Comments on: Tell Congress About Your Interstitial Cystitis http://chronichealing.com/tell-congress-about-your-interstitial-cystitis/ Helping women with chronic illnesses Sat, 04 Sep 2010 17:37:43 -0700 hourly 1 http://wordpress.org/?v=3.0.1 By: Jeanne http://chronichealing.com/tell-congress-about-your-interstitial-cystitis/comment-page-1/#comment-4169 Jeanne Mon, 15 Feb 2010 08:44:05 +0000 http://chronichealing.com/?p=6874#comment-4169 K, Thank you for sharing this link with your readers. The snowstorm in Washington threw off ICA's timeline for meeting with legislators. So, it might not be too late to write in regarding interstitial cystitis! Jeanne K,

Thank you for sharing this link with your readers. The snowstorm in Washington threw off ICA’s timeline for meeting with legislators. So, it might not be too late to write in regarding interstitial cystitis!

Jeanne

]]> By: Interesting posts, weekend of 2/14/10 « Feminists with Female Sexual Dysfunction http://chronichealing.com/tell-congress-about-your-interstitial-cystitis/comment-page-1/#comment-4163 Interesting posts, weekend of 2/14/10 « Feminists with Female Sexual Dysfunction Sun, 14 Feb 2010 21:52:28 +0000 http://chronichealing.com/?p=6874#comment-4163 [...] Tell Congress About Your Interstitial Cystitis – The deadline on this one has passed, but it may still be of interest to IC patients, and includes Jeanne’s letter to congress. On a related note, (Via My Autoimmune Life) New Clinical Trial For IC Patients with Vulvodynia Patients – This one is explicitly for patients with both vulvodynia and IC, two conditions that sometimes overlap. Also related, some of my readers here have endometriosis, and so here is another one from Jeanne about Endometriosis Advocacy and the Media. There’s more health-related blog posts this week, including Ms. M on Living With Chronic Illness, a Guest Post – about living with chronic conditions while feminist. And also, Voices of the Uninsured – a much-needed reminder that health care in the US is still a crisis situation. [...] [...] Tell Congress About Your Interstitial Cystitis – The deadline on this one has passed, but it may still be of interest to IC patients, and includes Jeanne’s letter to congress. On a related note, (Via My Autoimmune Life) New Clinical Trial For IC Patients with Vulvodynia Patients – This one is explicitly for patients with both vulvodynia and IC, two conditions that sometimes overlap. Also related, some of my readers here have endometriosis, and so here is another one from Jeanne about Endometriosis Advocacy and the Media. There’s more health-related blog posts this week, including Ms. M on Living With Chronic Illness, a Guest Post – about living with chronic conditions while feminist. And also, Voices of the Uninsured – a much-needed reminder that health care in the US is still a crisis situation. [...]

]]> By: Jeanne http://chronichealing.com/tell-congress-about-your-interstitial-cystitis/comment-page-1/#comment-4065 Jeanne Sun, 07 Feb 2010 15:51:08 +0000 http://chronichealing.com/?p=6874#comment-4065 J, Thank you very much for linking to this IC story on your blog! I'm headed over there right now. Jeanne J,

Thank you very much for linking to this IC story on your blog! I’m headed over there right now.

Jeanne

]]> By: I have a lot to say.. « My Autoimmune Life http://chronichealing.com/tell-congress-about-your-interstitial-cystitis/comment-page-1/#comment-4064 I have a lot to say.. « My Autoimmune Life Sun, 07 Feb 2010 15:47:44 +0000 http://chronichealing.com/?p=6874#comment-4064 [...] was. First off I want to point all Interstitial Cystitis patients to Jeanne’s blog post about educating Congress about IC … she received an email about it from the ICA and they want patients to email them their IC [...] [...] was. First off I want to point all Interstitial Cystitis patients to Jeanne’s blog post about educating Congress about IC … she received an email about it from the ICA and they want patients to email them their IC [...]

]]> By: Jeanne http://chronichealing.com/tell-congress-about-your-interstitial-cystitis/comment-page-1/#comment-4063 Jeanne Sun, 07 Feb 2010 15:37:14 +0000 http://chronichealing.com/?p=6874#comment-4063 Hi Alyssa, I'm glad you saw it in time too! That's great that you sent in an email. I am grateful to the ICA for consistently working so hard advocating on behalf of interstitial cystitis patients. To be honest with you, I wish we had that kind of powerhouse advocating for patients of many other chronic illnesses just as effectively! The ICA doesn't mess around. Sadly, some chronic illnesses simply don't have an organization as effective as ICA working for patients. Jeanne Hi Alyssa,

I’m glad you saw it in time too! That’s great that you sent in an email. I am grateful to the ICA for consistently working so hard advocating on behalf of interstitial cystitis patients. To be honest with you, I wish we had that kind of powerhouse advocating for patients of many other chronic illnesses just as effectively! The ICA doesn’t mess around. Sadly, some chronic illnesses simply don’t have an organization as effective as ICA working for patients.

Jeanne

]]> By: Alyssa http://chronichealing.com/tell-congress-about-your-interstitial-cystitis/comment-page-1/#comment-4062 Alyssa Sun, 07 Feb 2010 15:08:21 +0000 http://chronichealing.com/?p=6874#comment-4062 This is great news! I just sent my email. Glad I saw this in time! This is great news! I just sent my email. Glad I saw this in time!

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