Helping women with chronic illnesses
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Category — Environment

The Opportunities Presented By Adversity (VIDEO)

Powerful. Inspirational. Moving. Enlightening. Wow.

Watch:

Aimee Mullins

This post was written by Jeanne at http://chronichealing.com. Copyright © Jeanne — chronichealing.com. All rights reserved.


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April 1, 2010   16 Comments

House Sends Health Care Bill To President Obama

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This post was written by Jeanne at http://chronichealing.com. Copyright © Jeanne — chronichealing.com. All rights reserved.


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March 22, 2010   2 Comments

Scam Busters

This post is a partial reprint of an article I read on The Canary Report.

While the full post there was more detailed and got into specifics involving claims made by companies targeting multiple chemical sensitivity (MCS) patients, for the purposes of this post I have decided to focus on the ten warning signs of a scam, as compiled by Lourdes Salvador and Linda Sepp, and as previously published HERE.

This list, in my opinion, is applicable to nearly any chronic illness patient because the tips for spotting scams listed here are so universally used. This fantastic list is far more concise than I could have written. Yet it captured something I have been wanting to blog about for some time. Longtime readers know that I have blogged about scams and false cures before. However, this list nicely sums up what you, as a chronically ill patient, can be on the lookout for.

Reprinted with permission from:

Lourdes Salvador of MCS America
AND
Linda Sepp, a contributor for The Canary Report

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Ten Warning Signs of a Scam:

