Helping women with chronic illnesses

Infertility Treatment Savings: Action Needed

Thanks to seeing Kelly’s post on Twin Peas Blog and Podcast, it came to my attention that there is infertility-related legislation pending at the federal level that affects people in the United States.

As anyone struggling with infertility can tell you, medical treatment for infertility can be extremely expensive. There are very few states with legislation that financially assists those struggling with infertility. Federal legislation (details below) that will assist those struggling with infertility is certainly a step in the right direction.

The more people who take just a moment to speak up about why this is important, the better the chances that it will become law.

As mentioned in the proposed legislation:

“The World Health Organization formally recognizes infertility as a disease, and the Centers for Disease Control and Prevention have stated that infertility is an emerging public health priority”.

Let me say that again because it bears repeating…

Infertility is recognized as a disease.

People who struggle with infertility are no less entitled to appropriate medical treatment than people with other medical conditions. It is discriminatory to deny medical treatment for infertility. By enacting legislation that will make infertility treatment more affordable, the unfair cost burden that infertile couples face for uncovered or under-covered infertility treatment will not disappear but it will be lessened.

The RESOLVE site has links that will quickly and easily direct you to the information you need to contact your legislators to express your support for Family Act of 2011, S 965.

Visit RESOLVE for information on how you can help.

Not directly affected by infertility? Before you move on, please consider this:

Infertility affects approximately 10% of the population. Since infertility strikes diverse groups-affecting people from all socioeconomic levels and cutting across all racial, ethnic and religious lines… chances are great that a friend, relative, neighbor – or perhaps you – are attempting to cope with the medical and emotional aspects of infertility.

Infertility treatment is expensive and even when there is coverage, the out of pocket expenses can be cost-prohibitive. Why not take a moment, using the RESOLVE link to access the information needed, to support those around you who struggle with infertility (or to speak up for yourself)? It only takes a moment and the more voices the legislators hear from, the better. Please spread the word about this legislation on social media sites such as Facebook and Twitter too. Feel free to post this link to help get the word out. If you have a blog, please consider mentioning this legislation there.

Thank you.

This post was written by Jeanne at Copyright © Jeanne — All rights reserved.

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Reading: Infertility Treatment Savings: Action Needed


1 EndochickNo Gravatar { 07.02.11 at 10:08 am }

Jeanne –

When I was told I had endometriosis, I was also told I wouldn’t have children. This was seen a side effect or complication of endometriosis. But when my own sister failed to conceive and there was no endometriosis found – or other causes – on her laporoscopy, they were hesitant to diagnose “infertility”. Checking with her insurance, she was offered VERY LITTLE support for fertility services and abandoned the idea of children. This inability to produce was a major player in the downfall of her marriage.

We do need more infertility friendly laws. Thanks for writing about this.

2 JeanneNo Gravatar { 07.06.11 at 1:22 am }


It boggles my mind that women are told “you can’t have children” upon diagnosis with endometriosis. While up to 40% of endometriosis patients do experience infertility, the majority of endometriosis patients don’t. Obviously there are some cases (such as a friend of mine who had both fallopian tubes removed because of extensive damage done to them by endometriosis) where doctors can say “you won’t be able to conceive naturally”. However, cases such as that seem to comprise a small fraction of endometriosis patients from what I can tell. Even in a case like that, IVF could be an option for conceiving. Also, those who can’t conceive may choose to investigate adoption as an option if it is a possible fit for them (which only they can decide… and it shouldn’t be assumed to be the right option for all. It’s interesting that you were told this when your endo was diagnosed.

Whether your sister was found to have endometriosis or other infertility causes… or not… it should not have been difficult for her to be diagnosed with infertility once she met the criteria for it. According to RESOLVE: The National Infertility Association:

Infertility is defined as the inability to conceive or carry a pregnancy to term after 12 months of trying to conceive. If you are over the age of 35, the time of trying to conceive is reduced to 6 months. It is important to see a specialist, or a Reproductive Endocrinologist, or in some cases your OB/Gyn or urologist for a complete fertility work-up and diagnosis.

I am really sorry your sister went through so much. It’s a shame there wasn’t more support available. 🙁

Yes, we do need more laws to help those struggling with infertility. Thank you.


3 AmandaNo Gravatar { 07.12.11 at 4:19 pm }

I still find it crazy that this is the way it is dealt with in the US… over here couples are generally offered at least one cycle if not two of fertility treatment for free on the NHS. Of course they do have to fit certain criteria such as being between certain ages and healthy in other ways etc because it is a major cost and the NHS is always struggling for enough money to provide the services it does, but it still offers many couples a chance they wouldn’t otherwise have. I know the system works totally differently over there, but if you have medical insurance then I really don’t see why it should be such an issue over whether infertility is covered or not, because it is a major medical issue.

Basically, that is my very ineloquent way of saying I think it is great that there is some movement in the right direction going on xx

4 JeanneNo Gravatar { 07.13.11 at 9:44 pm }


Infertility is recognized as a disease by the World Health Organization. It is flat-out discrimination that infertility patients have such incredible difficulty getting even a portion covered when they get infertility treatment. The special interests that make things so convoluted in the United States are powerful. Like you said, it is nice to see movement in the right direction, at least. Couples who struggle with infertility suffer enough without having to fight tooth and nail to get even a fraction of their infertility treatment covered. Hopefully, this legislation will at least provide some tax credits at the federal level. As it is now, most states don’t mandate any infertility coverage at all.


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