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Endometriosis and Suicide: Awareness

Recently, I posted on the topic of “endometriosis and suicide”. I did so following an alarming number of visits to my blog by people who had used search strings such as “endometriosis and suicide”. The post I published in December was a repost of one I had done awhile back about the National Suicide Prevention Hotline. Since I have blogged extensively about endometriosis and since I have also mentioned suicide on my blog, these search strings regarding both endometriosis and suicide were resulting in people reaching my blog.

I discussed my concern with Endochick about the regular visits my blog is getting on the topics of endometriosis and suicide (tied together in the same search string). She indicated that she too is getting regular blog traffic like this. We were both very concerned about this.

Since I published my post (National Suicide Prevention Lifeline), she published her own post on this topic: Endometriosis & Suicide: a post for awareness.

Since these two posts were published, I have received even more blog traffic than before on search strings such as “endometriosis and suicide”.

I feel compelled to republish this information:

“The National Suicide Prevention Lifeline is a 24-hour, toll-free suicide prevention service available to anyone in suicidal crisis. If you need help, please dial 1-800-273-TALK (8255). You will be routed to the closest possible crisis center in your area. With more than 130 crisis centers across the country, our mission is to provide immediate assistance to anyone seeking mental health services. Call for yourself, or someone you care about. Your call is free and confidential.”

If you are having suicidal thoughts, it is imperative that you seek professional help. There are trained professionals available… such as those at the free hotline above. Please, if you are having suicidal thoughts… call the hotline above and speak to the trained staff.

It saddens me that there are so many people suffering so much with this incredibly devastating illness. Having lived with endometriosis for 28 years, I have found many helpful resources that help me cope with my chronic illnesses (endometriosis being only one of them). Help is available. Finding the right practitioners, treatment, and/or support to deal with chronic illnesses such as endometriosis may not always be simple but it can be achieved.

Please… if you are feeling suicidal, call the suicide hotline. The trained professionals there will help you, free of charge.

If you are reading this and experiencing suicidal thoughts, know that there are many people who care very much. Please call for help if you are experiencing these thoughts. Help is available.


This post was written by Jeanne at http://chronichealing.com. Copyright © Jeanne — chronichealing.com. All rights reserved.


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Reading: Endometriosis and Suicide: Awareness

17 comments

1 JulieNo Gravatar { 01.11.10 at 3:44 pm }

jeanne

I totally agree…anyone who feels like this should ask for help straight away…they may not have the support at home other people have so just keep their feelings buried away.I am soo grateful to have such a supportive family as have had 6 ops for endo and a hysterectomy so when i feel low i know i have always someone to turn.
please please anyone reading this take action

Julie x

2 JeanneNo Gravatar { 01.11.10 at 3:54 pm }

Julie,

It is true that getting help is so important. You’re right that burying feelings is unhealthy. I am very glad you have a supportive family. As you noted, not everyone is fortunate enough to have such support from family. I agree with you that taking action to pursue help from trained professionals is very important for anyone experiencing suicidal thoughts.

Thank you for stopping by and sharing your feedback. Have a wonderful day!

Jeanne
xo

3 EndochickNo Gravatar { 01.11.10 at 11:37 pm }

As we’ve discussed, I found the amount of traffic those search terms drove to my blog alarming. I sincerely hope our posts can help encourage people towards finding help.
.-= Endochick´s last blog ..Endometriosis & Suicide: a post for awareness =-.

4 JeanneNo Gravatar { 01.12.10 at 12:22 am }

Endochick,

Yes, it truly is alarming. I hope so too.

Jeanne

5 Jannie FunsterNo Gravatar { 01.12.10 at 12:54 pm }

This is a really nice post to do, Jeanne, thanks. You may be saving precious lives with this.
.-= Jannie Funster´s last blog ..Updating Her Nursery Decor, Chapter 2 =-.

