers here know that I have by no means confined my writing to endometriosis. At the same time, my passion for the endometriosis cause has made it a focal point amongst the posts about other illnesses and causes.

My husband commented a few days ago that my keyboard (new as of about a year ago) has been used so much that many of the letters no longer have their markings. That’s right. I have worn the letters off my keyboard. It has been a busy two years!

As the years have gone on since I became chronically ill in 1982, quite an array of additional illnesses have been added to my list of diagnoses. This link mentions a few of them. I have so much that I wish to say about each of my chronic conditions that I often have an internal struggle regarding how to spend my time and focus my energy.

So many of these conditions need more awareness! So many are poorly understood and under-researched/under-funded. So many involve patients whose experiences are not validated by our society or even their own loved ones (especially true for the “invisible illnesses”). Many patients are accused of exaggerating or of having “psychosomatic” illnesses. I struggle with how to give fair time to each of these illnesses. Which way should I turn? Which illness is facing the most pressing issues? Which illness is having an awareness day/week/month? How can I best help the causes that are dear to me? What is the most efficient use of my time?

Where should I go next when there is so much to do?

The reality is that I can’t do justice to all of the topics that I wish I could write about as frequently as I would like to write about them. I try to but the risk of burnout or escalating symptoms forces me to prioritize as best I can and try to pace myself. Sometimes I am better at this than others. Sometimes I don’t practice what I preach about the importance of self-care. To attempt to do justice to every issue I’m passionate about with my writing tends to throw the self-care I preach out the window. The reality is that I need to practice what I preach and take care of myself so I don’t get sicker and/or burned out from pushing myself too hard. This is probably the most challenging part of blogging for me. If I wrote 24/7, I could never do justice to each illness the way I’d like to in a perfect world. There are just 24 hours in a day. I have some serious health problems that place limitations on me. I may not like it but it’s the reality. Even if I were healthy, what I wish I could write about is beyond what one person can do. I have been trying my best to make peace with this fact.

In addition to writing about illnesses I have, I also advocate for causes I believe in (such as illnesses that do not affect me firsthand but do impact large numbers of my friends – online and off). Also, I spend an enormous about of time in “off the blog” conversations with fellow patients: giving/receiving support, sharing resources and information, working as a team to research issues we care about, etc.

When I converted my blog from Jeanne’s Endo Blog to Chronic Healing, I wanted a blog name that captured my desire to keep writing about many chronic conditions. I wanted the name to expand beyond endometriosis alone. Finally, I wanted it to be positive and reflect healing.

In the course of a conversation with Cassie Germsheid (who re-designed my blog and migrated my data from Blogger to WordPress) about what to name this blog, I decided on the name Chronic Healing. With Cassie’s outstanding help and a great deal of hard work, I was able to realize my goal of launching Chronic Healing on June 1, 2009… the one year anniversary of when I began blogging initially. There was an enormous amount of data migrated. Cassie helped me make Chronic Healing what it is today.

Now, here we are a year later. I cannot express how much I have learned, how touched I have been by the kindness and compassion of so many people that I have had the privilege to “meet” online, how many intense/strong connections I have made with fellow patients around the world, how much support and information I have received, etc. My only hope is that I have been able to touch the lives of those I have met on this awesome journey even a fraction of how much they have touched me. It has been an honor and a joy to interact with so many people who practice compassion and loving kindness each day.

The LOVE expressed to me by my online friends warms my heart and amazes me every day. It truly is amazing and heartwarming. The acts of compassion I have witnessed these last two years are beyond anything I could have imagined.

It would be impossible for me to thank everyone publicly but please accept this post as my blanket thank you to everyone. If you are reading this, the thank you applies to you!

Moving on, there is exciting news ahead that is related to a venture that my friend Amanda recently embarked on. Like me, Amanda has endometriosis. She has a new site that is up and running now and you can check it out by clicking below. I encourage you to do so!

