Helping women with chronic illnesses

Blog Action Day ’09 (Climate Change)

Weeks ago, I enthusiastically signed up to participate in Blog Action Day ’09 Climate Change .


Here’s a picture my husband took a couple of weeks ago while standing at the base of a wind turbine

Unfortunately, due to current circumstances with my twitter account being copied/impersonated by an impostor, (see “Twitter Impostor” for important information regarding that ongoing situation):

** HERE **

… I was unable to write the post I had planned.

However, I would like to direct readers to a wealth of info on this important topic:

Just click here to reach twitter messages tagged with the blog action day hashtag: #BAD09 tweets.

Also, you can follow @blogactionday here.

While I regret that I was unable to write my own original, in-depth post on the topic… as I had planned, I look forward to sharing such information on this in a future post.


Here’s a picture I recently took at a fascinating wind turbine farm

The twitter hashtag #BAD09 will direct you to 5,528 bloggers (and counting) who are writing on their blogs today about the extremely important issue of climate change.

Since I am still being impersonated on twitter, I am currently not sending any messages on twitter myself. However, the #BAD09 tweets will be a great source of blogs to read about climate change.

Thank you for your understanding.

P.S. PLEASE NOTE: Until further notice, any tweet you should receive from an account bearing my face on the avatar is not from me. (Granted, people may be re-tweeting older messages from me but I will not be sending any tweets or RTs until further notice. It’s easy to check which account is which. Please read the “Twitter Impostor” post for ideas of fast/easy ways to differentiate the two accounts). I will post something here on my blog when I am resuming tweeting again. If you’re in doubt, please simply check back here. If you get any tweets from what looks like me and it’s before I have told you here that I am resuming tweeting, please block & report the account posing as me to twitter (as that message you’re getting must be from the impostor posing as me).

I will post on my blog that I am resuming tweeting before I resume tweeting.

This is not to say you may not hear occasionally from trusted friends of mine. For example, @coffeesister has been kind enough to notify some of my twitter followers that they were inadvertently following the acct that is copying mine. Thank you to Dorian, aka @coffeesister, for being such a huge help!

This post was written by Jeanne at Copyright © Jeanne — All rights reserved.

New to blog commenting? Just click “comments” below post. (If you set up a Gravatar, your picture will show when you comment).

Reading: Blog Action Day ’09 (Climate Change)


1 YayaNo Gravatar { 10.15.09 at 6:18 pm }

I hope you get twitter stuff squared away soon. 🙁
I miss you.

Love the wind turbine pics.
.-= Yaya´s last blog ..Pregnancy and Infant Loss Remembrance Day =-.

2 PatriciaNo Gravatar { 10.15.09 at 6:30 pm }

I am so sorry this is on going…aren’t people just the pits sometimes! What are they needing?
.-= Patricia´s last blog ..Jeepers Peepers – Where Have You Guys Gone? =-.

3 FantasyisnotrealityNo Gravatar { 10.15.09 at 8:19 pm }

I am so sorry to hear about the impostor! I am online rather infrequently lately so I probably Missed Dorian’s post on that.
The way the climate is changing, it’s terrible, I worry so much that we are nearly too late with our concerns.
When I am on I will make sure to use the hashtag!

4 Kevin E BlakeNo Gravatar { 10.15.09 at 11:31 pm }

Hey followed one of coffeesisters links over here.
After reading this and the Twitter Impostor posts I was curious and went to your twitter page, saw the impostor account name and tried to search for it on Twitter.
Couldn’t find it.
It asked if I was searching for weareendo, an Endometriosis group.
Maybe it’s been taken care of?
Just wanted to let you know.

5 JeanneNo Gravatar { 10.16.09 at 12:49 am }


Yes. Miss you too! 🙁

Glad you like the pictures.


6 JeanneNo Gravatar { 10.16.09 at 12:52 am }


I’m sorry too. Well, people have all sorts of motives for what they do… don’t they?


7 JeanneNo Gravatar { 10.16.09 at 12:57 am }


Hi! Welcome… Dorian speaks highly of you. She has been very helpful to me with the impostor situation, which takes time to deal with… as you can imagine. Yes, the climate change really is a serious topic. It was a great one for Blog Action Day to pick as this year’s cause. Thank you so much for stopping by.