6 PoobaNo Gravatar { 01.12.10 at 6:26 pm }

Wow, what a topic! That is concerning how many hits you are getting with based on endometriosis and suicide! What a great thing to do to help others who might be having this issue. I hope those people out there take your advice and get help!
.-= Pooba´s last blog ..Christmas Is No Longer In The Air =-.

7 JeanneNo Gravatar { 01.13.10 at 2:33 am }

Jannie,

Thanks. I don’t know about that but I felt a duty to do another post – in light of the traffic I have been getting on this subject.

Jeanne

8 JeanneNo Gravatar { 01.13.10 at 2:36 am }

Pooba,

It makes me sad when I see the traffic hit my blog. It concerns me when I discover that other endometriosis bloggers are seeing similar traffic. I just wanted to try to get that hotline out there again because the traffic on this subject keeps coming.

Jeanne

9 In Memory Of An Endometriosis Patient — ChronicHealing.com { 03.08.10 at 12:25 am }

[...] Endometriosis and Suicide: Awareness [...]

10 Endometriosis And Suicide — ChronicHealing.com { 06.18.10 at 2:28 pm }

[...] have written about this topic previously here: Endometriosis and Suicide: Awareness and National Suicide Prevention [...]

11 World Suicide Prevention Day: September 10, 2011 — ChronicHealing.com { 09.10.11 at 1:42 am }

[...] Below are some links to previous posts I have written on this topic: About Suicide Prevention Endometriosis Awareness Month: Suicide Prevention National Survivors of Suicide Day World Suicide Prevention Day September 10, 2010 Endometriosis And Suicide In Memory Of An Endometriosis Patient Endometriosis and Suicide: Awareness [...]

12 BopNo Gravatar { 01.29.12 at 8:14 pm }

I’ve thought about wishing I had the guts to for years because of the pain with endo. Some times in my life were harder than others. Sadly, due to the affect it’s most recently had on my life, though I’m loved, have now got diagnosis and am waiting for treatment, I still suffer whilst waiting for surgery and dealing with having lost my job etc. I live on my own, as don’t want to move in with anyone until it’s more manageable, but the pain is insanely torturous and even with good stuff in my life, makes me feel I just want it to be over. I’ve started researching myself, because I want to help others, I struggled for years, but if I hadn’t finally been diagnosed, I wouldn’t want to carry on. I suffered a back injury, am 35, have it so bad now, even in my spine. I was rejected four times regarding help from doctors, it’s enough to drive anyone to the brink. I’m planning to get on UK radio to talk about it. Love and blessings to all.

13 JeanneNo Gravatar { 01.30.12 at 4:15 pm }

Welcome Bop!

I am so sorry that you have struggled so much. That’s great that you have gotten a diagnosis. Obviously, it’s difficult to get appropriate treatment for something when you don’t know know what it is that you have. So, your diagnosis was endometriosis then? I’m sorry you lost your job because you’re sick. I’ve been through that and it is very stressful to say the least. I would encourage you to please check out a post I wrote that contains information that might help you, should you ever need it:

Please click here…

I think it’s important to have such resources handy just in case they are ever needed. In light of the fact that you have had thoughts of suicide in the past, I think it would be a good idea to keep such information onhand. It can’t hurt.

As far as the fact that you are researching yourself about your symptoms, that is great! I know that, for me, doing my own research has been very empowering. Knowledge is power! Good for you!

I understand you said that you injured your back but you also said something is “even in your spine”. Do you mean that you have endometriosis in your spine in addition to having injured your back? I just wanted to clarify to make sure I’m understanding correctly.

I’m really sorry that you were rejected for help and I know how difficult that can be! When I encounter a doctor like that, I try to remind myself that I wouldn’t want to be under the care of a doctor who thinks it’s acceptable to deny me needed help. I know that doesn’t make it any easier to deal with such infuriating, frustrating, draining experiences. I just try to look at it as the process that I sometimes have to go through to find the right type of specialist (or right kind of attitude!) in a doctor. That doesn’t make it right that those things to happen, obviously.

Best of luck to you in spreading awareness about chronic pain to make others feel less alone. Helping others has an interesting way of helping the patients who are reaching out to others to feel better themselves!

