Helping women with chronic illnesses
ChronicHealing.com

Endometriosis and Media

Do you see this frustrated looking woman?

Well, I have to say this. Right now, I know the feeling.

This is a follow-up to my previous post:

>>> Media: Endometriosis Misinformation (Edited) <<< If you have not yet read that post, please read it before reading this one to get the background needed to fully understand this post. Today, I followed up my first letter to the editor of The Intelligencer (see above link) with a second one.

This time, I included the link to this petition:

GoPetition

Here is my second “letter to the editor” for The Intelligencer newspaper:

ATTN: Editor of The Intelligencer

I am writing to follow up on the article ‘The doctors didn’t even examine me!‘ by Dr. Gifford-Jones. I previously submitted a letter to the editor and have not yet heard back yet. Nor have other people I know of who have written letters to the editor regarding this same article.

The purpose of this follow up letter is to share with you a link to an online petition regarding endometriosis, signed by hundreds of people, and how it is covered by the media:

Create Endometriosis Awareness & Understanding

If you read through the comments left by those who have signed this petition, as I have, you will discover heartbreaking stories of endometriosis patients and their impacted loved ones. You will have an opportunity to get a tiny glimpse into the devastation this medical condition can cause.

I urge you to take a look at what hundreds of people are saying with this petition regarding endometriosis in the media.

Also, I repeat my request for a retraction of the article mentioned above.

Dangerous assertions were made in the article that potentially affect far more than just endometriosis patients (estimated at 89 million worldwide). The comments pertaining to ultrasound are troubling… in addition to the patently incorrect assertion that endometriosis can be diagnosed by a simple pelvic exam.

Thank you very much for your assistance in this matter. I look forward to your prompt response.

Jeanne
Chronic Healing

Please join me in the effort to spread endometriosis FACTS in the media.

Endochick and Sonja have both written on their blogs to draw attention to this particular newspaper story containing endometriosis misinformation.

While The Intelligencer closed the story to comments, you can write a letter to the editor. I know of several people who have done so.

Also, there is an email address listed in the Media: Endometriosis Misinformation (Edited) post that you can use to try to reach the author of the article in The Intelligencer (an author who ironically is a gynecologist as mentioned in the previous post).

Interested in sending a letter to the editor yourself?

First, click HERE. Then, click “Contact Us” at the bottom of the screen. Then, click “Editorial”. This will pull up a screen to contact the editorial department. Simply fill in the required fields (there are only three required fields: “Your Name”, “Your Email”, and “Your Message”). That’s it. It doesn’t take much time. In my letters to the editor, I outlined the errors in the article and then requested a retraction of the story.

My hope is that by my writing to The Intelligencer a second time today and including a link to the petition referenced above that we can work together to promote the dissemination of accurate information about endometriosis in the media. The more letters the editor gets, the more likely The Intelligencer will be to take endometriosis patients’ feedback seriously. By banding together to speak up on behalf of ourselves and each other, my hope is that coverage of endometriosis in the media will improve in time. I believe speaking up when we see articles like this one is important. If no one speaks up, we can be sure that endometriosis will continue to be covered poorly in the media. Let’s work together to change that!

Here are 5 steps you can take to help spread the word about the problem of endometriosis misinformation:

1) If you have a blog, please consider writing a post to draw attention to this issue, like Endochick and Sonja did.

2) Consider writing a letter to the editor when you see stories in the media that don’t get the facts straight about endometriosis (such as writing to The Intelligencer and requesting a retraction).

3) If you are a social media user, consider posting messages about this issue. Consider posting links to relevant blog posts on sites like Facebook and Twitter.

4) If you have not yet signed the petition above, please consider doing so.

5) Next month is Endometriosis Awareness Month. If you or someone you love has endometriosis, please consider doing something to promote awareness of endometriosis awareness. While awareness is certainly needed year-round, March will present some additional visibility of the condition and may present opportunities to make our voices better heard.

This post was written by Jeanne at http://chronichealing.com. Copyright © Jeanne — chronichealing.com. All rights reserved.


New to blog commenting? Just click “comments” below post. (If you set up a Gravatar, your picture will show when you comment).

Reading: Endometriosis and Media

7 comments

1 LanaNo Gravatar { 02.09.10 at 2:51 pm }

Jeanne, Great work on this. Awareness is very important.

Unfortunately, it is the conditions/diseases that wreck the most havoc on the human body that are the least understood.
.-= Lana´s last blog ..The Battle Between Old Man Winter and My Achy Joints =-.

2 JeanneNo Gravatar { 02.09.10 at 2:55 pm }

Lana,

Thank you. Yes, awareness is very important!

Amen to that.

Jeanne

3 AmandaNo Gravatar { 02.09.10 at 4:35 pm }

I have posted about this on my blog, thanks for keeping us updated xx

4 DianeNo Gravatar { 02.09.10 at 8:23 pm }

Thanks for this informative post – and a great job on the letter to the editor!

5 JeanneNo Gravatar { 02.10.10 at 12:22 am }

Welcome Diane!

Thank you for your kind words!

Jeanne

6 JeanneNo Gravatar { 02.10.10 at 12:23 am }

Amanda,

Excellent! Thank you!

Jeanne

7 Endometriosis Advocacy and the Media (Re-post) — ChronicHealing.com { 12.20.11 at 8:27 pm }

[…] the article discussed in these prior posts Media: Endometriosis Misinformation (Edited) and Endometriosis and Media) was published today. […]

Leave a Comment

CommentLuv badge