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Fibro Fall

This is not going to be a very detailed post because I am simply too tired and sore to write what I wish I could write.

For several days now, I have not been feeling well. Since I have so many illnesses and since some of them have overlapping symptoms, it took me a few days to realize (or maybe accept?) what is going on. I figured it out yesterday. I am now in a fibromyalgia flare-up.

Since I have been feeling really lousy due to my period, I initially dismissed the profound fatigue I have been having as period-related. It’s true that during my period I have times where my body just shuts down and taking a nap is not optional. However, I now know that the fatigue I have been experiencing was from more than just the endometriosis.

It’s official. My fibromyalgia is saying, “hi, I’m back”! Mind you, my fibro never completely takes a hike. It’s with me year-round. However, my fibro is very definitely affected by weather changes.

Fall is my favorite season. I love watching the leaves turn colors. (I took some pictures this weekend — from a 4-seater airplane — of some trees starting to change. Look for them in upcoming posts). I love the sunny, crisp, cool days where taking a breath of fresh air just feels awesome. I am determined NOT to let fibromyalgia take fall away from me as my favorite season. So, I will use the coping mechanisms and tools I have found over the years to deal with my fibro. (Please see previous fibro posts for more details as I am much too tired to elaborate).

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The bottom line is I hurt from head to toe. Every muscle in my body is screaming in pain. It hurts to sit. It hurts to walk. It hurts to stand. It even hurts to lie down. Hmm. I seem to have run out of options, haven’t I?

Every cell in my body and every molecule in my body seems to be screaming out in pain… in a loud chorus that is impossible to ignore.

Anyway, I hope this is not a sign of things to come and that this fibro flare-up will be short-lived. I will try not to think about the fact that every year up until now (since I got fibro) this “fall flare-up” has slid right into winter. So, realistically, I know this could be the deal until about March. Let’s hope not. It is what it is. I’m not going to get all worked up about it.

One last note… Speaking of the word “fall”, I did just that today. I fell onto the hardwood floor. Hard. (My legs were both numb – not related to fibro – and, to make a long story short, both completely gave out on me when I attempted to stand up). This fall did not help my all-body pain. Pre-fall I had head-to-toe pain, skin pain, pain where my hair actually hurts, etc. Now it’s all that plus my ankle hurts from when I fell and it twisted a bit.

So that’s where things are at now. If you are one of the many people who have sent me messages on twitter that I have not yet responded to, I apologize for the backlog and will reply as soon as I am able.

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This post was written by Jeanne at http://chronichealing.com. Copyright © Jeanne — chronichealing.com. All rights reserved.


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Reading: Fibro Fall

19 comments

1 JNo Gravatar { 09.23.09 at 11:55 am }

I’m so sorry that you are having such a rough time. :( And I’m sorry to hear about your fall! I really hope you feel better soon!

2 LanaNo Gravatar { 09.23.09 at 12:35 pm }

I am sorry to hear that you are not feeling well. For some reason, this is the time of the year where my symptoms are in full force too. I hope you are feeling better from the fall as well. I have to be more careful when my symptoms are in full force too because I get extra clumsy. I am so feeling with you right now. I got teary-eyed reading your post. When my flare-up start, I get all emotional and depressed as well. I keep reminding myself that the last thing I need in addition to my symptoms is for my blood pressure to shoot up. I remind myself that my children need me, so all I can tell you is to remember what matters most, rest, and try not to feel sorry for yourself. From experince, I can tell you that all three are not easy.
.-= Lana´s last blog ..Wordless Wednesday: Tranquility – If Only =-.

3 AlyssaNo Gravatar { 09.23.09 at 1:00 pm }

Ugh! I’m so sorry it decided to come back and remind you. My IC did the same thing this month. I wish these things would just stay away!

Hope you can feel better really soon & get to enjoy your favorite season. It’s mine, too!
.-= Alyssa´s last blog ..I’m too sexy for my…blog. =-.

4 JoNo Gravatar { 09.23.09 at 4:02 pm }

Ouch! So sorry to hear about the flare. I also have FMS but not too badly. I do know, however, that awful place where everything hurts. And, yes, it is weather related.

So sorry you had a fall too. Take care of yourself and I hope it all eases up a bit soon.
.-= Jo´s last blog ..Change afoot =-.

