Endometriosis and Fibromyalgia Follow Up
Today’s Guest Blogger is Stacy.
Back on June 5, 2009 Stacy had written the post Endometriosis and Fibromyalgia. If you have not yet read it (including blog comments made back to it), I encourage you to do so as this post is a follow up to that one. In that post Stacy explained the inappropriate and hurtful comments that were made to her by doctors in her journey to obtain proper treatment of her endometriosis. One doctor in particular upset her by calling her “selfish” because she did not want to try to get pregnant at that time (see details in the prior post). In blog comments back to Stacy’s post, I related a story of a doctor who told me to “get pregnant to cure my endometriosis”.
There is no cure for endometriosis.
In any event, one comment in particular was made to Stacy’s guest blog that got her attention and prompted her to write this follow-up blog post. Stacy’s own life experience directly relates to the comments that were made to her previous guest blog. All endometriosis patients are not equal.
Here is Stacy’s follow up guest blog post to the post Endometriosis and Fibromyalgia
I recently posted on Chronic Healing with a short post that touched on my life with endometriosis and fibromyalgia. I appreciate that people took the time to post. One comment, in particular, caught my attention with a valid point that should be addressed. Why do women with endometriosis get appalled when told to get pregnant since it does bring relief to many people? I can only speak for myself and today I am tackling my pregnancy story. Having a child was something I always wanted to do and I am so blessed to have been able to have one. My child is the joy of my life. This child is a joy who was conceived in a loving family and is being raised by two parents who both understand that one of the pair is not always in peak form.
When I was married the first time I was in my early 20s and just starting my career. My then husband and I were fighting viciously about my endometriosis. I was in terrible pain all month long and lived for my next narcotic to try to numb the edge off the pain. I couldn’t drive because I was so fuzzy from the pain killers, I could barely sit all month long. In short, I was in agony. I did not just have monthly cramps. I was consumed with pain. I knew there was no way I could parent a child in that condition and I felt strongly that a child should be conceived in love and raised in a loving home and should not just be created because it might bring some relief.
I found a great OBGYN who was able to help me manage my symptoms. He and I tried many different things over the years with the understanding that pregnancy was not an option for me initially. Eventually, I got re-married and my husband and I decided to try to get pregnant. We were shocked when it happened right away. We were thrilled. I pictured myself with a cute little basketball tummy, fun maternity clothes, decorating a pretty nursery. What a shock to me that my pregnancy would turn out to be a nightmare. I spent nine months trying hard to maintain my pregnancy- much of it on bed rest. By bed rest I mean I had to lie on my left side and wear depends because I could only get up every hour to pee because my blood pressure was so high. I threw up my entire pregnancy which led to countless IVs, a pic line and a feeding tube. I had LPNs coming to my home to take care of me, was scheduled to see the doctor twice a week and was rushed to the emergency room regularly. The astronomical co-pays, despite our good insurance, for such a complicated pregnancy led us to sell our home, liquidate our retirement account and relocate to another part of the country to find higher paying work. It took us five years to pay off our medical bills. I vividly remember sitting with that doctor at one point and saying how thankful I was that this pregnancy was not done to “make me feel better” because the endo pain was worse than ever while I was pregnant and I couldn’t take anything.
Interestingly, my period is not as heavy as it was before I got pregnant, the pain is not as bad throughout the month and my cramps are not quite as bad. If I weigh that relief against the nine months of hell and the five years of fighting off bankruptcy I still come out on the side of being thankful that I chose to get pregnant when I felt ready to parent a person and I’m glad my child was created to be a person who can choose her own path to making the world a better place rather than being immediately assigned the job of making her mommy feel better.
- – Stacy
This post was written by Jeanne at http://chronichealing.com. Copyright © Jeanne — chronichealing.com. All rights reserved.
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