Tell Congress About Your Interstitial Cystitis

I received the following email on Friday from the Interstitial Cystitis Association (ICA). So I apologize for the short notice. Please take a moment to read it. The ICA is looking for feedback to take to Congress by midnight tonight. All they need is a short paragraph about the impact interstitial cystitis has had on you. I’m sure some of you reading this have IC. Perhaps you can take just a moment to look at this email? This is a chance to educate Congress about interstitial cystitis. Thank you.

Email from the Interstitial Cystitis Association (ICA):

The ICA is meeting with your Congressional representatives next week to educate them about the importance of dedicated IC government funding.

Would you like to share your story with your state leader?
Are you willing to write one paragraph about how IC has affected your life and how the ICA helps you?
Congress is eager to hear the experiences of real people. If you are a patient, caregiver, healthcare provider, researcher, or other individual affected by IC, please take a moment to write a short paragraph about your experience.

Let’s see how many stories we can collect by midnight on Sunday, February 7, 2010.

Please join us in advocating on behalf of the millions of people with IC. Email your story to TakingAction@ichelp.org. The sooner the better so we can compile and deliver early next week!

Thanks for your help!

Barbara Gordon, RD
Executive Director

Here is my letter to Congress:

My name is Jeanne and I have interstitial cystitis. My symptoms started in 1992. It took 12 years to be properly diagnosed. After seeing three urologists, all of whom told me I did not have interstitial cystitis, I finally received a correct diagnosis when I had a fourth cystoscopy with hydrodistention performed under anesthesia in 2004. Since then, I have experienced significant improvement in my symptoms thanks to proper treatment of the condition. I have found Interstitial Cystitis Association (ICA) a helpful source of information on interstitial cystitis. Outside of my physician, Interstitial Cystitis Association (ICA) is my number one resource for information about interstitial cystitis. So, I am thrilled to hear that representatives from Interstitial Cystitis Association (ICA) will be meeting with members of Congress to discuss interstitial cystitis. This often misdiagnosed, under-treated, serious illness deserves better understanding, research, and general awareness. Thank you for taking the time to hear from interstitial cystitis patients like me. I appreciate your time.

Jeanne
http://chronichealing.com/

If you have interstitial cystitis, I urge you to write in to the ICA at the above address by midnight tonight so that your voice can be heard by members of Congress. This is a wonderful opportunity to make our voices heard!

This post was written by Jeanne at http://chronichealing.com. Copyright © Jeanne — chronichealing.com. All rights reserved.

“Peace is not something you wish for; it’s something you make, something you do, something you are, and something you give away.” ~~ Robert Fulghum

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Thank you for supporting this blog by shopping Amazon via my ads & spreading the word to others! So many of you have done so in these last couple of months; I greatly appreciate your support!!

Thank you for your blog comments!

New to blog commenting? Just click “comments” below the post. If you grab a Gravatar, your picture will show with your comment.

>> Stumbling & tweeting my blog posts is greatly appreciated! <<

Reading: Tell Congress About Your Interstitial Cystitis