Helping women with chronic illnesses

Riverdance Ruined?

In my last post, I mentioned wanting to write a post with an example of how fragrance can really impact people in the vicinity of the individual wearing fragrance. Here is just one story of how fragrance took a special, long-anticipated event and turned it into a stressful, tension-laced situation.

For weeks and weeks, we had looked forward to seeing the Riverdance Farewell Tour. Tickets for such an event are not exactly inexpensive and this was an uncharacteristic splurge that we took after seeing a Riverdance show in 2000 that was spectacular! For those who may not be familiar with it, here is a sample of their magic:

As you can imagine, I did not want to miss a moment of the show. Everything was going along swimmingly at first. We had seats on the left aisle. (Due to nerve damage to my leg related to my last surgery where two nerves were cut, anytime I go to a theater I need a left aisle seat). The bonus of having a left seat was that there was a wide aisle between my seat and the section left of me. Our seats were in the back of the balcony. So, there were no worries about fragrances behind me. I was safe on my right with fragrance-free loved ones there. The place was nearly packed (probably an official sell-out). However, the two seats directly in front of me were empty. I was happy as a clam. To sit in a theater like that and not have any fragrances nearby is a near-miracle.

The show was a matinee. It started at 2:00 pm. I had 28 minutes of pure bliss. Then it happened. In my peripheral vision, I noticed a flashlight. An usher was escorting two women to their seats. Can you guess where they were? If you guessed the two seats in front of me, you’re right. (Sorry but I don’t have a prize for those who guessed right). I swear to you on my life that both of these women must have spent the 28 minutes they were late coating themselves in fragrances. I am not even kidding.

So, here is the thing. I have lived with multiple chemical sensitivity (MCS) since 1992. That means I have been dealing with MCS four years longer than I have known my husband. So, I know what I can handle and what I can’t and it was very quickly evident that I could definitely not handle sitting behind these two human perfume factories!

My dear husband is wonderful and supportive about my many chronic illnesses. My dear husband is also the type of person who does NOT like to make a commotion in a crowded theater. To be clear, I don’t like to do so either! However, since my breathing trouble set in shortly after these women arrived and since that was quickly followed by profound dizziness, I knew I had to bail.

By the way, who shows up to a not-inexpensive show like that 28 minutes late, anyway? Seriously, I thought I was in the clear!

Anyway, my husband is not one to switch seats mid-performance. That’s just the way it is. So, when my dizziness morphed into starting to lose my vision partially (i.e. I was about to faint), I matter-of-factly informed him that I was going to find an usher because I had no choice but to move. I was saddened (but not surprised) that he stayed put.

I found an usher who was incredibly helpful and directed me to an area with some open seats. This was actually closer to the stage, had a slightly better view, and there were no fragrances nearby. In the time that it took to talk to the usher, I missed part of the show. I was very disappointed to miss any of the show but I did what I had to do.

Shortly after moving, it was intermission time. I made sure Hubby knew where the new seats were and encouraged him to move also. He stayed put. I wasn’t going to argue about it. I did what I had to do.

So, back to the post title. Was Riverdance ruined? No. Despite missing part of the show, the commotion of switching seats, the trauma of inhaling that unbelievably strong perfume, and the tension all this caused with Hubby… it’s pretty hard to literally RUIN a show as wonderful as Riverdance.

Do I wish the fragrance incident hadn’t happened? Of course. Do I wish theaters like that were fragrance-free? Absolutely!

However, I did the best I could to appreciate what I did see (the vast majority of it) and make peace with the fact that the time I missed was totally out of my control.

My dream is that someday fragrances (so many of which contain carcinogens, neurotoxins, and/or endocrine disruptors) will no longer be allowed in such public places. It is not healthy for anyone to inhale toxic fragrances. While my multiple chemical sensitivity (MCS) may make me more sensitive to it (than the average person) in an obvious, short-term way…


There IS good news!

My wish is that there will continue to be breakthrough success stories like those below and that the tides will keep turning in the right direction (as they already are now). My primary care physician’s office instituted a fragrance-free policy for employees BEFORE the CDC ruling you’ll see listed below. So, awareness IS increasing!

