Oh, you always are the Funster, aren’t you? I know how you like to play with words.

Yes, I thought it was interesting that the comments were closed so soon after the article was published, with a mere four comments posted, and with me knowing (just from people I had spoken with) that there were people who had submitted comments that went into limbo and never did get posted.

However, I will give them huge points for printing the letter to the editor mentioned in today’s post,
Endometriosis Advocacy and the media!

At least they actually listened to the feedback they were inundated with from endometriosis patients and did something about it. I give them huge points (when, after all, the correction was very warranted!) simply because my own personal experience with the media in situations like this is that endometriosis patients’ voices are typically ignored.

So, while I was very upset with the initial article, I am thrilled that they printed a letter to the editor that points out the initial article’s errors.

It is wonderful to see that people CAN do something about endometriosis misinformation in the media… especially if they band together!

Jeanne

Consider me in on a letter to the UN-Intelligent-er.

Geez, Louise. Closing comments — what chicken crap.

Thank you very much for posting about this important topic… The more people write letters to the editor, the better!

Readers:

I have not yet had an opportunity to email the author directly as I have been very busy communicating with endometriosis patients about this matter and getting the word out on Facebook. I do plan to write the author directly. If anyone reading this has contacted either the newspaper Editor or the article author, please let me know so that I can try to track approximately how many people are writing in. If you have not yet signed the endometriosis petition mentioned in this post, please do so at your earliest convenience as I have an idea for how I may put it to use shortly. Also, if any readers who use Twitter would be so kind as to take the “Retweet This” option at the bottom of this post, I would greatly appreciate it. That will help get this post circulated so that more people can be made aware of this situation.

Thank you!

~~~

Jeanne

Welcome!! Ironically enough, I just discovered your blog today too… but haven’t had a chance to post a comment yet because I have been so busy (with this post in particular) that I haven’t been able to “breathe” today.

Thank you for stopping by with your feedback on this alarming story. I have lived with endometriosis for 27 years now (the first 10 of which were undiagnosed) and I have to say that I am just sick and tired of media misinformation such as this regarding endometriosis.

I don’t know if you’ve signed the petition that I mentioned in the post but this “news” article is precisely the type of botched coverage on endo that motivated me to set the petition up in the first place.

Words cannot express how very frustrated I am that this type of story gets printed again and again and again. It really is no wonder that such stories get published when doctors who are considered by some to be “experts” are spreading misinformation!

It’s bad for the endometriosis community as a whole, it’s bad for individual endo patients, and it’s bad for the general public too. It certainly is a huge disservice to endometriosis patients. I agree with you that this situation is enraging. If you could have been a fly on the wall today when I discovered that the author is a GYN, you would have seen quite a sight!

Thank you so much, Nicole!

Jeanne