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Endometriosis Awareness Month

Petition with GoPetition | Online Petitions

After evaluating several different ideas for kicking off Endometriosis Awareness Month, I decided to go with a simple post to start.

Therefore, I would like to refer readers to a recent post regarding endometriosis advocacy and the media because a number of endometriosis patients banded together, contacted a newspaper that had printed inaccurate information about endometriosis, and it really made a difference.

As explained in more detail in the following post, the newspaper in question printed a letter to the editor which corrected statements made in the original newspaper article (an original article that was, ironically, written by a gynecologist). I truly believe that one factor that may have helped the newspaper decide to print the correction was that the endometriosis awareness petition with nearly 500 signatures on it was sent to the editor of the newspaper. I believe, after many occasions in the past where such letter-writing campaigns were simply ignored by the media, that the petition you see linked from this very post may well have helped make it harder for the paper to dismiss our letters.

If you missed the post (or the two related posts that preceded it, which are linked from this one), here it is:

Endometriosis Advocacy and the Media

If you have already signed the petition to help spread endometriosis awareness and disseminate endometriosis facts in the media, thank you! Perhaps you have family or friends who would be willing to sign it as well?

If you have not yet signed the petition, please take a moment to do so. There is an optional field where you can leave a comment along with with your signature, if you so choose. There are many fields that are strictly optional. For example, if you do not wish to list your city, you may select the N/G or “not given” option for that field. Simply click on any of the royal blue petition logos in this post to sign. Signing the petition is a very quick, easy process.

You don’t even need a pen to sign this petition. If you’re reading this post, you’re just a click away from signing the online petition.

Anyone wishing to support the estimated 89 million women and girls worldwide who have endometriosis may sign this petition. Men and women, young and old… let’s work together to get as many signatures as possible on it.

The petition text reads as follows:

An estimated 89 MILLION women and girls worldwide have endometriosis! “This makes endometriosis more common than AIDS and more common than cancer“, as per Ohio State University Medical Center. (Source: The Ohio State University Medical Center website).

Yet for years it has remained largely “under-the-radar”. The general public has been largely unaware of it – or misunderstands just how very debilitating it can be. When endometriosis IS mentioned in the media, misleading statements may be made (causing confusion for patients and the public).

We have a duty to educate the public about this life-altering illness by spreading factual information… and by recognizing misinformation and taking steps to address that.

Endometriosis can only be diagnosed via a surgical procedure called a laparoscopy.

Endometriosis awareness is vital! It is equally vital that information disseminated about endometriosis be accurate! In spreading myths and misinformation, endometriosis patients are hurt rather than helped.

The purpose of this petition is endometriosis awareness. ANYONE who wishes to sign it may do so. Whether you are male or female, young or old… if you wish to show support for the 89 million women and girls living with endometriosis, we’d be honored if you’d sign this online petition. If you wish to do so, you may include a comment when you sign. Please spread the word about this petition to others!

* Please note that I do not endorse any organizations. Patients are encouraged to do thorough research before supporting any organization claiming to help women and girls who have endometriosis.

Thank you!

GoPetition

Please click above to access the petition.

Won’t you please join those of us who have already signed this petition or ask others to do the same? The more signatures we are able to gather, the better tool the petition becomes when we write in to various media outlets to make them aware of stories that contain inaccuracies. This petition is a tool for spreading endometriosis facts and pointing out endometriosis misinformation.

Since endometriosis has a long history of being portrayed in the media with extreme and persistent inaccuracy, it is vital for patients to speak up when they see such errors. Having a petition like this is very helpful because of the nearly 500 people who have signed it, many have left heart-wrenching comments that any newspaper editor or reporter would have to be touched by in some way.

Let’s keep using this petition the way we did recently with the newspaper mentioned in the link above. By speaking up together, we can make a difference in how endometriosis is portrayed in the media. This is vital for a condition so poorly understood and so riddled with myths and misinformation.

Thank you!

Petition with GoPetition | Online Petitions

This post was written by Jeanne at http://chronichealing.com. Copyright © Jeanne — chronichealing.com. All rights reserved.


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Reading: Endometriosis Awareness Month

8 comments

1 JeanneNo Gravatar { 03.02.10 at 2:27 pm }

All,

Wonderful news! Many people signed the petition yesterday on the very first day of Endometriosis Awareness Month 2010. We got our 500th signature at almost exactly the stroke of midnight EST!

In addition, several bloggers helped promote the petition. Susie Collins of The Canary Report plugged the petition both on her Facebook page (where it got a great reception and I met several endometriosis patients who have multiple chemical sensitivity like me) and the NING social network of The Canary Report.

Kelly Damron of the Twin Peas blog did a post about the petition and posted the blog badge for the petition on her blog.

Also, Heidi of the Furry Tails and Funny Tails blog wrote a post about the petition and posted the blog badge (see my badge here in the upper right sidebar).

Thank you so much to everyone who signed the petition and those who posted about it on their blogs and/or posted the blog badges. I really appreciate it and topping the 500 mark on the petition was a great way to start out Endometriosis Awareness Month!

Thanks!

Jeanne

2 JuliemarshallNo Gravatar { 03.03.10 at 1:36 pm }

Hi Jeanne

I am attending my first Endo meeting..which has just been set up in my area….Carnt wait!!!