US Centers for Disease Control and Prevention issues indoor air quality policy for all CDC offices nationwide
. This post talks of a huge victory! The Centers for Disease Control issued a policy making their office space fragrance-free (and more). This sets a precedent for medical offices and hospitals to follow suit. This post is courtesy of Susie Collins at The Canary Report. Thank you to Harry B Clark for obtaining the documents.

Workplace Perfume Precedent: This CBS video is courtesy of Jasmine at Jasmine’s Cove.

April 30, 2010: New ADA Guidelines for Fragrance Sensitivity (Another victory! This one capitalizes on the Susan McBride case mentioned above). This link is courtesy of Harry B Clark.

This post was written by Jeanne at Copyright ยฉ Jeanne โ€” All rights reserved.

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Reading: Riverdance Ruined?


1 JasmineNo Gravatar { 05.06.10 at 3:13 am }

So glad MCS didn’t completely get in the way of enjoying your evening ๐Ÿ™‚

2 Susie CollinsNo Gravatar { 05.06.10 at 6:35 am }

Thanks for all the shout outs, Jeanne! I’m sorry you had this happen. I don’t go to public performances anymore for just this reason. My husband just went to a play where the actors actually smoked during the entire performance! Can you imagine?
.-= Susie Collins´s last blog ..Linda Sepp is evicted from her home this morning, spending nite in car =-.

3 JeanneNo Gravatar { 05.06.10 at 9:27 am }


I was so upset when these two perfume-laden women sat down in front of us. Disappointed that it had happened, upset that it had caused tension with my own husband at an event that was supposed to be a treat, angry that expensive tickets were wasted in the time that I was explaining to ushers my need to switch seats (not to mention angry that I had to explain myself!), extremely angry that I got sick from inhaling the fragrances wafting from these two women… I was not a happy camper. In the end, though, I did my best to enjoy the show as best I could regardless of the perfume incident. It just burned me up that these two women and their fragrances really took away from what could have been a much nicer time.


I’m sorry that you don’t go to public performances anymore because of incidents like this. It makes me sad that so many people are giving up such experiences due to women like the ones that sat in front of us. It is not right for people to pay good money to see a show only to be assaulted by toxic fragrances. I totally understand why you no longer go to public performances. This is certainly not the first time fragrance problems have been an issue for me at a show. I realize that by continuing to venture out once in a blue moon to such events, I take the risk of an exposure like this. It makes me really angry that I may someday feel the need to opt out completely too.

I am clinging to the hope that venues will be implementing fragrance-free policies in the future. With the Susan McBride case in Detroit bringing more awareness to the dangers of fragrances and others seeming to take that court case into account, I am hoping that more and more places will enact fragrance-free policies.

As far as your husband going to a play where the actors smoked during the entire performance, that is just incredible! No, I cannot imagine! I’ll bet you were glad you don’t go to public performances when he came home with that tale! If I were there, I would have been the one demanding a refund for my ticket price the moment they whipped out the first cigarette/cigar/pipe… whatever it is they were smoking! That is just unbelievable. It’s hard to believe that is even legal.

I was happy to see Michigan just passed a law banning smoking in not just restaurants but in workplaces INCLUDING BARS:

From The Detroit News: Businesses, patrons happy to say goodbye to smoking

According to the article:

“Michigan became the 38th state to require such public places to be smoke-free. The only exemptions are cigar bars, tobacco specialty retail shops and the gaming floors of Detroit casinos. Violators face fines of $100 for a first offense and $500 for additional offenses. Violations also can lead to loss of food service licenses”.

Now restaurant/bar employees aren’t inhaling second-hand smoke throughout their shifts. Not to mention everyone else who will benefit!

My state has had smoke-free restaurants for awhile. When we visited family a few years back in another state, I walked into a restaurant and was stunned because it was full of smoke. It had been so long since I’d been in a restaurant that allowed smoking that I had forgotten the law was different in some other states. I couldn’t get out of there fast enough. It was an eye-opener. I had forgotten what it had been like before my state enacted laws banning smoking in restaurants!