Amanda’s Patch

So what is the exciting news? Well, I had contemplated last week whether to do something to celebrate this two year anniversary but had not decided upon anything. It was just a fleeting thought and I hadn’t decided whether I would or would not have some sort of blog giveaway. The very next day, my dear friend Amanda contacted me volunteering to donate something very special for a blog giveaway.

She had absolutely no idea of my blog’s anniversary date and was simply offering to donate a handmade item because, frankly, it is in her nature to do thoughtful, caring, supportive things like that.

I was very pleased with the timing of Amanda’s generous offer to donate an item for a blog giveaway. For it to be a handmade, beautiful giveaway item from someone I respect so much and for it to unfold at the perfect time for an anniversary giveaway is just wonderful.

It gets even better… The handmade item she is donating for a blog giveaway for this very post fits perfectly with the healing theme of this blog! You see, Amanda uses healing crystals in her handmade jewelry. What a perfect way to honor healing… the very theme of this blog.

Before I share a description of the item or the photograph of the prize that someone reading this will win, I would like to urge readers to check out Amanda’s new online shop. She recently launched her own business and I am beyond thrilled for her! Click below to check out her site:

Please note that the above link will take you to two places (her online shop and her blog). On the Amanda’s Patch blog, she has a section that talks about endometriosis. As Amanda puts it on her blog’s endometriosis section, here is why she included some information about endometriosis on the blog:

“You see, my endometriosis was a massive part of the decision to start Amanda’s Patch and so it had to be involved somewhere”.

I love the way Amanda increases endometriosis awareness through her new business and lets those visiting her shop’s blog know why the endometriosis cause is important to her! She is integrating her personal experience into her new venture in such a wonderful way that can educate people about endometriosis. (Among Amanda’s past blogs is “Me and You at 22″, which many regular readers here will recognize).

Well, I have reminisced enough. I do believe it’s time to get on to the details about the blog giveaway!

Here is a photograph of the beautiful necklace handmade by Amanda:

Prize description of necklace:

Amanda says, “the necklace is made from amethyst and aventurine beads crocheted onto silver-plated copper wire and has a lily-shaped toggle clasp. Amethyst and aventurine are both part of the quartz family, which means they complement each other beautifully and will go with pretty much any other crystals the winner may wear”. Amanda adds that as far as energy is concerned, “all crystals have energy properties”. She also notes that, “all types of quartz have different properties but the family are, quite simply, great for healing negative energies!”

Amanda notes: “amethyst works with the ‘higher’ chakras, particularly the third eye and crown chakras which will help on a physical level for the head and sinus areas as well as spiritually by helping to clear the thoughts and emotionally by helping to clear the blocked emotions” and that “aventurine works on the heart chakra, helping to ease heartache, particularly caused by factors out of our control. Green is a particularly healing color (colors are so important). It helps ground us, find the best in our environments (think of connections with nature) and is great for emotional pain”.

Finally, here is some random trivia about crystals. Amanda tells me that work is being done on using crystals as massive data storage devices. I did a search online and I found a link about this topic here:

Tiny Crystals Could Hold Key To Massive Computer Memory

Interesting, huh?

As with past blog giveaways, the winner will be chosen randomly based on comment number and you may leave as many comments as you wish. (Obviously, multiple comments increase your odds of winning this beautiful crystal necklace). Amanda has generously offered to ship the prize to the winner regardless of their location. So, this contest has no geographical requirements. If you’re interested in a chance to win this lovely necklace, be sure to leave a comment! I’ll pick a winner in a few days. I haven’t decided when I’ll be picking the winner. So, get your comments in now to enter.

Thank you!


This post was written by Jeanne at http://chronichealing.com. Copyright © Jeanne — chronichealing.com. All rights reserved.


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Reading: Two Years: Reflecting

26 comments

1 AmandaNo Gravatar { 06.02.10 at 3:34 am }

Darling Jeanne,

this post is just *perfect*, your hard work has really paid off the the post pays a beautiful tribute to the journey you have been on these past two years!