1. The Promise Of A Quick And Easy Cure

2. Presence Unproven Patient Testimonials & Emotional Appeals Instead Of Science

3. Claims To Cure Many Ailments Which Have No Cure In Medical Science

4. It’s Not Sold In Stores

5. It Has Undisclosed Ingredients Or Content

6. You Have To Keep At It To Get Results

7. It Doesn’t Work Because You Did It Wrong

8. Science Hasn’t Even Bothered To Discredit It (No Threat To Pharmaceutical Sales)

9. The Seller Lacks A Medical Degree Or Similar Qualification

10. It’s Too Good To Be True

Copyrighted © 2009 MCS America

~~~~~~~~~~~~~~~~~~~~~~

I am very grateful to Susie Collins for posting about this topic and to Linda Sepp and Lourdes Salvador for writing about this very important topic!

This post was written by Jeanne at http://chronichealing.com. Copyright © Jeanne — chronichealing.com. All rights reserved.


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December 5, 2009   11 Comments

Boycotting Breast Cancer Awareness Month?

Controversial blog title? Read on and find out what it’s all about…

My friend Susie Collins is the editor of The Canary Report, an excellent site focusing on multiple chemical sensitivity (an illness I have myself).

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Susie consistently writes articles that are high-quality and thought-provoking. The article I’m about to reference is no exception!

October is Breast Cancer Awareness Month. Susie, a breast cancer survivor, wrote a post with a provocative title that caught my eye:

Why I boycott Breast Cancer Awareness Month

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Over the years, I have become more and more aware of the “commercialization of illnesses”. The remarkable story Susie shares in her article and the wealth of blog comments to it are a fresh look at how Breast Cancer Awareness Month is marketed, how it got started, and whether it is accomplishing what breast cancer patients need.

I have a close friend, Roberta, who is also a breast cancer survivor. I thought she’d appreciate Susie’s post and sent her the link. Here was her response after reading it:

I don’t donate money to illnesses anymore because of some of the exact reasons she states. As you look around the more money that is donated the disease becomes a big money pit and no one has ever been cured with that mentality. It just helps big pharma companies spew their money making schemes onto the public with the hopes that they will feel better. Cancer is an especially huge market for a way the drug companies have to promote their “life saving drugs”, yeah right. As you know, I don’t believe that there are any drugs that are good or safe for us.

I am with my friend Susie regarding boycotting Breast Cancer Awareness Month. Her post explains in detail why she boycotts it. I agree with her.

I also support my friend Roberta’s decision not to donate money to organizations that are not getting results for patients. Roberta did research after her own breast cancer diagnosis and discovered that she was not comfortable with how various breast cancer organizations were using donations.

These two friends, both breast cancer survivors, are seeing through the pink ribbon marketing and I have to agree with them.

I urge you to read Susie’s article:

Why I boycott Breast Cancer Awareness Month

I believe it’s important to make informed decisions about how we spend our money in relation to illnesses. For me, Susie’s article is a thought-provoking look at Breast Cancer Awareness Month. I encourage you to check it out. It might just change the way you look at things regarding Breast Cancer Awareness Month.

Please check out Breast Cancer Action, a San Francisco-based organization. Check out their very thought-provoking Think Before You Pink campaign (including a video).

Thank you to Susie for highlighting the need to take a peek behind the marketing extravaganza to determine whether it is really serving the needs of breast cancer patients.

This post was written by Jeanne at http://chronichealing.com. Copyright © Jeanne — chronichealing.com. All rights reserved.


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October 30, 2009   18 Comments

Blog Action Day ’09 (Climate Change)

Weeks ago, I enthusiastically signed up to participate in Blog Action Day ’09 Climate Change .

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Here’s a picture my husband took a couple of weeks ago while standing at the base of a wind turbine

Unfortunately, due to current circumstances with my twitter account being copied/impersonated by an impostor, (see “Twitter Impostor” for important information regarding that ongoing situation):

** HERE **

… I was unable to write the post I had planned.

However, I would like to direct readers to a wealth of info on this important topic:

Just click here to reach twitter messages tagged with the blog action day hashtag: #BAD09 tweets.

Also, you can follow @blogactionday here.

While I regret that I was unable to write my own original, in-depth post on the topic… as I had planned, I look forward to sharing such information on this in a future post.

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Here’s a picture I recently took at a fascinating wind turbine farm

The twitter hashtag #BAD09 will direct you to 5,528 bloggers (and counting) who are writing on their blogs today about the extremely important issue of climate change.

Since I am still being impersonated on twitter, I am currently not sending any messages on twitter myself. However, the #BAD09 tweets will be a great source of blogs to read about climate change.

Thank you for your understanding.

