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Tori Amos Intermission

Longtime readers of my blog are already aware that I use music as a major coping mechanism when I’m feeling particularly ill, drained, and/or exhausted and that one musician in particular is a favorite of mine. I know I haven’t blogged much in April. I am “recovering” from Endometriosis Awareness Month and dealing with multiple flare-ups of various conditions. So, please bear with me as I post less frequently for a bit.

I am going through one of those times where the doctors appointments are clustered together much closer than I would like. Today involved a nearly two hour round trip to see one of my specialists. I was listening to the song below while driving today (and trying to resist the urge to speed!) and decided it would make a nice little “intermission”. It’s from Tori Amos, who happens to be a fellow endometriosis patient.

P.S. Lucky me! This week I received a package in the mail from my dear friend, Jannie Funster. She recently held several blog giveaways, one of which was a Tori Amos book that I won… which you can see a picture of HERE. Thank you, Jannie! πŸ˜‰

This post was written by Jeanne at http://chronichealing.com. Copyright Β© Jeanne β€” chronichealing.com. All rights reserved.


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Reading: Tori Amos Intermission

20 comments

1 JennNo Gravatar { 04.20.10 at 1:14 am }

Hello,
I randomly found your blog today and so this was the first post that I read. I have Endo and my symptoms have become nearly debilitating the last three months. I have also been using music as a tool; for healing, for release and as an attempt to keep my sanity. So I wanted to thank you for this post!

I recently started a blog about my experiences. I am very new to blogging, but I wanted to share it with you and your followers.

I hope we can share experiences!

2 KerryNo Gravatar { 04.20.10 at 4:16 pm }

Hi my friend, I wish you peacefully recoup time through this time of flaring conditions.

The Tori Amos music is beautiful. I know how much driving far to docs. drains are limited energy bods. Mine are five and seven hours away. Thankfully my hubby does the driving (it sounds like you drive yourself which has to be exhausting). We listen to serius radio–coffee house station–and it helps both shorten the trip and make it more enjoyable. I am thankful for the wonderful docs. I am able to be in the care of…but it would be nice to have them closer.

Take good, gentle care Jeanne, Kerry
.-= Kerry´s last blog ..Pillow Talk Two =-.

3 JeanneNo Gravatar { 04.20.10 at 5:19 pm }

Jenn:

Welcome!

I’m so happy you found my blog. I checked out your new blog last night. You’ll find plenty of “endo friends” here (and I encourage endometriosis patients here to check out Jenn’s new blog about endometriosis).

I’m sorry your endometriosis symptoms are so severe. πŸ™

Yes, music is a wonderful tool for coping with chronic pain. It helps me enormously. No need to thank me… I’m just glad you liked it! I followed Tori Amos for many years before I learned that she herself has endometriosis. Her music has helped me through some very difficult times! (If you haven’t checked out the music link on my blog – under ‘navigation’ in the left sidebar – you can see a picture from when I met Tori backstage in 2007). I’ve seen her live four times. She is an absolute musical genius.

That is wonderful that you’ve started a blog about your experiences. We’re all new to blogging at some point. πŸ˜‰ You’ll be amazed at how much you learn and how quickly from blogging.

Thank you for sharing. It’s nice to “meet” you.

P.S. Check out my blogroll for more bloggers who have endometriosis. If you check out the “Healing Posse” in my right sidebar, three of those bloggers have endometriosis.

Kerry:

Hi there! When I declared “intermission”, I had no clue how long it would be before my next post. I think this is the longest I’ve ever gone without a fresh post! πŸ™ I’m just SO exhausted.

It’s all I can do to keep up with Facebook connections lately (which I am not doing very well… way behind). I am still recovering from last month’s Endometriosis Awareness Month activities (and fully aware that next month is MCS awareness, ME/CFS awareness, and fibromyalgia awareness). Sigh.

I have also been busy getting the “Endometriosis and MCS” group activated on The Canary Report. As I am typing this, it occurs to me that I should put a hyperlink to that group on my networking page. I have a widget for The Canary Report on my networking page but the The Canary Report’s social network is growing by leaps and bounds and it might be easier for people if I post a hyperlink specifically to that group. There are so many patients with endometriosis AND chemical sensitivity. Another one just found me today on Facebook.

Bear with me, Kerry. I’m just thinking out loud here. πŸ˜‰

I’m glad you liked the music. I find Tori’s music so soothing. Yes, driving to doctors can be draining. Dear heaven, Kerry! I can’t complain about my drives to doctors when you have doctors five and seven hours away. πŸ™ I’m so sorry you have such long commutes for medical care.

That’s great that satellite radio makes the trips more pleasant for you and your hubby. I am thankful to have wonderful docs too.

Yes, I generally drive myself. Unfortunately, if my husband took time off of work every time I had a doctor’s appointment, it would not be good. He is very helpful with helping me out with “the big stuff”. In other words, he helps me by joining me for the appointments where there’s particularly important information where I need help listening/taking notes (new specialists, for example) or simply the help of his very presence. (Right or wrong, some doctors simply give better care when my husband is in the room too).