5 JasmineNo Gravatar { 09.23.09 at 4:56 pm }

I’m so sorry you’re experiencing such a painful flare-up, and that you fell. Take care as best you can. Hugs!
.-= Jasmine´s last blog ..Haiku =-.

6 Stacy AdkinsNo Gravatar { 09.23.09 at 8:13 pm }

I’m sorry! I’ll be thinking of you.

7 JeanneNo Gravatar { 09.23.09 at 11:13 pm }

J,

Thank you very much for your constant support. I really appreciate all of the retweets you’ve done on my twitter messages too! Thank you!! P.S. I visited your blog earlier tonight. :)

~~~

Lana,

Thank you for your thoughtful comments. It’s interesting that you brought up the “clumsy” factor because I just came across a tweet today on twitter regarding fibromyalgia being tied to neurological issues in some research that’s been done. I retweeted the link out today. It had been a tweet from an organization called “For Grace” which advocates for chronic pain patients (particularly women with chronic pain, for how chronic pain is under-treated in women as opposed to men, etc.) Anyway, I tried to dig the link up but it wasn’t loading just now (even though it worked fine earlier). So if you check out the twitter account @forgrace, you should be able to find a tweet linking fibro with neurological issues. Yes, I need to be really careful between dizziness, numb legs, and various other factors that could result in a fall.

I’m sorry you got teary-eyed reading my post. :( It is very common to feel emotional and depressed with chronic illnesses/pain. I too have to be mindful of my blood pressure. (I wrote a whole series of posts about my blood pressure spiking and plummeting, recently, resulting in various symptoms (including feeling faint all day every day for awhile there). So I hear you. Yes, it helps me to do things for my daughter that I might otherwise not do (so long as I don’t push myself too far and make myself even sicker). You are right. Priorities become very important. Rest becomes essential. Also, I try very, very hard not to attend any “pity parties”. Like any chronically ill patient, I have my moments of utter frustration. However, I work hard at staying positive and finding the purpose in all of this. I like to think that sharing my experiences (having been chronically ill for 27 of my 40 years) is helping others. That helps me keep going and feeling productive.

You’re right that it’s not easy but I like to look at each challenge as an opportunity rather than a difficulty. I try to turn negatives into positives whenever I can. :)

Thanks for stopping by with such kind words!

~~~

Alyssa,

Thank you! I had an IC flare-up right before this (see post before this one) and I am feeling much better IC-wise after doing a bladder instillation. Thank goodness! I’m sorry you are struggling with interstitial cystitis. It can be brutal. Yes, the fibro has reared it’s ugly head. I wouldn’t mind these illnesses staying away either but I have a feeling that may be wishful thinking. :)

Thank you so much. Yes, fall “rocks” and I just love, love, love the foliage and the crisp, fresh air in the fall!

~~~

Jo,

Thank you for the kind comments. Yes, when “everything hurts” it’s not fun. Yes, weather is a huge factor for my fibro.

Yes, the (physical) fall was the icing on the cake. Let’s just say it didn’t help matters any. It seems to be ankle and foot rather than just ankle like I initially thought. It’s not horrible. It just happens to be the same ankle I sprained a few years back. So it’s probably more sensitive from that.

Thank you!

~~~

Jasmine,

Thank you. Fibro isn’t fun and sometimes I get spoiled with times that hurt less… only to get “paybacks” later. This is my payback time, I’m afraid. It could have been worse (the fall). Hugs back to you!

~~~

Stacy,

Thank you so much for thinking of me and taking the time to comment when I know you are very, very busy right now. (I’ll need to get caught up with you offline). I appreciate you stopping by and I look forward to talking with you soon.

~~~

Thanks everyone for all of the thoughtful comments!!!

Jeanne

8 YayaNo Gravatar { 09.25.09 at 2:41 pm }

:(

I’ve been thinking of you. I hope you feel better soon. :(
.-= Yaya´s last blog ..VGNO Heart-Shaped Rock Project =-.

9 JeanneNo Gravatar { 09.25.09 at 5:52 pm }

Alicia,

Thank you. I wish I could tell you I’ve had any improvement at all in the fibro arena but I’m actually doing worse. The muscles aches are as bad as I remember them. I have been spoiled, fibro-wise lately (until now). My fibro hurts year-round… but NOT like this!