As I said to your previously, it is an honour to know you and to help support your work, because due to my own time constraints and the focus on getting my business running, my endometriosis campaigning has been pushed a bit further down the list of things to do… this is one of my *small* ways of trying to make amends for that, by supporting you with your amazing work!

Thank you *so* much for such wonderful comments about me, you really are too kind, and you shouldn’t start a girl’s day with such sweet comments *sniff sniff*…

I’m hoping to really focus on the “healing crystal jewellery” (isn’t it funny how we spell things differently?) – so hopefully my shop will be filled with more “healing” items and my blog containing more “healing” information… I’ve done a *lot* of research on alternative therapies over the years and it’s probably about time I started putting some of that out there!

Anyway, I am digressing… I just wanted to pop in and say I read, and loved this post (it was the very first thing on my “to-do list” this morning when I awoke… the next thing is to listen to Susie’s radio interview!!) Although, staying up so late “tut tut, Jeanne” – you really don’t practise what you preach, huh?
.-= Amanda´s last blog ..A Shameless Plug =-.

2 Susie CollinsNo Gravatar { 06.02.10 at 6:11 am }

Congratulations, Jeanne! It’s great fun having blog anniversaries so close together with you. I’ve enjoyed sharing the journey with my good friend Jeanne! Thanks for all your hard work on endometriosis awareness and all your other topics. No one has more passion about blogging and sharing information than you. You are an inspiration! Aloha hugs, Susie xoxo

PS The necklace is beautiful!
.-= Susie Collins´s last blog ..Ask the Canary =-.

3 Rose HolloNo Gravatar { 06.02.10 at 3:10 pm }

Happy Birthday, Jeanne’s blog! You started your blog right around the time I got married. I can remember how badly I felt at that time (health-wise), and how far I’ve come in two years. Lately, I have enjoyed your blog and found comfort in the fact that there ARE others out there sharing the same tests and trials of multiple chronic health problems. I thank you from the bottom of my heart for bringing truth and caring, as well as awareness to so many important causes. Especially the “invisible” ones.

Blessings to you, and congratulations!

-Rose

4 AllisonNo Gravatar { 06.03.10 at 8:26 am }

2 years? MAN! Time flies!!!

5 EndochickNo Gravatar { 06.03.10 at 9:19 am }

Happy 2 Years, Jeanne!!! It’s been a pleasure reading your posts and connecting offline! You are a true friend!
.-= Endochick´s last blog ..Endometriosis Patients Needed =-.

6 JeanneNo Gravatar { 06.03.10 at 1:41 pm }

Amanda:

Thank you for your kind words! I really appreciate your generous donation of the healing crystal necklace. I truly believe it’s a perfect fit for this blog about healing. I’m sure whoever the lucky winner is will love the necklace!

Any comments I made about you are all heartfelt. I am honored to have gotten to know you and you are a very special person. (Gosh, how long has it been since we found each other on this vast space we call the Internet?) It seems like I’ve known you forever (and I mean that in the best possible way).

Well, Amanda… Hopefully you’ve recovered from the emotional impact of my comments and have stopped sniffing by now. ;) lol

That is wonderful that you want to focus on healing crystal jewelry. (Yes, I think it’s funny that we spell some words differently between England and the U.S.) I think having healing items in your shop will be a perfect fit for you. I really do. It basically boils down to following your passion(s). In your case, you’re making beautiful things you love and you’re incorporating what you’ve learned about items like healing crystals. I think that’s awesome!

I’m glad you enjoyed the post. I had a much harder time writing it than most because, as you know, I have been having cognitive issues following the secondhand smoke exposure on May 22nd that I blogged and did a video about:

HERE

(Note: for anyone who missed that video post, please check out the link above. It has gotten quite a reaction… far more people than those who left blog comments on it have contacted me privately. The video really seemed to get people’s attention about the dangers of secondhand smoke to everyone… not just MCS patients).