Also, he drives me to anything I know will make me dizzy or where I know that a chemical exposure might very well make it unsafe for me to drive (i.e. my root canal… I was afraid to drive myself because I once went unconscious at the wheel on the way home from the dentist).

There is some gray area (deciding which appointments I need him to drive me to) but most of my appointments I can drive myself to/from (however exhausting and draining it might be). Most of the driving judgment calls, for me, boil down to, “will it be safe for me and those around me for me to drive?” If the answer is no, he drives. If the answer is yes, I drive (building in recovery time after appointments knowing how much it will take out of me). For the gray area days… we discuss what’s best. Sometimes, I drive myself knowing that if I am not OK to drive myself home, he’ll be in a position to leave work to come and get me.

We try not to have him miss too much work driving me because, frankly, we don’t want to do anything that would put his job in jeopardy. So, sometimes we just have to make sure he’s not going to be sequestered in a conference call meeting at work with me stranded at a doctor’s office that might well have a chemical exposure issue triggering my MCS that I need to escape ASAP. (I’ve been known to camp out in my car in the doctor’s parking lot waiting for Hubby to pick me up… not fun… especially if IC flares force me back into the building searching for a rest room… and getting exposed to more chemicals). The “air fresheners” in most doctor’s office rest rooms alone can make me very ill. I know you are well aware of the challenges with multiple chemical sensitivity (not that those chemicals are healthy for anyone)!

Hubby works about an hour away from home. So some of my medical appointments are out relatively close to where he works. This comes in handy on some occasions but is a real pain on others. If I get stranded somewhere out his way and he has to drive me home AND then drive back to work (for work that must be done on-site), then he ends up driving about 4 hours in one day on top of a full workday. (His workdays were as high as 18 hours recently for a project he was doing. They are more reasonable now). Plus, we then need to get my car back. So, it gets complicated. I wish your docs were closer to you too. That’s a LONG way to travel! I’m so glad your hubby is able to drive you there.

