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Dysautonomia Series Re-post

Here is a Dysautonomia Information Network trailer for their documentary, “Changes: Living with Postural Orthostatic Tachycardia Syndrome:

My dysautonomia series has been one of the most highly visited groups of posts here. So, I’ve decided to re-post it. I am unaware of whether endometriosis and dysautonomia are considered by medical science to be co-existing conditions. What I do know is that I have encountered many women who have both endometriosis and some form of dysautonomia.

There are many types of dysautonomia (i.e. postural orthostatic tachycardia syndrome or “POTS”, vasovagal syncope, and neurocardiogenic syncope… to name a few). The video above pertains to postural orthostatic tachycardia syndrome (POTS), which again, is just one form of dysautonomia.

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It is amazing to me how many people have reached my blog while searching for dysautonomia information. It really makes me wonder how many people have it! Generally speaking, there are people reaching my blog daily by searching for information on dysautonomia, using a variety of search phrases. I originally posted the series on dysautonomia back in August (2009). It is unusual for blog posts that are four months old to be getting daily traffic. It truly makes me wonder how many people are affected by dysautonomia.

Series Re-post:

The easiest way to view the dysautonomia series is to click here:

The ‘Chronic Healing’ Dysautonomia Series

This link will route you to the fifth post. It links back to the four posts that preceded it.


This post was written by Jeanne at http://chronichealing.com. Copyright © Jeanne — chronichealing.com. All rights reserved.


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Reading: Dysautonomia Series Re-post

8 comments

1 p1nkg0dessNo Gravatar { 12.17.09 at 9:29 pm }

I am so sad that I forgot to ask my gyn about connections between endo and dysautonomia/chronic fatigue/fibro! I really wish they were doing more research into this.
.-= p1nkg0dess´s last blog ..The Holidays Are Upon Us =-.

2 JeanneNo Gravatar { 12.17.09 at 10:14 pm }

p1nkg0dess,

The unbelievable amount of traffic I get on my dysautonomia posts combined with the many patients I know who have both endometriosis and dysautonomia coupled with the fact that I myself have endometriosis and have experienced such symptoms as those I discussed in my dysautonomia series make me really wonder.

I can’t prove there is a connection between endometriosis and dysautonomia. I’m not a scientist, researcher, or doctor. I do think it was interesting that people who have both endometriosis and dysautonomia absolutely came out of the woodwork at me in August when I wrote the posts. Back when I posted it, I was astonished at how many people contacted me to share their experiences. It was eye-opening.

As far as connections between M.E./C.F.S. and endometriosis… I again have no research to prove a connection. I do know of multiple people with these as co-morbid conditions.

I’m sorry that you forgot to ask your gynecologist about this. Hopefully it won’t be too long before you have an opportunity to ask him/her about it. I agree that possible connections between these conditions would be very interesting to research!

Thankfully, endometriosis and fibromyalgia are being researched as co-existing conditions.

Jeanne

3 Jannie FunsterNo Gravatar { 12.18.09 at 6:47 pm }

Jeanne, this is new to me, dysautonomia.

Thank you for helping so many people.

I hope you are well today!?
.-= Jannie Funster´s last blog ..With Not A Dry Parental Eye In The House =-.

4 JeanneNo Gravatar { 12.18.09 at 7:16 pm }

Jannie,

The first time I ever heard of dysautonomia was from Endochick. She has blogged about her dysautonomia (which is associated with her mitral valve prolapse somehow, as explained on her blog). Other than her mentioning it to me awhile back, it was a word I had never heard… until this past summer when I had a sudden onset of symptoms myself. Anyway, when I blogged about dysautonomia last summer… the posts generated an unusually high amount of traffic. I also heard from dysautonomia patients via other sites (Twitter in particular, which I was still using at that time). Then other bloggers dealing with dysautonomia came to my attention. It was really remarkable for me to go from barely being aware of what it was to being immersed in information from other patients, doing my own research, and talking with my own doctors.

Thank you for being your sweet, kind self. Your wise eye alone brightens up my day!

I am hanging in there.

Jeanne

5 Frozen — ChronicHealing.com { 06.14.10 at 5:04 pm }

[...] temperature. Quite the contrary. My heat intolerance has been very challenging lately. (Cue the dysautonomia series re-post). No, I mean I’m frozen as far as writing blog posts right [...]

6 Travel Triumph! — ChronicHealing.com { 06.22.10 at 3:56 pm }

[...] For more information about my experiences with heat intolerance and fainting, please see my dysautonomia series. I also did a bladder instillation for my interstitial cystitis (IC) before we left for Ohio. We [...]

7 JasmineNo Gravatar { 08.16.10 at 11:06 am }

Saw this recent tweet, and thought I’d pass it along. Hugs :)

“Dysautonomia in Fibromyalgia & Chronic Fatigue Syndrome”

.-= Jasmine´s last blog ..Ayurveda- The Perfect 10 Diet- and Weight Loss =-.

8 JeanneNo Gravatar { 08.17.10 at 1:23 am }

Jasmine,

That was so thoughtful of you to dig up such an old post and share this information! Thank you! It’s amazing to me to see just how much of an overlapping condition dysautonomia is with so many other conditions. I just stumbled upon some YouTube channels last night featuring dysautonomia videos. There sure to seem to be a great deal of people affected by dysautonomia. I’ve seen it described as “rare”… but I’m just not buying that. I know too many people who have it for it to be very “rare”. I think it’s under-diagnosed because not enough doctors have a solid understanding of it.

Thanks again!

Jeanne

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