It is what it is. I know this is just what happens to me in a flare-up and the change of weather/seasons is no coincidence to the flaring-up.

I am thinking of YOU and just sent you an email.

Take care! :)

Jeanne

10 heidiNo Gravatar { 09.30.09 at 6:54 am }

Hello Jeanne, I have a feeling it’s going to take days, if not weeks for me to read through your blog. Each post I find more interesting.

In addition to my issue with kidney stones and current diagnosis of endo, my husband was recently diagnosed with fibro. (Yes, I am only 26 and he 27) Long story short, he’s had the symptoms a long time, was in the military, has had every diagnostic/diagnosis you can imagine, with no correct answers. Knowing he never had the right answer we have been persistent in getting a correct diagnosis. We basically did our own research and everything lined up with fibro. In addition, he now trying to file a claim with the VA proving he does have fibro and was misdiagnosed 7+ years ago. 7+ years of hell…as you well know so many of the symptoms affect every part of your life. As you can imagine it will be a long struggle. But he needs to be heard.
.-= heidi´s last blog ..Compromise =-.

11 JeanneNo Gravatar { 09.30.09 at 11:14 am }

Heidi,

Welcome! Thank you for your kind words. Well, it has taken me longer than a year to write it all… So, it may take a bit to read the parts you want to read. :)

My endo symptoms started when I was 13. I have since been diagnosed with numerous other conditions (some correlated to endo… like fibro and IC). So, I have been chronically ill for 27 years. (Many of the diagnoses took years and multiple docs before finally getting the correct diagnosis). It is certainly challenging and can be stressful/difficult to be chronically ill.

However, I have learned there can be hidden blessings too. I have a different perspective now. I prioritize things differently. I appreciate things that I might have taken for granted before. I have been able to meet some wonderful, caring, thoughtful, supportive people! I have a new respect for the importance of gratitude. So I try to focus on the positive as best I can… regardless of my illnesses.

Aren’t kidney stones fun? I’ve had 11. Some passed but twice they determined (via IVP dye x-ray and/or KUB ultrasound) that there were stones too large to pass. So I had ESWL (lithotripsy) done twice. That’s where they break up the stones with sound waves. This avoids having an incision to remove them. My first one was done with a general anesthesia and my second one was done with a spinal. That machine is LOUD. Anyway, I’m sorry to hear that your husband was diagnosed with fibro recently when you just got diagnosed with endo. :( It’s great that you were persistent in getting a correct diagnosis. It is so important for patients to advocate for themselves in the current “system”. I hope his claim with the VA goes smoothly! Yes, he needs to be heard. Good for you (both) for taking the necessary steps to get to the bottom of things and for filing the claim. Fibromyalgia can really be debilitating.

I’m so sorry you two have had such a rough 7+ years! I hope that now that you both have been diagnosed, it’ll make it easier to move forward with appropriate treatment!

I’ll talk with you soon.

Best wishes,

Jeanne

12 Dorian aka coffeesister |_|)No Gravatar { 09.30.09 at 2:35 pm }

As tricky as cold — much less damp — weather is, barometric change is indeed the killer. Thus, it’s not so much Fall itself but falling into Fall. :wink: However, it really helps if one doesn’t take the “falling” literally! What really sucks tho’ is when one condition flares right after another (or right before, as the case may be). Not only can it be hard to tell which is which but I always wonder if one’s triggering the other. I’m just recovering from a particularly bad migraine bout only to be starting my period (which, of course, should be called an exclamation)! So, did the impending exclamation (enter favorite one here) impact the migraine? Did the building symptoms of one affect the other?! Not that knowing would help any more than having a diagnosis at this point but I like to think (read as have to hope) more & more understanding will lead to improved mitigation of our illnesses. Inasmuch as there’s only so much that can be done, especially w/out medication or treatment, I do think we have a better chance of minimizing symptoms than avoiding them. At least, with that focus, I’m less likely to fall (no pun intended) prey to tho’ts that I did anything wrong or could have avoided any given effects. :shock:

(|_|*cheers*|_|)
“I am responsible. Although I may not be able to prevent the worst from happening, I am responsible for my attitude toward the inevitable misfortunes that darken life.” ~ Walter Anderson
.-= Dorian aka coffeesister |_|)´s last blog ..30 Things About My Invisible Illness You May Not Know (for Invisible Illness Awareness Week) =-.