Love and blessings to you too!

Jeanne

14 LeeSummer Sondergard-WilliamsNo Gravatar { 10.22.12 at 6:25 pm }

Wow!! I’m not the only one?? I have severe stage iv Endometriosis. For the first 10 years I went to so many doctors trying to get help for the pain. I just wanted the pain to stop. I had no one to talk to. Every other woman I spoke with told me to take ibuprofen. Saying it was just normal PMS. I couldn’t walk let alone stand up. And so many doctors turning me away without doing anything. I found a Dr finally after 10 years who knew about Endometriosis. She was the only one to seriously explain it to me and perform the laparoscopy where I was first diagnosed. Here I am so many years and operations later. Still in pain. Weak, dizzy, vomiting. I know I’m stronger than most (partly because of this disease). But there are so many times where I can’t see anyway of going on. I think “what’s the point” and “I would be doing myself and my family a huge favor by ending my life”. I don’t have anyone to talk to who can truly understand what I’m going thru. They only see what I’m going thru and it’s not the same. Not that I would ever wish this on anyone. But to have someone to talk to who is in my situation would be a great help. Here I am now sicker than sick almost daily. Weak, dizzy, vomiting. And such intense pain!! My current ObGyn where I now live does not seem to understand what I’m going thru. I feel like I’m at the end of the rope and there’s not enough of it to hold onto.

15 JeanneNo Gravatar { 10.22.12 at 8:41 pm }

Welcome LeeSummer!

You are definitely not the only one. If you look through the comments on this blog post and others on my blog, you’ll see that many people have had similar experiences.

The long search for a name for the illness is a common denominator amongst most endometriosis patients I encounter. Sadly, 10 years is a common time frame. It’s just not right. It’s also, sadly, very common for women to struggle to find someone to talk with about it since few people who don’t have endometriosis really have a decent understanding of it.

Don’t get me started about how many people out there think “just taking ibuprofen” is an appropriate response to an endometriosis patient who is deal with unrelenting pain. People who chalk it up to “normal PMS” should refrain from diagnosing people without a medical license.

I’m sorry for your pain and that doctors turned you away. Obviously there’s much room for improvement in how some doctors treat women who have endometriosis. I’m glad you were able to finally get a proper diagnosis. I know it may seem a small consolation now when you’re having such symptoms. However, I think there is some value in knowing what we have by getting an accurate diagnosis (rather than a misdiagnosis or no diagnosis at all). At least it beats battling against the unknown, I think. I know it may not seem to matter when the pain is bad and there are no doctors in sight who can adequately manage the pain.

As far as having thoughts of suicide is concerned, please see the link in comment 13 above (a reply I posted on this same thread) for information about suicide prevention and suicide first aid resources. While you may not have anyone who lives near you who understands your situation, there are many, many people online who do.

If you’re looking to talk with fellow patients about your day to day situation and symptoms, there are lots of people online who can relate.

If you need someone to talk with about thoughts of suicide, those suicide prevention lifeline numbers have people who are trained to talk to people having thoughts of suicide and direct them to appropriate resources, as needed.

I’m sorry your current doctor isn’t understanding your situation and/or able to manage the pain. I’m really sorry you feel like you’re at the end of your rope. Again, there are lots of patients online to talk with and there are trained professionals available 24 hours a day on the suicide prevention lifelines. Please check out that link marked “please click here” for more information on the latter. As far as finding endometriosis patients online, there are many places to look (blogs like this, Facebook, Twitter, etc.)

Please let me know if you have any questions and I’ll try to give you more specific information if I can. Please keep in touch.