Unfortunately, spending the holiday this past Monday at a house with “air fresheners” and scented candles has made matters worse for me. (Yesterday, my voice finally started to sound almost normal. It’s not 100% yet but it’s getting better… 12 days after the smoke exposure). I was amazed at how long it took me to crank out this post. (I started writing it on May 31st. I never do that… start a post the day before. However, I knew that it would take me longer to write because my brain has been muddled). My brain just wouldn’t cooperate. Seriously, I didn’t get it posted until 11:50 pm on June 1st and was afraid I was going to miss the anniversary! (In my brain, as long as I got it posted by midnight I was OK. If I hadn’t, I would have been upset).

As far as Susie’s radio interview on multiple chemical sensitivity, I actually took an hour break the night of June 1st (from writing this post) to catch it live and it was amazing! I highly recommend listening to the archive of the radio interview!! It is supposed to be available in the archives but I have not yet seen a link for that. So, keep your eyes peeled for a link from Susie. I was absolutely amazed at how much information they were able to pack into a one hour radio program. It was really awesome and Susie did everyone proud! She covered so much!

As far as staying up late, I can assure you that midnight is quite early for me! Seriously, I went to bed earlier the night I wrote this than I do many other nights. You are right, though, that I don’t always practice (note the spelling of practice) what I preach. lol (There goes another England/U.S. spelling difference again).

Seriously, I try to implement self-care as best I can but I’m the first to admit that I don’t always succeed at it!

Susie:

We were just talking about you! That radio interview about multiple chemical sensitivity was great and I’ve been raving about it ever since I heard it. Consequently, I have several friends waiting for me to send them the link to the archive if the interview. So, once you get the link… please let me know since many people are looking forward to hearing it.

Thank you! Yes, it is fun that our blog anniversaries are just days apart. I’ve enjoyed sharing the journey with you too, Susie! You are a role model for me and I treasure all of the precious time and energy you have shared with me! You are very generous with your time and knowledge and I am so grateful to have gotten to know you so well this past couple of years. I have learned so much from you!

You ought to know a thing or two about passion for blogging and sharing information… as you are a master at it! You inspire me every day, Susie!

Yes, the necklace is beautiful, isn’t it? I’m so excited for Amanda on her new venture!

Aloha hugs back to you…

Jeanne
xoxo

Rose:

How cute are you? Wishing my blog a “happy birthday”. ;) While I’m very sorry to hear how badly you were feeling (health-wise) two years ago around when you got married, I am happy to hear that you have come far since then! I’m so glad you have been enjoying the blog and there are millions of people out there sharing in these experiences associated with multiple chronic health problems. Until one gets connected with fellow patients, it’s common to feel alone, isolated, and different. It is easy to feel as if no one else in the world understands or shares similar experience. The power of getting connected with fellow patients is so profound! It truly makes an enormous difference to network with others who “get it”.

I agree that it is comforting to know we are not alone… especially when we are faced with serious health challenges that can sometimes be downright scary. It helps so much to be connected with others who share similar experiences as far as health challenges. Thank you so much for your kind words! You’re getting me to go into the misty-eyed zone, Rose! ;) I think the invisible conditions really are the ones that need the most “awareness raising”. Whether it’s fair or not, the reality is that the average healthy person in our society simply doesn’t have a clue of the pain and suffering that so many people with invisible illnesses go through.

Awareness is so crucial because without awareness there are patients who are not understood by their own families, doctors, neighbors, employers, etc. Without awareness, people are less likely to be diagnosed properly/promptly. Without awareness, the odds are that a condition is not getting proper research. Without research, the odds of better treatments (or in some cases even a cure) won’t magically happen. So, I believe awareness is really crucial on many levels. Thank you so much, Rose. :)

Blessings to you too! Thank you!

Allison:

My sweet friend Allison! Yes, time certainly does fly! Allison, you have a special place in my heart and I think of you often. Your strength and courage in the face of tremendous adversity are an inspiration. I wish there were a way I could time-travel to you and give you a big hug!!! I am sending positive thoughts your way! While you may be taking a “blogging break” and I may not see you as often that way, you are often in my thoughts! I wish you peace and happiness. You take good care of yourself! xoxoxo

Sending you big hugs!!!!!