4 KatrinaNo Gravatar { 05.06.10 at 10:51 am }

Jeanne, I have had several experiences similar to yours, though not with tickets so expensive. At a piano concert in another state many years ago, perfume caused my back to itch so badly I had to leave for the restroom to find a stall in which to stratch until I couldn’t feel my skin anymore. By the time I returned, my favorite piece was in progress, and I stood in tears outside the closed doors, silently crying while trying to hear (but not able to see) the pianist.
I’ve largely given up going to the Kennedy Center, one more venue I rarely attempt due to something that seems to be permanently in the air there.
At a Jesus Christ Superstar performance, I was relatively lucky–uncrowded early weeknight performance and I was able to move entirely away from people to a space near one of the exit ramps (it was in a large arena, plenty of seats both full and empty).
At a STOMP concert, about 5 rows from the front, started out great–until 5 minutes before the show, when She sat down in front of us–She with perfumed hair that wafted headache-inducing chemicals right into my lungs every time She shifted. I wasn’t about to miss that performance for anything, though, especially since we were so close we were sprayed with bits of sand as it was swept off stage. That part was a great memory, but I really paid for my reluctance to leave with a hideous headache afterwards.
My most recent foray into the theatre was delightful–a performance of Hamlet at the Folger Theatre. We deliberately went on a weeknight early in the week and early in the run, to avoid crowds. We had great seats near the front, surrounded by people, and apparently no one nearby was wearing fragrance. I was as pleased with that as with the play. The fog used in the second half alarmed me, but neither I nor my hubby could detect an odor, so perhaps it was dry ice instead of that chemical fog used in the past. At any rate, I barely had any headache at all by the time we left the theatre.
I’ll continue to chance excursions once in a while, but I don’t go as often as I’d like due to the fragrances.

5 JeanneNo Gravatar { 05.06.10 at 3:20 pm }

Hi Katrina,

Sad to say, the Riverdance fragrance adventure was not an isolated thing for me but just one example. Unfortunately, I have plenty of other fragrance stories where that came from. I have also learned that outdoor concerts are not a good option because then people smoke (even if they are not supposed to in the shell of the amphitheater and even if there are a zillion signs saying so). We went to see the symphony when they played at an amphitheater the summer before last and 90% of the show was great. Unfortunately, at the tail end of the show there was someone who apparently couldn’t wait just a few more minutes for a cigarette. So the end of the concert this person (fairly close by) was smoking – despite no smoking signs through the shell of the amphitheater (where we were).

I’m so sorry about your experience at the piano concert! That sounded awful. ๐Ÿ™ It sounds like you heard just enough (your favorite piece through the door) to tease you and rub salt in your wounds about your run to the restroom to scratch. That’s terrible. Obviously, a big part of a live concert is seeing the performance and not just hearing the music. That must have really been upsetting.

It’s funny how some buildings truly do have something permanently in the air like that. That’s too bad.

That was smart to go on a week night when it was less crowded. I’m glad that one worked out better for you.

I can only imagine what ran through your head when She arrived at the STOMP concert. It sounds like She was one of those people you hope will never show up at a concert! Some of those hair products are just plain brutal. My sister uses a hair product that gives me intense nausea, a very severe headache, and makes me feel faint. I have talked with her about it and she knows how sick it makes me. Sometimes she wears it when I’m around and sometimes she doesn’t. When she does, I steer clear because I have no doubt that it could make me faint. (I’ve had the warning signs of fainting occur). I’m sorry you had such a terrible headache after STOMP.

Another success story for a less populated weeknight show! It sounds like you may be onto something here. (Granted, weeknights aren’t an option for all shows but for the ones that do have this choice, it’s worth noting that you’ve had better luck then).

Like you, I will continue to chance it once in awhile. However, I will also (like you) do so less often because of the fragrances. It makes you wonder if these venues have any idea how much money they are losing because people like us opt out of many shows because of concerns about fragrance exposure. There are SO many people who are chemically sensitive. Just as restaurants who used to allow smoking were afraid they’d lose business by banning it… and actually gained business with a smoking ban, I would bet that fragrance-free theaters would get more business too!


6 KNo Gravatar { 05.06.10 at 6:07 pm }

I don’t have MCS but I’m sensitive to fragrances. My sister has this heavily scented soap in her bathroom & if I use it, that smell doesn’t come off for hours.
And it gives me a headache.
A lot of smells give me a headache. I think I can tell the difference between real fragrances (a garden, food,) vs synthetic ones. Like, perfumes & those Plug-in potpourri things – they smell chemically. If I’m around them too long I get a headache.
Body splash & perfumes are a problem too, but no one at work wears them.
But like, I don’t like shopping at malls much partly because they always stink! Vendors sell perfumes, clothes smell like funny smelling clothes, there’s ozone smells in the electronic stores… I need Tylenol after I come home from shopping because of the headaches.