8 JeanneNo Gravatar { 10.16.09 at 1:04 am }


Hi! Welcome… Yes, @coffeesister (aka Dorian) has been very helpful to me with the impostor situation. I’m not sure why you didn’t see the impostor’s page but it is alive and well. (I just doubled checked). I don’t know why it didn’t show when you looked (but I appreciate you talking the time to check… so many people don’t bother)! In any event, it’s not taken care of. I appreciate you looking into it. Also, I spoke to Dorian after seeing this message from you and it sounded like she was going to be talking with you directly. So she may have more info for you that’s not covered here. Again, thanks so much for your diligence in checking it out. I wish the issue were resolved but I’m afraid that’s not the case.

Thank you!


9 DawnNo Gravatar { 10.25.09 at 4:46 am }


I love the photos of the wind turbines. While some may not like having a wind turbine in their “backyard”, they are far better than having a coal or nuclear-based power generator. I have been to wind turbine farms and some are actually very beautiful. The noise they make is not that great compared to other power generators. I can see where there might be the occasional bird strike as the tips of the blades can reach speeds of 300 mph. Fortunately, most birds fly much closer to the ground than the turbine blades reach. The negative impact of coal burning power generators to wildlife and humans is far more significant. Even “clean-burning” coal produces enormous amounts of CO2.

About your impostor… Someone must have something to gain. It is unfortunate that people feel the need to do this type of thing. I would encourage everyone to be aware of whom he or she is communicating with. Given the impostor uses a name very similar to the name you use on twitter and is using your image, it is easy to see how the people can be confused. I hope people will take just a minute to look at your twitter name carefully and what you write about. (Needless to say, the fact that your blog link is listed on both the real and impostor twitter accounts adds to the confusion).

I have read your posts and I have not ever seen you endorse a product specifically. The closest thing to an endorsement you have ever made was for acupuncture but that was not for recommending a specific health care professional… it was simply making people aware of acupuncture as a treatment option worth looking into. I noticed on twitter that a message was sent out implying that you endorsed a particular product. Anyone who is familiar with your blog knows that you don’t make product endorsements.

If anything, you caution people to the many frauds and hoaxes out there. People should think and communicate with their doctor(s). Today, unfortunately there is no cure for endometriosis. 🙁 That is not to say that tomorrow there might not be a cure. When that cure does happen, we will not read about it in the “Enquirer” but it will be covered as a major medical breakthrough. I can only imagine it will be a feature story on the evening news. I have observed many people online who take advantage of women who are in serious pain and who will try anything for relief. The current treatments for endometriosis treat the symptoms of endometriosis. While attempted removal of the misplaced endometrial tissue sometimes provides relief for a period of time (no pun intended), it is not a cure and is not a guarantee it will not return. Despite myths to the contrary, a hysterectomy will not guarantee that a woman will not go on to suffer the pain of endometriosis.

Please go back to writing about chronic healing. You have such good information. There will always be those out there that will want to take advantage of people and will attempt to discredit those like you that attempt to speak the truth. Do not let them distract you from all the good you have brought people. You speak kindly and truthfully. Never have I seen a tweet or anything from you that contained profanity or harsh words. I cannot say the same about your impostor.

Just keep up the good work! Good does overcome evil.


10 JeanneNo Gravatar { 10.26.09 at 12:08 am }


I know I really enjoyed seeing many wind turbines clustered together on a wind turbine farm that I went to. It really is quite a sight to see. It’s amazing how tall they are. Aren’t they amazing to look at up close on an actual turbine farm? They are so much more impressive-looking in person than on TV. They are huge!

Without a doubt, it’s unfortunate that people are posing as others on twitter. I have done what I can do try to get the word out to people regarding how to differentiate between my real twitter account and the account an impostor is using to copy it. It’s a slow process. People are understandably confused and some aren’t accustomed to blocking twitter accounts, etc. (People have even tweeted and retweeted my blog posts from here on this blog and given the impostor credit for having written it. In another instance, someone sent a FollowFriday on twitter thinking they were recommending me but really recommending the twitter account name for my impostor).

I have gone out of my way over time when I write online (here or elsewhere) not to endorse any specific products or health care professionals. (There are a wide variety of reasons for this). So, certainly it is troubling to have someone writing something online that makes it appear that I endorse a particular product. It is true that I am a big proponent of acupuncture but there is a vast difference between encouraging people to look into that as an option with a qualified professional and endorsing specific products or even specific practitioners. For example, I don’t plug my own acupuncturist online. I simply talk about how helpful I have found the modality in general. (Plus I know many, many patients greatly helped by it). I encourage people to do their own research and talk to their own health care professionals. For me, complementary medicine (taking the best Western medicine has to offer AND taking the best “alternative” medicine has to offer) has been most effective as managing symptoms of all sorts of illnesses.