Endochick:

What would I do without YOU? You keep me sane (or try to) when endometriosis misinformation hits the media and I get all upset. You’re a great source of information. You always have my back. You are a true blue, loyal friend and I just love you to pieces!

To say that it has been a pleasure reading your posts and connecting offline would be an understatement. As far as posts are concerned, would you please hurry up and finish graduate school because I miss you on your blog and I know I’m not the only one? ;) lol

As far as connecting offline, you are my crisis hotline. I don’t know what I’d do without you. You are inspirational in so many ways!

Regarding that project we just discussed? I cannot WAIT to implement that plan because I think it will help many people. So, let me know when you’re ready because I think that will be awesome! (Note to non-Endochick readers of this comment: I’m afraid I can’t reveal details about the project because it would spoil the fun and because we are at the very beginning stages of making it happen but I’m very excited about it)!

Thank you so, so much for being uber-loyal and truly a wonderful friend! xo

~~~

Jeanne

7 Heidi HenryNo Gravatar { 06.03.10 at 2:58 pm }

happy blog anniversary jeanne! i’m grateful for you, your blog, your ability to educate, and your willingness to push forward, even when you think you are unable. you rock! i remember the day i came home from my lap and i received your message on twitter. a kind, helping hand, reaching out…just what i needed. to this day you’re still there when i need a kind word and inspiration. thank you.
.-= Heidi Henry´s last blog ..Heinz 57 Ketchup =-.

8 Jenny H.No Gravatar { 06.03.10 at 5:26 pm }

I’m so thrilled that we have connected recently. It’s encouraging and inspiring to see someone devoted to issues so close to her heart.

What I love is that you have an open mind and that you aren’t afraid to tell the truth. You should be proud of yourself for connecting so many women with endometriosis to so much information (AND connecting them to each other!)

Keep up the hard work but as I always tell you…do it within reason! We need you as healthy as can be!
.-= Jenny H.´s last blog ..stupid TV =-.

9 RellacafaNo Gravatar { 06.04.10 at 2:26 am }

Thanks for sharing your blogging story, Jeanne! It’s nice to get to know you a little better :) It’s amazing to think that you have quite literally been suffering my whole life (I was born in ’82). I think the fact that you are still fighting so hard for awareness is commendable and you should be very proud of how much you have achieved!! I am very glad to be blogging with you :) xx
.-= Rellacafa´s last blog ..Cooking Dinner: An Extreme Sport Adventure =-.

10 JeanneNo Gravatar { 06.04.10 at 3:14 am }

Heidi:

Thank you! I appreciate your kind words. I remember the day we met on Twitter like it was yesterday. I remember we had crossed paths right after your laparoscopy diagnosed you with endometriosis and I recall that flurry of messages we sent each other. (For readers who are not aware of my decision to leave Twitter, here is information on that: Why I Left Twitter).

I have enjoyed getting to know you over about the past year or so. Your zest for life, your positive attitude, your gratitude for the good things in your life are all inspirational. Your commitment to embarking on a raw foods diet is admirable. I’m so glad we got connected. You always have a kind word to say regardless of the challenges facing you. On top of all that, you give kind, loving care to your pets with multiple chronic illnesses. They couldn’t have a better person caring for them. Last but not least, I greatly appreciate you posting the endometriosis awareness petition badge on your blog. Thank you, Heidi.

Jenny:

I’m so thrilled that we have connected too. I have enjoyed both our “on the blogs” and “off the blogs” conversations immensely. Thank you for your kind words.

As far as having an open mind and not being afraid to tell the truth, you should know all about that since these things apply to you too. I think we all should be proud that we’ve each played a role in facilitating the networking of endometriosis (and other chronic illness) patients.