Thank you. You take good, gentle care too, Kerry! πŸ˜‰

~~~

Jeanne

4 JeanneNo Gravatar { 04.20.10 at 5:51 pm }

All,

Thanks to Kerry reminding me, I just posted a hyperlink on my “networking” page (see left sidebar).

I’m including it here too:

Please check out the “Endometriosis and MCS” group on The Canary Report here!

If you have endometriosis and chemical sensitivity, please join us. We want to hear from you!

Jeanne

5 JennNo Gravatar { 04.20.10 at 11:12 pm }

Jeanne,

Tori’s music is powerful & inspiring. I haven’t ever seen her live, but I hope to someday. How fun that you had the chance to meet her! I didn’t not know that she was an endo sister, thanks for sharing that! It’s been awhile since I’ve listened to her. I’m gonna find her on my ipod tonight.

Thanks again for visiting my new blog and showing me that reaching out this way works! I hope you have a nice evening.

6 JeanneNo Gravatar { 04.20.10 at 11:20 pm }

Jenn,

Awesome! Another Tori fan. Yes, I agree… I find her music extremely powerful and inspirational too. I have been very fortunate to see her live four times. She is beyond amazing in concert. Rolling Stone magazine once voted her something like the #5 Live Performer of All Time. Having seen lots of concerts with all kinds of music, I would rank her #1 myself. πŸ˜‰ Enjoy your Tori ipod time.

Reaching out definitely works!! You’ll be absolutely amazed at how many people you’ll meet (with whom you will likely have a lot in common). I hope you have a nice evening too.

Take care,

Jeanne

7 Jannie FunsterNo Gravatar { 04.29.10 at 8:06 am }

Glad you received it, and that you love it.

xo
.-= Jannie Funster´s last blog ..Just A Quick Picture. (Yeah, Right.) πŸ™‚ =-.

8 JeanneNo Gravatar { 04.29.10 at 4:43 pm }

Jannie,

Thank you, Jannie!

Jeanne
xo

9 Alanna KlappNo Gravatar { 04.29.10 at 9:50 pm }

Hi Jeanne, I am friend of Jenn’s and that is how I found your blog. Best of luck to you. I signed the petition and I sent you an email asking you for the embed code to post it on my blog; please disregard this as Jenn was kind enough to send it to me. I am a huge Tori Amos fan and saw her live once back in 2000. She is amazing and I did not know she has endo. Thanks for your blog and all that you do; I’ll be back. Thanks again!

10 JeanneNo Gravatar { 04.30.10 at 1:39 am }

Welcome Alanna!

Hello! I have seen you on Jenn’s blog. It’s so nice to hear from you. Thank you so, so much for signing the endometriosis awareness petition AND for requesting the embed code so that you’ll be able to post it on your blog!

Another Tori Amos fan, huh? πŸ˜‰ I seem to be finding Tori fans everywhere lately. Well, if you are a Tori fan, be sure to check out my link that has pictures from when I met her backstage in 2007:

Music, Art, Fun, & Inspiration

Isn’t she just amazing live? I’ve seen her live four times. The 2007 show was viewed from the third row. It was absolutely amazing! I didn’t know about her endo until I read the autobiography she wrote (with Ann Powers), called Tori Amos: Piece by Piece.

There is no need to thank me and I’m happy to hear you’ll be back. I’m glad Jenn has such a supportive friend! Thank you again for your help: signing the petition and spreading the word about it. You have no idea how much that makes my day!

Thank you so much for stopping by!!

Jeanne

11 Alanna KlappNo Gravatar { 04.30.10 at 1:31 pm }

Hi Jeanne, thanks! Thanks to you and Jenn for the link to post the petition on my blog, and I’m happy to help spread the word. I’m going to write a post about it too either today or sometime this weekend, so it’s at the top of the blog as well as the bottom until I can figure out my layout.

Yes, I LOVE Tori Amos, I think she is amazing! I checked your backstage pictures that is sooooo awesome!!!!! That’s so great you got to meet her! I’ll have to check out her autobiography in the near future, too. She really is amazing live, she gives me chills!

Thanks again! πŸ™‚

12 JeanneNo Gravatar { 04.30.10 at 5:05 pm }

Alanna,

Hello again! That was so nice of you to post the endometriosis awareness petition link on your blog. Thank you so much! I look forward to your post.

She really is amazing. I am subscribed to several YouTube channels that have Tori videos. If you click my YouTube link and look at my subscriptions, you’ll see them. Nothing can compete with seeing her live (in person) but I enjoy watching her live (on video) too. Meeting her in person was a real treat. Yes, it’s an interesting look inside the music industry… among other things. She gives me chills too.

Thank you. πŸ˜‰

Jeanne

13 Alanna KlappNo Gravatar { 05.01.10 at 5:50 pm }

Hi Jeanne, no need to thank me, I am so happy to help! I should have the post up, soon, too.

I’ll have to check those YouTube videos out! It is the next best thing to being live. She is awesome!

Thanks again, talk soon!
.-= Alanna Klapp´s last blog ..My Cavs Video =-.

14 JeanneNo Gravatar { 05.02.10 at 2:07 am }

Alanna,

Awesome! It’s so nice of you to post about endometriosis awareness.

Yes, it really is the next best thing to being live. (At least after her 1991-1992 Montreux Jazz Festival DVD, which I highly recommend). Yes, I am a rabid fan with all her CDs (including the boxed set). I LOVE Tori!

Thanks, Alanna!

Jeanne

15 Alanna KlappNo Gravatar { 05.02.10 at 6:55 pm }

Hi Jeanne, no worries, I am happy to post it (link is below in the CommentLuv). I’ll have to check out the jazz festival DVD, that sounds like it would be awesome! I love the phrase “rabid fan,” I am a rabid fan of many things, including Tori. Her music is very special to me and it’s cool we have that in common (along with a lot of others!)! Music brings us together, always. Love it!

Thank you, Jeanne, and I’ll talk to you later!
-Alanna πŸ™‚
.-= Alanna Klapp´s last blog ..A Petition to Create Endometriosis Awareness & Understanding =-.

16 JeanneNo Gravatar { 05.02.10 at 7:15 pm }

Alanna,

Thank you, thank you, thank you for writing a post about the endometriosis petition on your blog! Yes, I love that DVD. It’s available on Amazon, where I got mine. [Insert shameless plug for my blog’s Amazon ads here]. πŸ˜‰ LOL. Yes, I’ve always loved the “rabid fan” reference in write-ups about Tori… because her fans are all so loyal! Yes, music is a powerful tool for bringing people together. I love it too!

Thank you again!!

Jeanne πŸ™‚

17 Alanna KlappNo Gravatar { 05.02.10 at 8:18 pm }

Thank you, Jeanne, I’m happy we connected! I’m so glad to be able to help spread the word. I think that might be the best thing about the Internet, how quickly information can disseminate. It can make a difference, even if one person just passes it on to one other person.

Thanks again for everything! Talk soon! πŸ™‚

18 JeanneNo Gravatar { 05.03.10 at 2:15 am }

Alanna,

Yes, one person can make a huge difference. I greatly appreciate you posting the endometriosis awareness petition. You were one of two bloggers this week who did so. My friend Jannie Funster posted about it as well:

Seven Bloggers Doing Cool Things

Each time someone else shares it, the number of people we can reach increases exponentially!

Thank you!!! πŸ˜‰

Jeanne

19 Alanna KlappNo Gravatar { 05.03.10 at 12:03 pm }

Hi Jeanne, wow, what a cool post!!! That is awesome! You are so right, if one person passes it on and it keeps going the difference that can be made is amazing. I’m so excited to help spread the word and I’m going to visit your friend Jannie Funster’s blog later on! Thanks so much! I hope you are having a wonderful day! Talk soon!
-Alanna πŸ™‚
.-= Alanna Klapp´s last blog ..A Petition to Create Endometriosis Awareness & Understanding =-.

20 JeanneNo Gravatar { 05.04.10 at 12:37 am }

Alanna,

Your enthusiasm for the endometriosis cause is so awesome! Yes, each person truly can make an amazing difference. Yes, I’m sure you’ll enjoy Jannie Funster’s blog. It’s never boring! πŸ˜‰

Thank you again so much. I hope you had a wonderful day too. It was sunny here… which was nice. Talk soon!

Jeanne

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