I’m afraid I will need to be brief on reply for the same reason it has taken me so long to post this. An identity thief is impersonating me on twitter. So, don’t feel badly about not being able to “get into it” with twitter because the irony is I haven’t been able to post comments in a timely fashion because of what I have been dealing with on that situation. I’m sure you can use your imagination on what’s it’s like to have someone use you name, face, and blog link to pretend to be you online.

Yes, something as seemingly simple as taking a shower can turn into a Herculean task for some chronically ill patients.

I am very sorry about your healthcare situation and can only imagine how upsetting, frustrating, and maddening it is. I’m so sorry.

I’m sorry you miss blogging but it sounds like you’re doing what you need to do for health reasons and that’s a good thing. Self-care is important.

As far as someone stealing my work, that was a separate issue to this twitter impostor incident that I’m dealing with now. Yes, it is indeed outrageous and we shouldn’t have to deal with such nonsense. Sadly, this seems to be a built-in risk. I think some people think it will never happen to them. I have learned differently. It can happen much more easily than most people seem to think. I did succeed in getting my work removed from that site. Let’s just say that I have a feeling you know exactly the company I was referring to in that incident. We’ll leave it at that.

It’s ridiculous that so much stress can come out of an activity that can help so many… a shame that something so positive can be twisted into such negative things. Unfortunately, it seems that these things really are risks one assumes when deciding to write a blog or use other sites (like social media) in the process. It’s terribly unfortunate.

I’m sending positive thoughts and energy your way and hoping that you start to feel better soon! I am sorry you are suffering so much and hope that it lets up for you soon!

Jeanne
<3

Thank you. Likewise. Sorry for delay posting your comment. I have been (and still am) very busy dealing with someone engaging in identity theft… My twitter account has been copied (including my picture!) and the impostor is creating all sorts of confusion for people… as impostors do.

The one year we did our taxes and upon itemizing found we’d spent over $14,000.00 out of pocket – also WITH insurance. Savings?? What’s that??

Seriously, we almost lost everything. Having almost lost our house three times was very, very stressful. Without credit cards, we never would have survived. So, I hear you. Yes there has to be a better way is for sure!

Good luck with the adoption!

Hmm. I understand fear of another diagnosis (BELIEVE ME!) but getting a proper diagnosis can be useful info for making appropriate treatment decisions.

The fear of added medical expenses is obviously well-founded.

Thanks for stopping by!

Take care,

Jeanne

Yes, uploading.

Jeanne

Sorry for the long delay posting your comment. If you read my blog, you’ll see that I have been very busy.

I understand what you’re saying about Tim’s work and how it affects his views on healthcare.

Also, I inderstand the points you made. Having personally been in a life-threatening emergency where my doctor sent my to the ER and having watched both sides of the hallway lined with gurneys because the hospital had no more space in the ER rooms, I have some idea of what you were talking about with the circle of women waiting for surgery. The hospital I was at had people moaning, groaning, crying, bleeding, and screaming on gurneys in the hallway and I had to walk down that hallway (with my IV pole in tow) to reach the emergency room rest room nearest me. Because I was on an IV flush to clear my body of having too much medication (of a prescribed Rx taken exactly as my doctor ordered but that my kidneys suddenly couldn’t handle), I got to make that “journey of death” bathroom trip quite a bit. I dubbed it the “journey of death” because every single person on those hallway gurneys looked like death. It was a haunting site. I was fortunate to be in an actual room (the type of ER room that is just wide enough to squeeze in a bed) because they had to keep hooking me up to special equipment that apparently didn’t work so well in the hallway. I later was told by my doctor that I had been close to death and my bloodwork showed that the medication has reached potentially lethal levels. I think overcrowding and waits can happen anywhere. Goodness knows we’re not immune to them here.

I’m glad you two are enjoying your wedding planning. That’s great! Wish I could chat more but I am drowning in stuff here and trying to get caught up on some stuff that fell through the cracks while I was busy dealing with the twitter impostor (who is still active).

Take care,

Jeanne

P.S. BTW, a spammer took a snippet of your comment before this one and posted it as a comment from their spammy link!! They were quoting you to me in a new comment on the same blog post! Can you believe it? I was blown away. Pretty nervy, huh??

Wow have I missed you and everyone else in our blogging world!!

You basically wrote exactly how I have been feeling. And I applaud your truths in which you write, that is the basis of my being…living and speaking my truth.

I have been living a very crazy life lately that does not match up well with ever-increasing pain. I am always tired and I TOTALLY understand about the effort required to even shower. I finally ‘gave in’ and got a shower chair, as the last time I almost fell out of the damn thing!! Now I need to attach one of the hand-held shower thingies as sitting in the shower with a regular sprayer head does not do the job….always something else to need to accommodate myself in this world it seems!!