Julie

3 JeanneNo Gravatar { 03.03.10 at 2:03 pm }

Julie,

That’s awesome!! I can’t begin to tell you how much I got out of attending monthly endometriosis support group meetings from 1992-2008. Yay!! 🙂

Jeanne

4 Amy KielNo Gravatar { 03.05.10 at 2:10 am }

Hi Jeanne,
I was searching for information about Endometriosis Awareness Month and found my way to your blog. I was delighted to see a familiar face and name after scanning through this post!
You may remember me from twitter as @Abeeliever. I tried to unfollow/block the correct person at the time that everything went haywire. I am hoping that was all resolved for you there.
At any rate, I am really happy to be in contact with you again. I am going to be writing up a blog post (on a website for health activists that I work for called WEGO Health) about Endometriosis Awareness Month this week. I recently wrote a post about the topic of endometriosis and since have become aware of this event. I will link to your site and petition in my post.
I hope that you are doing great!
Amy
.-= Amy Kiel´s last blog ..From the past… =-.

5 JeanneNo Gravatar { 03.05.10 at 2:42 am }

Amy,

How nice to hear from you! Yes, of course I remember you.

I know that the Twitter impostor situation you referred to got confusing. Identity theft always does. If you haven’t seen my “Why I Left Twitter” link (left sidebar under navigation), it fleshes out some of the details about what happened. It sure was a mess! I appreciate your efforts.

I am happy to be in contact with you again too. If you have any questions as you’re working on the write-up on endometriosis, please don’t hesitate to let me know. I have lived with endometriosis for 28 years. While I’m certainly no expert, I am well familiar with the startling number of myths out there about endometriosis. When I see endometriosis misinformation disseminated, it’s like a kick in the gut for me. I would be happy to connect with you if you want to bounce it off anyone! There are so many ways that endometriosis misinformation can be spread. It is so important for coverage of endometriosis to be accurate.

Yesterday, I learned of a very tragic news article that just gave me chills. I know of the amazing advocacy work you do regarding suicide prevention. I will share the news story here so that you can see what I am referring to. I should forewarn you that the story is upsetting. However, it is an important story that should and must be told:

So no one else will suffer

This story was so heart-wrenching. I just sobbed and sobbed when I read it yesterday.

Today, I spent about 2 hours on the phone with an endometriosis patient from my local endometriosis support group. Last week, her cousin went in for a hysterectomy to try to help her manage her endometriosis symptoms. She developed a blood clot, went into a coma, and died. She was in her early 40s. 🙁

When I hear these stories, it makes me more determined than ever to work my hardest on the endometriosis cause. I don’t know if you took a look at the endo awareness petition but we are using it as a tool for not just targeting the media but for other awareness efforts as well.

I appreciate the linkback you mentioned and I certainly appreciate your assistance in promoting the petition too. Feel free to take the “retweet this” option at the end of this post (since I assume you are still on Twitter) and/or Stumble this post. This will help maximize attention to this devastating disease.

If you wish to post a blog badge about the endo petition, I would be happy to provide you with embed code for it. The badge looks like the blue one in the top right corner of my blog. We had 510 signatures the last I checked.

ANYONE who supports the endometriosis awareness cause can sign the petition. Male, female, young, old… anyone who wishes to support our efforts is greatly appreciated on the petition!

I am hanging in there. Things are pretty darn hectic, as you might imagine, with Endometriosis Awareness Month. Thus, here I sit moderating blog comments at 1:34 am. I am NOT complaining. The more comments, the better.

BRING IT ON! 😉

I just have to pace myself is all.

I hope you’re doing well! It has been a tricky winter fibromyalgia-wise. I’m happy spring will be here soon(ish).

Thanks so much for the comment, the info, the future linkback & petition promotion, and any tweeting or Stumbling you might do to help promote this important cause. *wink* 😉

Take care!

Jeanne

P.S. If you work with WEGOhealth, you may wish to search for “Endochick”. I know she has posted on WEGOhealth. (She writes an endometriosis blog).

6 Amy KielNo Gravatar { 03.06.10 at 11:58 pm }

Hi Jeanne,
Here is the link to my post on WEGO Health where I linked to your site and the petition! http://bit.ly/9ywi3A

Hoping to help bring more awareness to endometriosis!
Amy =)
.-= Amy Kiel´s last blog ..From the past… =-.

7 JeanneNo Gravatar { 03.09.10 at 2:41 am }

Amy,

Please note: A word of caution to infertile readers… there is a section in Amy’s endometriosis article called “>A Closer Look At Endometriosis” that contains a hyperlink to the WEGOhealth page of AnyaJB and this page contains pictures that might be triggering for those who are infertile or who have experienced pregnancy loss.

Amy, thank you so much for spreading awareness about endometriosis!! Thank you too for spreading the word about our endometriosis petition!! The more signatures we can get, the better! ANYONE who supports endometriosis patients can sign. The more places we get it posted, the better. So, thanks! I really appreciate your support!

As far as bringing more awareness to endometriosis, you already have!

Jeanne 🙂

8 When Rest Is Just Not Optional — ChronicHealing.com { 05.21.10 at 7:13 pm }

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