I have like 1 bottle of real perfume – and I like it but I never wear it. It’s Just too much.

I think bathroom cleaning chemicals are the worst though.

7 JeanneNo Gravatar { 05.06.10 at 7:49 pm }


Wow. It sounds like you’re pretty sensitive. ๐Ÿ™

My sister (not the one I mentioned in a previous comment with the hair product that makes me sick – but my other sister) has Bath & Body Works soap in her bathroom. Even though I took my dermatologist’s suggestion many years ago to carry a small container of my own liquid soap around with me wherever I ago (which he actually suggested because of my atopic dermatitis), I still have a hard time washing my hands at her house because the Bath & Body Works soap residue in the sink (from people who have used the Bath & Body Works soap before me) wafts up at me when I’m using my own soap (with the water from the faucet). It’s totally ridiculous! Just the residue in the sink becoming wet when I turn the water on sends that sickening smell up at me. The Bath and Body Works products (regardless of what scent they claim to be) all seem to have a common denominator fragrance that makes me incredibly nauseous, gives me a terrible headache, and makes me dizzy.

A lot of smells give me a headache too. The plug-ins smell “chemically” because they are full of just that: chemicals. “Air fresheners” can contain all sorts of harmful toxins. (I can’t even write it without the quotes because the idea that they freshen the air is so ludicrous to me. So I always put it in quotes). Typical perfumes and colognes nowadays generally are loaded with synthetic fragrances containing large amounts of chemicals that have not been tested for safety and are not regulated. Body splash, lotions, fragranced shampoo/conditioner… anything with fragrances can be problematic.

I’m glad no one you work with uses these fragrances. That is a good thing!

Yes, I stay away from malls because the smells there make me really ill. Let me correct myself! The toxins that are contained in the products/fragrances with those smells make me really ill. The smells are just a warning sign for me. It’s the toxic chemicals that actually make me sick.

You’d be amazed at how many things Amazon carries; I buy so much stuff there now. When I dare venture into a store for something I can’t get online, I have the best luck at Target. I know the layout of the store and I just veer away from the soap/detergent aisles and such. I limit my trips to grocery stores because the detergent aisle affects the whole store for me. (Thank heavens my husband does so much of the grocery shopping). Target is big enough that I can manage there for a relatively brief time by just sticking to areas of the store further away from the toxic/smelly stuff.

Malls are one of the toughest places to go… from a chemical sensitivity standpoint, I think. Between stores like Bath & Body Works and Yankee Candle Company and the department stores with their designer perfume counters alone, it’s a nightmare for me. Add to that the fragrances worn by all of the shoppers and sales clerks and it’s just out of control.

When you say there are ozone smells in the electrical stores, are you talking about those alleged “air cleaner” machines sold at Sharper Image? If so, those machines are dangerous. See more information here:

Ozone Machines

It is really unfortunate that public areas like malls have such toxins in the air. They are not healthy for anyone. While some shoppers or sales clerks might not feel short term effects the way a chemically sensitive individual would, anyone can suffer long-term effects.

Since you are already so sensitive, it’s worth noting that the more you are exposed to the chemicals that bother you… the more sensitive you are likely to become. I highly recommend The Canary Report as a resource to learn more about chemical sensitivity. More and more people are developing chemical sensitivity nowadays. ๐Ÿ™

I don’t blame you for skipping the perfume. Years ago, I wore perfume too. If I tried to wear that same perfume now, I’d become incredibly ill. If I knew then what I know now, I would never have worn it then! It’s really alarming when you research fragrances and discover that so many of them contain carcinogens, neurotoxins, endocrine disruptors, etc. It’s just mind-boggling.

Bathroom cleaning products like Tilex make it hard for me to breathe and even give me chest pains. There are lots of cleaning products out there that are far safer than the typical commercial ones. Unfortunately, some of the very same companies who make some of the really toxic products are now trying to jump on the bandwagon by marketing supposedly “green” products that may be green in name only. The Canary Report has great suggestions for selecting safer products. Simple and inexpensive items such as baking soda and vinegar can be very effective for cleaning many things. The companies pushing expensive (and toxic) products market their products in such a way that many in the general public are left thinking they must buy “Product xyz” or their house “won’t be clean”. They care about their profits and they don’t care about safety of consumers or they wouldn’t have such toxic ingredients in their products. It’s sick.