Also, on the Health care issue, Jeanne, I understand that also 100%. My health insurance was pulled illegally by someone who had it out for me and she did it to hit me right where it hurts. Now THAT is a person without a heart. Everything possible was done to reinstate it, and the person who had OFFERED and even INSISTED that I keep the insurance as part of our divorce settlement was trying to do everything possible after this illegal act was done. I even have her voice on tape. (NOT THE BRIGHTEST LIGHT BULB if ya know what I mean!) Yet, b/c of this action of pure and simple HATE for me, and her pure insecurity in this world of those that are not to be trusted, (not me if ya catch my drift), I have paid and paid and paid and paid….it has eaten away at everything that I had. I even get comments from family at how I have ‘mishandled money’…um HUH??? I know this is personal, but I can not talk about my experience of being uninsured without going into that story. Yes, lawyers are involved. No, I can’t say any more than I did, but this person has lost their nursing license, (due to addiction and subsequent Diversion of patients pain medications on the floor), showing only that what you do in life has such an effect on that very life. I’d really like to blog about this story that has affected me on so many levels very deeply, but never want to post anything that seems to be attacking. Yet it is a story that is odd, and therefore kind of interesting to read, as I have been told by people that know about this. Hmmm I’ll think of some way some how. :-S

Of course I can not be insured, oh, just a ‘few’ pre-existing conditions, ergo why the ex insisted I take the insurance coverage that he and I were on for years. The whole thing has really screwed up my life, and it is SO SAD to me to know that if she read this, she would be smiling. How can SOME people be SO just outright mean and nasty???

I have not posted since Sept. I miss it, yet every time I sit down to do it, it is overwhelming and I am having a very hard time writing lately with all the pain and resulting fatigue and other side-effects.

I am so sorry that someone stole your work. Outrageous, and one of the chances we shouldn’t have to take to blog!! Glad you are taking action.

I wish I was a ‘twitterer’, but I just can’t get into it. Tried, but it’s not built for me. I am really glad that you found a niche that suits your own personal needs.

I think of you so often, and love you very much.

With gentle hugs and positive thinking for your body to let up a bit on you each day…..

<3
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And something is wrong again now but a) getting a doctor to take me seriously is another story (we are getting there slowly but surely and b) I am TERRIFIED of another diagnosis. c) I am also terrified of added medical expenses. Ugh.
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You mean with the uploading I mentioned?
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no Tim works for the NHS but he has come across articles in his work comparing it (the NHS) to other healthcare systems in detail and so he researched some more into it and now he cant talk about it without getting angry – I guess seeing people really ill every day makes you realise just how many people would be affected by the lack of our NHS (Tim works in neurosciences, mainly with epilepsy patients but comes across people with neurological issues caused by trauma, illness, stress etc – stress is a MAJOR factor in many things!)

Yes operations, scans, tests… all free, BUT it also has the effect of making it harder to have them because the NHS does have to budget for them all, so waiting lists can be long (I waited 4 years for dental work needed at the hospital as it was too complicated for my dentist) and they will try everything else before sending you for scans and certain tests… like I say, the postcode lottery as it is known can cause issues… we are lucky in Cambridge as the hospital here has a lot of funding and research connected to the university but in Nottingham where I had my first lap I had an awful time (sitting in a room in a circle of women waiting to go to theatre, talking to the doctor at the side of the circle, laying on a trolley in the middle of it waiting for a bed…) it was all because of less funding! So money still does affect healthcare, but not like in the US… we WILL get treatment, no matter what, without fear of losing our homes!!

Yes healthcare abroad is on the whole free too… well in Europe you take a health card with you when you travel and the NHS deals with payments, I forget how it works out of Europe, but Im pretty sure you may have to pay out of pocket at first but be einbursed (but don’t quote me on that… I’ve never used medical care other than in Europe).

The wedding planning is fun… I have 2 years to plan and am enjoying discussing ideas with my friends and family! We want an informal wedding wit old fashioned, rustic country charm, that we can pay for outright (hence the two year wait) and we’re spreading it over 2 days (one for the legal ceremony and close family only and one for all our guests with our own blessing and a buffet). Far more exciting than stressful, I want to enjoy the whole process, not stress… do enough of that at work!!
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Yes, twitter really is amazing.

Possibly just unlucky. Actually, it’s a company that makes this type of thing a general practice. So, I’m not alone.

Yes, healthcare reform is so needed!! I am very sorry to hear that your family is without health insurance. It really is abominably expensive. Having that fear of something happening is terrible. Yes, we had our own little “medical bill nightmare reality show” going on for a few years there. Actually, it was big… not little! (We are not out of the woods by any means).

It is very scary when you honestly don’t know if you can hang onto your house or not. This is also troubling when the very illnesses that caused the healthcare expenses that led to the late mortgage payments in the first place are ongoing because they’re chronic!

Things are finally a little calmer now… but if my husband got laid off tomorrow, that would be a very different story indeed. We haven’t forgotten how quickly and easily things can get really ugly. Yes, the battles and energy-drain are really beyond words. It has been a nightmare, really.

So it gave you an error?

I am trying to fit some rest in here and there. I’m probably not doing quite as good a job in this department as I should. Things have been really busy lately!

I enjoyed visiting your blog today.

Hope you are getting a nice nap!

Jeanne
xoxo