P.S. PLEASE NOTE: Until further notice, any tweet you should receive from an account bearing my face on the avatar is not from me. (Granted, people may be re-tweeting older messages from me but I will not be sending any tweets or RTs until further notice. It’s easy to check which account is which. Please read the “Twitter Impostor” post for ideas of fast/easy ways to differentiate the two accounts). I will post something here on my blog when I am resuming tweeting again. If you’re in doubt, please simply check back here. If you get any tweets from what looks like me and it’s before I have told you here that I am resuming tweeting, please block & report the account posing as me to twitter (as that message you’re getting must be from the impostor posing as me).

I will post on my blog that I am resuming tweeting before I resume tweeting.

This is not to say you may not hear occasionally from trusted friends of mine. For example, @coffeesister has been kind enough to notify some of my twitter followers that they were inadvertently following the acct that is copying mine. Thank you to Dorian, aka @coffeesister, for being such a huge help!

This post was written by Jeanne at http://chronichealing.com. Copyright © Jeanne — chronichealing.com. All rights reserved.


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October 15, 2009   12 Comments

Twitter Impostor

As many of you have concluded by now, my twitter account has been impersonated.

Before I proceed, let me mention that the single easiest, simplest way to reach my authentic twitter page is to click on the twitter icon (small blue heart) in the right sidebar of this blog. This will route you straight to my account. If you are following any accounts that look very similar but have a differently spelled twitter name, please block them!

Please read this post carefully as the twitter account that is posing as me has caused confusion and I want to help you know which account is which so that you will not accidentally follow the hacker’s account.

Here is a picture of my twitter page:

Twitter_Blog

Please note the spelling of my twitter name:

@jeanneendo

Please be aware that the impostor’s account uses a very similar twitter name spelling, uses my exact same avatar picture, uses the same twitter page background I use, etc. In other words, visually these two accounts look extremely alike!

I am not going to mention the impostor’s account name here because I don’t want to give that account any more “free publicity” than it has already gotten. If you think you may be listed as a follower to the impostor’s account and want to block it, simply skim through the list of who you’re following. If you see an account that looks like me, please look closely at the spelling of the twitter account name. If it is anything other than my account listed above, PLEASE block it.

Some of my twitter followers have already accidentally followed the hacker account thinking it was me. If you have followed any twitter account other than what I list above, thinking that you were following me… please block that account. Obviously, it’s important that my twitter followers not also be following the account of the impostor posing as me.

The impostor has sent out messages aimed at hurting not just me but my twitter friends. I ask that anyone who is accidentally following the impostor’s account as well as mine or in place of mine (you see, the impostor is doing an impostor’s job and confusing people as to which account is which and there have been people who have followed me for years and stopped following me/started following the impostor, thinking that my real account is the impostor)… simply block the impostor’s account.

If you are unsure of whether you are following the impostor, I ask you to please check who you are following to make sure that you are not following the “look-alike” account.

I have one and only one twitter account. It is the same one I have been using since 2007.

Again it’s:

@jeanneendo

As of the writing of this post, I have 8,514 tweets listed on my authentic account. However, the important part to pay attention to for differentiating my twitter account from any impostor is to pay close attention to the spelling of my twitter name:

@jeanneendo

Again, the screen shot above shows my REAL account. Again, the impostor’s twitter page looks very similar.

Unlike the impostor, I do not use profanity in tweets. I have seen tweets sent by the impostor which contain profanity and hurtful attacks on individuals.

For anyone reading this who is confused about who @jeanneendo is, I would encourage you to look through this blog and get a better understanding of what I write about and do. With the confusion caused by the impostor, the best way to get a handle on what @jeanneendo is about might be to take a bit of time to read this blog… and see what I have written in my own words, see what topics I write about, etc.

Last but not least, I would obviously like to get this message out to as many people as possible. Therefore, I would greatly appreciate and Stumbles you could do. I would also be grateful for any “Tweet Me” updates you can do. There are many people confused about what’s happening. I am only one person and answering everyone’s questions in a timely fashion is quite impossible with the number of questions I’m getting. My hope is that this post covers the #1 question people have been asking me… Which account is real and which account is the impostor?

Thank you for your patience and understanding in getting through the challenges posed by this unfortunate incident!

This post was written by Jeanne at http://chronichealing.com. Copyright © Jeanne — chronichealing.com. All rights reserved.


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October 13, 2009   20 Comments

Climate Change

Last year, I participated in Blog Action Day 2008. (Last year it was Blog Action for Poverty Day).

Here is a video about this year’s Blog Action Day:

I will be blogging for Blog Action Day 2009 for Climate Change.

Are you on twitter? Twitter hashtags for this event include #BAD09, #climateweek, and #climatechange.

Whereas I participated in Blog Action Day 2008, I had not yet heard about the 2009 event until I saw a message from Susie of The Canary Report on twitter. Thanks, Susie, for bringing this to my attention early.