P.S. Given your level of sensitivity, you should be aware that fabric softeners are bad news. I can only imagine/guess they would bother you.

8 JennNo Gravatar { 05.07.10 at 11:54 am }

Thank you for sharing your experiences with MCS. I had not heard of it before your blog. I am quite sensitive to smells & perfume can instantly give me a headache & make me nauseous. On the rare occasions that I go to a mall, I vehemently avoid the perfume section.

I will never, ever understand the thought process behind wearing all that perfume or cologne. It is a shame that so many people have to worry about what (smells or toxic products) they will encounter in order to venture into public places.

I’m so happy you found another seat & enjoyed the show!
.-= Jenn´s last blog ..GETTING TECHNICAL =-.

9 JeanneNo Gravatar { 05.08.10 at 9:48 pm }


It sounds like you’re quite sensitive to fragrances. It is really unfortunate that so many toxic chemicals are in these products… unregulated and making so many people ill. ๐Ÿ™

People who wear excessive amounts of fragrances definitely cause grief for others. Sadly, even small amounts of fragrance can make people extremely ill because there are so many toxic chemicals sold legally. My husband brought groceries home the other day and the bags smelled like they’d been soaked in perfume. The fragrance worn by the clerk who checked him out came home on the bags. All it takes is a few molecules of certain fragrances to create symptoms. This has happened other times as well. It’s bad enough that I get ill from people’s fragrances outside my home but when their fragrances come into my home via something like a grocery bag, it makes me really upset.

Fortunately, the Centers for Disease Control recently implemented a policy banning fragrances in their buildings. This sets a wonderful precedent! In time, I believe hospitals and medical offices will be required to be fragrance-free, for example. It can’t happen soon enough for me!

Yes, it was a great show despite the 2:28 pm pair! ๐Ÿ˜‰


P.S. You may not have MCS but it sounds like you are chemically sensitive. I started a group for patients who are both chemically sensitive and have endometriosis. I invite you to join us here…


The group is still getting rolling. I very much want to understand why so many people with endo are also chemically sensitive. I believe patients connecting with other patients about their experiences can be helpful. That’s why I started this group on The Canary Report. ๐Ÿ˜‰

10 JeanneNo Gravatar { 05.15.10 at 4:11 am }

Hayley kindly referred to this post in her Rellacafa blog post. Thank you, Hayley!! ๐Ÿ˜‰

11 Matthew SmithNo Gravatar { 05.16.10 at 12:17 pm }

I don’t have MCS but my cousin did a few years ago, for several years. She was really unwell and weak, but I remember that we all had to watch what we put on ourselves – no spray-ons, for example. None of us, to my knowledge, have used them since.

Personally, I hate having chemicals sprayed around me because I really don’t want them in my food, for example – something that some restaurant staff don’t really appreciate. I once went into a Malaysian restaurant in London and was about to order from their hot buffet, which is behind a glass screen, but saw one of their staff spray cleaning fluid onto the screen without covering the food underneath. I turned round and walked out.

But there have been times when I’ve felt really overpowered by chemical smells – I was on a bus, I think, a few weeks ago and some woman sat down near me who had a really strong perfume on (or perhaps just too much of it). I wondered how long I was going to be able to stand it for. It’s not called “Poison” for no reason!

12 JeanneNo Gravatar { 05.16.10 at 12:38 pm }


Thank you for your interest is this MCS Awareness Month post.

I’m sorry about your cousin’s struggles with MCS. It’s worth noting that there is currently no cure for multiple chemical sensitivity. Some patients do have improvement in their symptoms; it sounds like your cousin is one of them. That is FANTASTIC that everyone has avoided using products that caused her to have symptoms! Too often, loved ones of MCS patients continue to use such products… not understanding that they are unhealthy for everyone (not just the MCS patient). MCS patients are more sensitive than others but the toxic chemicals that cause them symptoms are not healthy for anyone.

I don’t blame you for walking out of the restaurant that was spraying cleaning products right by the food! I certainly would walk out too!