Take care,

Jeanne

16 LeeSummer Sondergard-WilliamsNo Gravatar { 10.24.12 at 12:44 am }

Editor’s Note: I make it a habit on this blog of substituting generic names (or other descriptors, as needed) for brand names of medications. There are various reasons for this… the main one being that I don’t wish to advertise (pro or con) for medications. Please note any substitutions below were made for this reason primarily. Also, the name of a well-known medical facility has been edited out because, again, I generally make an effort not to advertise for/endorse any specific health care practitioner or facility (for legal and other reasons). Thank you for your understanding.
~ Jeanne

——-

Jeanne,

Thank you! And thank you for your response. It has been about 20 years all together. The first 10 years were very frustrating to say the least! I’ve had a few laparoscopies. And I’m unable to see the same doctors as my husband’s work has had us moving around a lot. The ObGyn I was seeing here doesn’t seem very familiar with Endometriosis. Tomorrow I have an appointment with a Gynecologic Oncologist. My fingers are crossed. I haven’t seen this doctor yet. I was very grateful for my last doctors in Arizona. I was seen at the [Editor's Note: a well-known medical facility] where they treated me for deep invasive stage iv Endometriosis. I now live in North Carolina and am hoping that I can find a doctor who is familiar with my situation. We’ll see how it goes tomorrow. It seems to be like a roll of the dice. Will this doctor be able to treat me or just try to offer [Editor's note: a GnRH agonist drug] or birth control? I’ve heard bad things about [Editor's note: a GnRH agonist drug] and the bc pills didn’t help me in the past. And as this disease progresses I’m always worried about what they will find each time I have the laparoscopy. I’ve had bowel and bladder problems with this for about 5 years now. It is a very stressful ordeal that last years. Decades even. And I hope that someone somewhere will finally come up with a cure as so many women are suffering and traumatized by Endometriosis. Thanks again Jeanne and I’m so glad I found your blog!!

17 JeanneNo Gravatar { 10.24.12 at 2:03 am }

LeeSummer:

Thank you for your blog comment/feedback. It’s my pleasure!

Having lived with endometriosis for 30 years now (the first 10 being really bad not knowing what was happening!), I can relate to the challenges of living with endo for decades. I’ve had 7 surgeries (6 laparoscopies, 1 laparotomy/major surgery) because of endo. I did what I felt I had to do at the time but looking back in retrospect, I wish I had known then what I know now. Having so many surgeries did a number on my poor body.

For example, I wish I had tried acupuncture much sooner. It has helped me so much.

Best of luck at tomorrow’s appointment. Hopefully the gynecologic oncologist will be familiar with endo. (I’ve known some women over the years who were operated on by such specialists when there was a question as to whether growths on the ovaries were endometriosis or something else. Even though they were previously (surgically) verified endo patients, the only way to know for sure what the large growths on their ovaries were was to operate – and because their endo was very severe/aggressive plus because it grew quickly from one ultrasound scan to the next, they met with such a specialist prior to surgery and had that doctor perform the surgery.

I hope you can get some relief ASAP. The Traditional Western Medicine options (drugs and surgery) just aren’t enough for many women with endo I’ve met. This (“not enough”) was the case for me as well. TWM docs will seldom refer patients to “alternative medicine” options. Either they don’t believe in them, they aren’t aware of them at all, they aren’t well-informed about them, or even all of the above.

I’ve had bowel and bladder problems since 1992. So I understand how frustrating both are. My bladder symptoms got a separate diagnosis to endometriosis years after the bladder symptoms began. I have interstitial cystitis. My intestinal symptoms have been labeled irritable bowel syndrome since the early 1990s. IBS, IC, and endometriosis can co-exist in one patient. I have confidence in my endo and IC diagnoses. Whether the symptoms chalked up to “IBS” are really the endo itself or something else is hard for me to determine. IBS is one of those diagnoses that doctors sometimes throw around when they’re stumped. (I had a foot of my colon removed in 1996 but that was a separate issue).

Yes, it is very stressful dealing with so much. I hope for a cure too, obviously. In the meantime, I’d like to see the medical profession step up and take endo much more seriously. Too many women are suffering. I’m glad you found it too!

Jeanne

P.S. Please understand that the reasons I edited your last comment (see Editor’s Note above) are complex. My note above is a super-simplified explanation of why I edited (a note for not just you to see but for anyone else reading this to see). Thanks!!

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