P.S. Please don’t forget to Stumble and Tweet This below to help get the word out. Blog Action Day will be on October 15, 2009.

This post was written by Jeanne at http://chronichealing.com. Copyright © Jeanne — chronichealing.com. All rights reserved.


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September 25, 2009   12 Comments

Overwhelmed!

I have a notion some of you are going to be able to relate to the topic of being overwhelmed

One word sums up this week for me… overwhelmed! I’ll just focus on my overwhelmed state online. I won’t take the space or energy to delve into the “in real life” aspects. Here goes…

I had grand plans for all of the posts I was going to do about various chronic conditions this week in honor of Invisible Illness Awareness Week. There are so many invisible illnesses that I have myself and have written about in the past (endometriosis, fibromyalgia, multiple chemical sensitivity, and interstitial cystitis… just to name a few) and that I was planning on focusing on this week.

IIWeek2009_09_blogging-badge2

However, whatever the date on the calendar may be and whatever I may try to plan, I have learned that I have to listen to my body. This was a tiring week. I did the best I could. I managed to do an Invisible Illness Awareness Week post on kickoff day and since then I have written posts about chronically ill blogger friends of mine who were in need of support:

… for Allison HERE and for Melissa HERE

Most of my time online this week was on twitter. I promoted Invisible Illness Week there and I did my best to rally support for my friends. With twitter I can use short bursts of energy. Even when I spend a more extended period on twitter, I don’t have as much trouble concentrating on what I’m writing as I do for a post. So sometimes when I’m really struggling (like this week), I’m actually on twitter more.

Is there a 50% complete post sitting in my draft folder on Invisible Illness Week? Yes. Do I have enough energy to finish it? No. It’s not getting finished, unfortunately. This post I am writing right now and some brief time on twitter will probably be about all I can handle today, especially considering I just got back from seeing my primary care physician (almost an hour drive each way) and I saw my dentist earlier in the week (also an hour each way).

Bottom line… I am exhausted. My email is the most backed up it’s ever been (which is saying a lot!), my comments moderation is currently backlogged (which I try not to let happen), I feel guilty because there are so many blogs I’m long overdue to visit and/or comment on, and right now I just can’t stress about it.

So, if you’d like to read about the topics I mentioned or other chronic conditions I have blogged about, please check out the “categories” section or search box in my blog’s right sidebar.

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If I had the energy I’d finish that post where I was going to generate all the hyperlinks and sort them by illness. However, I have to listen to my body and right now it is telling me to SLOW DOWN.

Oh, I should make note that I also have blogged extensively about infertility. There are so many women with endometriosis who have infertility and this is a topic near and dear to my heart. So I just wanted to be sure to point that out too!

I wish I could write more but I’m about to drop. This has been an emotional, tiring, busy, draining, stressful, exhausting week. It did not help one bit that my period came early again and that it is zapping my energy like there’s no tomorrow. Endometriosis has a tendency to sometimes do such lovely things. (At least in my 27 years living with it I have found that to be true).

So, if you are chronically ill and/or in chronic pain and you feel tired or guilty for what you didn’t get done today… cut yourself some slack and get some rest. We can only do our best (i.e. our best without pushing ourselves TOO hard in unhealthy ways). After that, we just need to step back and accept that “it is what it is”. So, take a deep breath and go engage in some form of self care.

Whether it’s a cup of tea or popping in your favorite CD, do something to make yourself feel good and try to distract yourself from your symptoms and just relax your muscles. Your body will thank you.

How about you? Are you overwhelmed? How do you calm down or cope when you get overwhelmed? Please leave comments on this topic. When we share our coping skills, we help ourselves and help others simultaneously.

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Let’s help each other. Please share your ideas.

This post was written by Jeanne at http://chronichealing.com. Copyright © Jeanne — chronichealing.com. All rights reserved.


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September 18, 2009   10 Comments

Invisible Illness Awareness Week

The Invisible Illness Awareness Week conference starts this morning. There will be radio seminars where you can dial in to ask questions if you wish. A variety of topics are scheduled to be covered. Interested in checking it out? No need to leave home for this conference.


Just click for seminars:

CLICK HERE FOR INVISIBLE ILLNESS WEEK SEMINAR INFORMATION

Enjoy!

This post was written by Jeanne at http://chronichealing.com. Copyright © Jeanne — chronichealing.com. All rights reserved.


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September 14, 2009   3 Comments

Health Care Reform

President Obama’s health care reform speech to a joint session of Congress on September 9, 2009, in its entirety…

Visit msnbc.com for Breaking News, World News, and News about the Economy

This post was written by Jeanne at http://chronichealing.com. Copyright © Jeanne — chronichealing.com. All rights reserved.


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September 10, 2009   2 Comments