Here is a recent post about fragrances:

Analysis shows top-selling fragrance products contain secret chemicals never assessed for safety

The term “fragrances” can refer to many different synthetic chemicals. Some are extremely toxic. Even a small amount of such a fragrance can induce symptoms. Many fragrances are, quite literally, poison. It is not unusual for carcinogens, neurotoxins, and/or endocrine disruptors to be found in “fragrances”.


13 When Rest Is Just Not Optional — { 05.21.10 at 7:14 pm }

[…] multiple chemical sensitivity (MCS) […]

14 SafiyyahNo Gravatar { 05.23.10 at 2:43 pm }


My dear friend, Jamilah, really suffers from MCS. She has practically become a prisoner in her home, and is not really safe there either at times. I sent her a link to you, hoping that she will come to know you and discover that she is not alone. Thanks!
.-= Safiyyah´s last blog ..2010 Garden =-.

15 JeanneNo Gravatar { 05.23.10 at 11:25 pm }

Welcome Safiyyah!

I’m sorry to hear that your friend, Jamilah, is suffering so much from multiple chemical sensitivity (MCS). It can be a very challenging condition! Sadly, it is not at all uncommon for some MCS patients to become housebound. Also, finding safe housing is a real concern for many with MCS. Thank you for sharing my link with her.

It’s important for her to know that she is far from alone.

There is actually a thriving community for MCS patients — with information available and helpful people to connect with online. The blog The Canary Report (mentioned in this post) is my favorite go-to site for MCS. Its Editor, Susie Collins, is unbelievably nice.

Connected to The Canary Report website and blog is a NING social network overflowing (!) with MCS patients chock-full of resources, information, emotional support, etc. Many patients there are housebound or nearly so. I cannot recommend The Canary Report highly enough for anyone wishing to learn more about MCS.

There are also oodles of Facebook users who have MCS. The amount of networking (and advocacy/education) that MCS patients are doing online is just incredible. I really hope this helps your friend and appreciate you sharing my link with her.

MCS can be very isolating and getting connected online to fellow MCS patients helps immensely. The creativity and support I have witnessed within the online MCS community is staggering. I highly recommend that your friend check out The Canary Report. It is just jam-packed with high-quality information and caring people!

Thanks for stopping by.


16 Secondhand Smoke Stinks! (VIDEO) — { 05.27.10 at 3:27 am }

[…] Riverdance Ruined? […]

17 Indigo Jo Blogs — When your cosmetics make others ill { 06.08.10 at 5:08 pm }

[…] her perfume could have on those who were confined in that space with her. (I wrote about this here and the whole post, and several others at that blog, are well worth […]

18 LindaNo Gravatar { 12.08.12 at 1:32 pm }

I am so sad to hear about so many others suffering as my family of 5 has done since our diagnosis of chemical injury in 1998. Our original injury was to an old Significant Risk Gas Processing Facility in CA. I moved my family back to my home town in TN. In the Sumner County school system they have sustained further injuries. They refuse to implement an indoor air quality policy protective of their health. In fact they even refused to do a 504 plan at all for one of my children and he dropped out of school after his first year of high school. Now my youngest son in his second year of high school has been forced out because they won’t remove the disability barriers. He suffers from M.C.S. and school says stupid things like “doubt the validity of the Dr. Note etc” (His Dr. is very well known and respected among his peers). My son is very smart and wants very much to go to school with his peers. His last attempt in school, he was in so much pain that even his teeth hurt. I have been writing letters, sending Dr. notes and complaining for 10 years now and still they think the solution is for my children to just leave school. I am looking for a Federal attorney who specializes in ADA. If anybody knows one please contact me at Thank you

19 JeanneNo Gravatar { 12.11.12 at 2:27 am }


I am very behind on moderating blog comments. I apologize for the delay and your comments will be posted as soon as I can a chance. Thank you for your patience!


20 JeanneNo Gravatar { 12.11.12 at 1:59 pm }

Welcome Linda!

I’m really sorry to hear about all of the challenges you and your family are struggling with due to MCS. I’m especially sad to hear that your son is encountering barriers to getting a public education due to MCS. I just tried sending you an email but it bounced back for some reason. Can you please verify the spelling of your email address? Is there really a “.” before the @ sign? Please let me know so that I can resend the email to the correct address.

Best wishes to you!


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