Thank you for the self-care reminder. As I type this at 2:59 am, your point is well taken. ;) I’ll be off to sleep soon, to be sure.

You take care of yourself and and try to make some self-care time at this very busy time of year for you with school winding down and all that comes with that.

Last but not least, I greatly appreciate you posting the endometriosis awareness petition badge on your blog too! Thanks!

Hayley:

Thank you. Well, well… You were born in 1982. Now I really feel old. Just kidding. I’m not one to get all bent out of shape about turning another year older. (It beats the alternative). I think when you’ve been chronically ill for decades (especially with illnesses that are under-researched/under-funded), you can’t help but become driven to promote awareness because you have seen and personally felt the consequences of a lack of awareness. Thank you for your kind words! I am very glad to be blogging with you, too! ;)

Jeanne
xo

11 EndochickNo Gravatar { 06.05.10 at 12:13 am }

Jeanne –

Just stopping by to tell you how wonderful you are. Got your e-mail and I’ll reply tomorrow. Need to head for bed before I get a second wind!
.-= Endochick´s last blog ..Endometriosis Patients Needed =-.

12 JeanneNo Gravatar { 06.05.10 at 12:58 am }

Endochick,

You totally rock! I am logging out of everything now because we’re having a lightning storm and taking power hits. (Boo hiss)… Talk with you soon! ;)

Jeanne

13 Jannie FunsterNo Gravatar { 06.05.10 at 12:22 pm }

Ahhhh, I do so well remember that pink / black polka dot theme from whenst I first crashed your “endo patch.” :)

Wow, seems like half a lifetime ago, tho it was maybe 20 months ago.

Congrats on 2 years — cool!!

And what a nice write-up on Amanda. She sounds AWESOME, like you. And a talented jewelry maker.

Here’s to at least 48 more years of blogging with you!!

xoxo
.-= Jannie Funster´s last blog ..Three American Girl Dolls =-.

14 JennNo Gravatar { 06.05.10 at 3:47 pm }

Happy Anniversary Jeanne!!

You have accomplished so much in the past two years! You definitely have touched my life & made me feel like I’m not alone. Thanks for all that you do for so many people. I look forward to this next year of your blog posts!

Yay for you!
Jenn
.-= Jenn´s last blog ..CYCLEBEADS =-.

15 JeanneNo Gravatar { 06.07.10 at 1:33 am }

Everyone,

The blog giveaway contest is now closed. (Please don’t let that stop you from making all the blog comments you want). ;)

I picked a winner tonight and will post an announcement of who won as soon as possible.

So, stay tuned!

Jeanne

16 JeanneNo Gravatar { 06.07.10 at 1:42 am }

Jannie:

Yes, it was about 20 months ago but I feel I’ve known you for 20 years at least. (I mean this in the best possible way)!

Amanda really is awesome. You should know all about THAT. JAF stands for Jannie Awesome Funster, doesn’t it?

Yes, 48 more years of blogging at least. That’ll take us to the year 2058. By gosh… I have no doubt we’ll still be blogging then. We’re just hitting our stride!

xoxo

Jenn:

Thank you!!

I think that is one of the main goals of those of us writing blogs… to connect with fellow writers/patients and feel less alone. So, good! It’s working. ;)

Thank you for your usual type of comment (i.e. filled with enthusiasm, positivity, and support). I still marvel at how much you’ve accomplished in the relatively short time you’ve been blogging. It’s impressive!

So, yay for you too!

~~~

Jeanne

17 AmandaNo Gravatar { 06.07.10 at 5:20 am }

Wow, Jeanne, look at all these comments you got, all telling you how amazingly wonderful you are xx

Glad you’ve chosen a winner, just let me know when you have the postal address and I shall send the prize off :o )

Jannie, Jeanne is too kind with her words ;o) isn’t she such a wondrous lady to see all the beauty in the people around her?
.-= Amanda´s last blog ..One Week to Go =-.

18 JeanneNo Gravatar { 06.07.10 at 4:28 pm }

Amanda,

I have picked a winner and will be posting it soon! I’ll get the shipping address out to you as soon as I get a chance.

