Yes, it’s amazing how much impact weather can have on pain, isn’t it? True, literally “falling” doesn’t help matters any. (I’ve had a couple of falls lately and they were decidedly not helpful). Yes, having multiple conditions that set each other off is never fun! You are right that it can be difficult, if not impossible, to weed out what’s what when many things are flaring at once. It’s like the “chicken or the egg” scenario. What triggered what? It can be incredibly frustrating. Not to mention painful.

To have two conditions flaring at once resulting in a double whammy (or more conditions flaring simultaneously to cause even worse)… it is very challenging. In endometriosis support groups over the years, I have met many, many women who have both migraines and endometriosis. Migraines can absolutely be triggered by hormonal changes.

I’m so sorry you’ve had such a terrible migraine lately. As far the the exclamations are concerned, I use plenty verbal ones when I’m in pain. Also, I agree that “exclamation” is a more appropriate term than “period” for the loveliness some of us get. You are too funny!

I know how frustrating it is for me to be sick… and know why I’m sick. I can only imagine that being sick and not having the diagnoses that apply would make it even more frustrating. I’m sorry. I agree that often minimizing/reducing severity of the symptoms is something to hope for since, for many chronic illnesses, eliminating them totally can be impossible or near-impossible to do.

Dorian, you boggle my mind at how amazingly well you cope with a very difficult situation. I am constantly impressed with how well you cope in a particularly tricky spot. I hope you get health insurance ASAP! I am sending positive energy your way!!

Jeanne

P.S. You have the best quotes! Your positive attitude is a role model for other patients. You inspire me!!!

Thank you!

I just visited your blog. I hope your surgery recovery goes really well!

Jeanne

P.S. Hermione for my daughter, Harry Potter for me, and Professor McGonagall for Hubby. Yes, you heard me right. We decided with my short, dark hair I should be Harry. Haha. So he gets to be Professor McGonagall. We’re practicing our accents.

PS: What Harry Potter characters are you going as for Halloween?
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I would take a physical fall any day to what fibromyalgia has been doing to me lately. I feel like I got hit by a Mack truck, a train, a bus, a few cars, and some Harleys for good measure. Every cell and molecule of my body hurts. My skin hurts. My hair hurts. It really is out of control lately. I am not whining or complaining… simply reporting the facts. Right now, the facts are not pretty. My interstitial cystitis isn’t being very well behaved either. I know endo will be hitting me next. So I am just trying to take it easy. (THIS is a bit humorous since I couldn’t operate on full steam if I wanted to). So it’s not as if I’m choosing to take it easy.

Thank you so much for stopping by with your love and hugs and sweetness. It couldn’t have come at a better time. You are awesome!!

Jeanne
xoxoxoxoxo
xoxoxoxoxo

And passing thru with a wave of love and hugs for you today because you are very special to me. And a favorite friend of mine

xoxooxo
xoxoxo
xoxoxo
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(|_|*cheers*|_|)
“I am responsible. Although I may not be able to prevent the worst from happening, I am responsible for my attitude toward the inevitable misfortunes that darken life.” ~ Walter Anderson
Dorian aka coffeesister |_|)´s last blog ..30 Things About My Invisible Illness You May Not Know (for Invisible Illness Awareness Week)

Welcome! Thank you for your kind words. Well, it has taken me longer than a year to write it all… So, it may take a bit to read the parts you want to read.

My endo symptoms started when I was 13. I have since been diagnosed with numerous other conditions (some correlated to endo… like fibro and IC). So, I have been chronically ill for 27 years. (Many of the diagnoses took years and multiple docs before finally getting the correct diagnosis). It is certainly challenging and can be stressful/difficult to be chronically ill.

However, I have learned there can be hidden blessings too. I have a different perspective now. I prioritize things differently. I appreciate things that I might have taken for granted before. I have been able to meet some wonderful, caring, thoughtful, supportive people! I have a new respect for the importance of gratitude. So I try to focus on the positive as best I can… regardless of my illnesses.

Aren’t kidney stones fun? I’ve had 11. Some passed but twice they determined (via IVP dye x-ray and/or KUB ultrasound) that there were stones too large to pass. So I had ESWL (lithotripsy) done twice. That’s where they break up the stones with sound waves. This avoids having an incision to remove them. My first one was done with a general anesthesia and my second one was done with a spinal. That machine is LOUD. Anyway, I’m sorry to hear that your husband was diagnosed with fibro recently when you just got diagnosed with endo. It’s great that you were persistent in getting a correct diagnosis. It is so important for patients to advocate for themselves in the current “system”. I hope his claim with the VA goes smoothly! Yes, he needs to be heard. Good for you (both) for taking the necessary steps to get to the bottom of things and for filing the claim. Fibromyalgia can really be debilitating.

I’m so sorry you two have had such a rough 7+ years! I hope that now that you both have been diagnosed, it’ll make it easier to move forward with appropriate treatment!

I’ll talk with you soon.

Best wishes,

Jeanne

In addition to my issue with kidney stones and current diagnosis of endo, my husband was recently diagnosed with fibro. (Yes, I am only 26 and he 27) Long story short, he’s had the symptoms a long time, was in the military, has had every diagnostic/diagnosis you can imagine, with no correct answers. Knowing he never had the right answer we have been persistent in getting a correct diagnosis. We basically did our own research and everything lined up with fibro. In addition, he now trying to file a claim with the VA proving he does have fibro and was misdiagnosed 7+ years ago. 7+ years of hell…as you well know so many of the symptoms affect every part of your life. As you can imagine it will be a long struggle. But he needs to be heard.
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Thank you. I wish I could tell you I’ve had any improvement at all in the fibro arena but I’m actually doing worse. The muscles aches are as bad as I remember them. I have been spoiled, fibro-wise lately (until now). My fibro hurts year-round… but NOT like this!

It is what it is. I know this is just what happens to me in a flare-up and the change of weather/seasons is no coincidence to the flaring-up.

I am thinking of YOU and just sent you an email.

Take care!

Jeanne