Every patient is different and what works best for one patient may not work best for the next. What I have always encouraged patients to do is ask questions, do their own research, be their own best advocates, work with their health care professionals as partners, and strive to obtain the best information available to stay informed and up-to-date on what the latest research shows… to talk with other patients for ideas on finding resources that might help them, and to question any product claims that strike them as having claims too bold or too different from what the medical profession as a whole currently advocates. I do not believe this means just blindly following what a particular physicians says. Some doctors are more experienced with various illnesses than others. I am a firm believer in finding the best medical team possible and discussing the available options with him/her/them but also being open-minded to “alternative” treatments methods (such as acupuncture) that Traditional Western Medicine docs don’t always “buy into” despite that fact that acupuncture has been used safely and effectively for thousands of years.

I agree that when the day approaches that a cure is available for endometriosis or fibromylagia or interstitial cystitis, we should not expect to learn about it from tabloids but from peer-reviewed medical journals and reputable medication organizations. Certainly, a cure for endo alone (which affects an estimated 89 million women and girls worldwide) would be a very big news story indeed. One can only imagine we’d hear of such a cure via reputable sources and that the announcement would be based on solid scientific research. It is true that many patients with endometriosis endure such horrific pain that a sense of desperation sets in. This can lead to women becoming will to try products that may or may not be in their best interest.

It is also true that myths about endometriosis and its supposed “cures” have been spread over the years. Sadly, there were many years where doctors were spreading “false cure” info. For example, I have encountered many woman who had hysterectomies because their docs led them to believe it would “cure” their endo. In fact, it has not done so and many of them are sicker post-hysterectomy than they were before.

As far as returning to writing Chronic Healing, I am doing my best to be as productive as I can under the circumstances. Needless to say, having an impostor posing as me on twitter has slowed me down from my regular system for doing things. This is unfortunate on a variety of levels. Thank you for your kind words. I agree that there truly will always be those out there who will take advantage of others and, as you pointed out, try to discredit people when they highlight the truth of a given situation.

My husband has used a phrase (for many years now) to “slow me down” when I get fixated on things like this. He tells me, “you can’t save the world”. He has a point and he usually saves this phrase for just when I need to hear it.

No matter what I do or say, I will never be able to change the fact that there will always be some who take advantage of others. Sadly, the chronically ill population is more vulnerable to be targeted than the healthy. This does NOT mean chronically ill patients should throw their hands up in the air. To me, it simply means we need to be even more diligent and more cautious than our healthy counterparts.

The fact is that anyone online can be anything they say they are… whether they are using honest information or not. So, someone’s picture online could be real or they could be using a picture that isn’t actually them. They could have the symptoms they describe… or not. It is crucial, I believe, for the chronically ill to pay special attention to details, to ask questions, and to protect themselves from fraud by not letting their guard down. Sadly, such strict diligence it needed.

I look at it like this. I have take great pains to be prudent online… to use caution in what info I share and with whom. Nevertheless, my account has been “cloned”. My point is that from what I have seen… this could happen to ANYONE. There is much I’ve learned in the last couple of weeks about twitter, how it is used to help people, how it is used to take advantage of people, and how easy it is to be used for negativity rather than positivity.

The good news is that the distraction happening now is temporary. I have no intention of letting this throw me off my mission to share information and resources with patients on a variety of chronic illnesses. It just takes time to manage a situation like this. So, I’m doing my best to focus my attention where I feel it needs to go now… and to prioritize my tasks.

It’s just going to take some time to get “back on track”… as is to be expected. The impostor wouldn’t be doing his/her job if they hadn’t caused commotion and wasted people’s time but the good news is that most of my twitter followers have blocked (and reported) the impostor and the accounts now following the impostor continue to get spammier and spammier looking… as the spam accounts take the place of my twitter friends who briefly and inadvertently followed the impostor… but no longer are/have blocked it.

Thank you for your support. I really appreciate it! It’ll get better. 🙂


11 Boxing BagsNo Gravatar { 12.31.09 at 12:16 pm }

Love the turbine pics!

I really believe that Wind power will be key to our planets future

12 JeanneNo Gravatar { 12.31.09 at 7:08 pm }

Boxing Bags,

Seeing those wind turbines in person is just amazing. They were so huge! I’m glad you enjoyed the pictures.

I agree with you. I really believe wind power is very important.


Leave a Comment

CommentLuv badge