Thank you for your kind words! ;)

Jeanne

19 We Have A Winner! — ChronicHealing.com { 06.07.10 at 4:40 pm }

[...] have a winner! Recently, I wrote about this blog’s two year anniversary: Two Years: Reflecting and was overwhelmed with the thoughtful responses it elicited. (Thank you, everyone!) The randomly [...]

20 JeanneNo Gravatar { 06.07.10 at 4:56 pm }

Congratulations, Endochick! :)

Thank you again, Amanda! ;)

Jeanne

21 BertaNo Gravatar { 06.11.10 at 11:03 pm }

Jeanne,

Known you for about-8 yrs. now. You are very dedicated to your followers!! I didn’t realize that it was your 2nd Anniversary.
Congrats!! Be well….my dear friend! :) ))

22 JeanneNo Gravatar { 06.11.10 at 11:06 pm }

Berta,

Hearing from you just made my day! Thank you. I am very fortunate indeed to have friends like you!! ;)

Jeanne

23 StacyNo Gravatar { 06.15.10 at 12:55 pm }

Happy 2nd Anniversary, Jeanne! Congratulations on your accomplishment -wishing you all the best!

24 JeanneNo Gravatar { 06.15.10 at 1:36 pm }

Welcome Stacy!

I say “welcome” because I always try to remember to say that to someone the first time they comment and I know you’re not the same Stacy who has commented previously. I know you from “pre-blog” days, huh? ;)

Thank you. It’s so nice to hear from you! I’ve been thinking of you and wondering how you’re doing. I hope you’re doing well!

Jeanne

25 Melva SmithNo Gravatar { 09.18.10 at 1:25 pm }

Happy 2nd!

Wow! My best friend had endo and so I know the suffering it can cause. As for myself I always had major pain once a month and became so sick I couldn’t go to school. Everything got overlooked including the stabbing pain that just seemed to hit when ever. Finally in like 2001 or so, I had pyllups that literally fell out of me and had to get a DNC. They said they had been there a “really long time.” I’m thinking ” Yeah, I bet.” :) I am so fortunate I didn’t get the dreaded C word. Doctors keep a check on this now. I will be 50 in November and look forward to the day I don’t have to deal with monthly visits from mother nature.

26 JeanneNo Gravatar { 09.18.10 at 3:47 pm }

Welcome Melva!

It’s nice to see you here. I think I know how you found my blog. (I believe I just direct messaged you… unless I have the wrong Melva)! ;)

I’m sorry to hear that your best friend has endometriosis. I say “has” rather than “had” simply because endometriosis is chronic/incurable. So, I don’t ever refer to endometriosis in the past tense. I’m hoping from the way you worded it that your friend has obtained a remission in her symptoms. Yes, endometriosis can certainly cause suffering!

It sounds like you have had your own battle with endometriosis. I’m very sorry for your pain. :(

The average diagnosis of endometriosis is said to be 9.9 years after the onset of symptoms. So, there are (sadly) many women and girls out there suffering for years without even getting a proper diagnosis via laparoscopy (which is the only definitive way to get a diagnosis of endometriosis).

I read about what happened to you in 2001. I am not familiar with the term “pyllups”. I am assuming you were referring to having had a D&C (Dilation and Curettage)? I am sorry about whatever it is that happened. It sounds awful… (Anytime something is falling out it can’t be a good thing, right?!)

As far as the “dreaded C word”, are you referring to cancer? Endometriosis is not cancer. Endometriosis patients do have greater risk for certain types of cancer:

See page 7 of this report under “Endometriosis and Cancer”

I can certainly understand looking forward to natural menopause. While there is no guarantee that endometriosis symptoms will cease even with menopause, at least it means not having to cope with the period-related symptoms so common for many endometriosis patients.

Thank you for stopping by and I encourage you to check out the rest of my blog! This two year anniversary post was written back in June. There are many posts from since (and before) this one that might interest you. Just check out my homepage and take a look around to see the types of topics covered here. My latest post is one that I think nearly any chronic illness patient can appreciate… the feeling of being viewed and/or treated like a “cash cow”!

You have a wonderful day and thank you for stopping by. :)

Jeanne

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