13 Jannie FunsterNo Gravatar { 10.02.09 at 11:06 am }

Really sorry to hear about your fall onto the floor. That sucks.

And passing thru with a wave of love and hugs for you today because you are very special to me. And a favorite friend of mine

xoxooxo
xoxoxo
xoxoxo
.-= Jannie Funster´s last blog ..Hey, How ‘Bout A Show Tune! =-.

14 JeanneNo Gravatar { 10.02.09 at 11:18 am }

Jannie,

I would take a physical fall any day to what fibromyalgia has been doing to me lately. I feel like I got hit by a Mack truck, a train, a bus, a few cars, and some Harleys for good measure. Every cell and molecule of my body hurts. My skin hurts. My hair hurts. It really is out of control lately. I am not whining or complaining… simply reporting the facts. Right now, the facts are not pretty. My interstitial cystitis isn’t being very well behaved either. I know endo will be hitting me next. So I am just trying to take it easy. (THIS is a bit humorous since I couldn’t operate on full steam if I wanted to). So it’s not as if I’m choosing to take it easy.

Thank you so much for stopping by with your love and hugs and sweetness. It couldn’t have come at a better time. :) You are awesome!!

Jeanne
xoxoxoxoxo
xoxoxoxoxo

15 SonjaNo Gravatar { 10.02.09 at 11:22 am }

Sending hugs and thoughts your way!

PS: What Harry Potter characters are you going as for Halloween?
.-= Sonja´s last blog ..Home from Sinus Surgery! =-.

16 JeanneNo Gravatar { 10.02.09 at 9:18 pm }

Sonja,

Thank you!

I just visited your blog. I hope your surgery recovery goes really well!

Jeanne

P.S. Hermione for my daughter, Harry Potter for me, and Professor McGonagall for Hubby. Yes, you heard me right. We decided with my short, dark hair I should be Harry. Haha. So he gets to be Professor McGonagall. We’re practicing our accents. :)

17 JeanneNo Gravatar { 10.02.09 at 10:10 pm }

Dorian,

Yes, it’s amazing how much impact weather can have on pain, isn’t it? True, literally “falling” doesn’t help matters any. (I’ve had a couple of falls lately and they were decidedly not helpful). Yes, having multiple conditions that set each other off is never fun! :( You are right that it can be difficult, if not impossible, to weed out what’s what when many things are flaring at once. It’s like the “chicken or the egg” scenario. What triggered what? It can be incredibly frustrating. Not to mention painful.

To have two conditions flaring at once resulting in a double whammy (or more conditions flaring simultaneously to cause even worse)… it is very challenging. In endometriosis support groups over the years, I have met many, many women who have both migraines and endometriosis. Migraines can absolutely be triggered by hormonal changes.

I’m so sorry you’ve had such a terrible migraine lately. As far the the exclamations are concerned, I use plenty verbal ones when I’m in pain. Also, I agree that “exclamation” is a more appropriate term than “period” for the loveliness some of us get. :) You are too funny!

I know how frustrating it is for me to be sick… and know why I’m sick. I can only imagine that being sick and not having the diagnoses that apply would make it even more frustrating. I’m sorry. I agree that often minimizing/reducing severity of the symptoms is something to hope for since, for many chronic illnesses, eliminating them totally can be impossible or near-impossible to do.

Dorian, you boggle my mind at how amazingly well you cope with a very difficult situation. I am constantly impressed with how well you cope in a particularly tricky spot. I hope you get health insurance ASAP! I am sending positive energy your way!! :)

Jeanne

P.S. You have the best quotes! Your positive attitude is a role model for other patients. You inspire me!!!

18 Hurting and Healthcare — ChronicHealing.com { 10.05.09 at 2:06 pm }

[...] I have not blogged lately because I am hurting. I am in severe pain and my energy level is not good. I blogged previously about the fibromyalgia flare-up I am having in the post: Fibro Fall. [...]

19 Fibromyalgia Flattened — ChronicHealing.com { 09.27.10 at 10:24 pm }

[...] Fibromyalgia will not steal my love of fall from me. At the same time, as I wrote last year in Fibro Fall, I am fully aware that the change of seasons from summer to fall wreaks havoc on my body. It is [...]

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