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Bladder Instillations Rock!

Hey, I can squeak in another invisible illness post for awareness week.

It’s not September 20th yet! This post was inspired by today’s events.

I have posted this video in the past but I am posting it again because it’s brief, to the point, and helpful:

This will be fairly quick. I am very tired and sore from multiple illnesses flaring up at once but I just had to share some positive news!

The past couple of days, my interstitial cystitis (IC) has been flaring. It is not unusual for my period to trigger bladder pain. To be clear, I have never had endometriosis removed from my bladder. Essentially what happens is that my IC is easily set off by my period.

In any event, I have blogged on previous occasions about interstitial cystitis and how it is a commonly co-existing condition with other illnesses such as endometriosis and irritable bowel syndrome for some patients. (I have all of the above).

After 12 years undiagnosed with IC and having had three urologists tell me I didn’t have it… my pelvic pain specialist diagnosed me with IC during my 4th cystoscopy with hydrodistention.

Since getting my long-awaited diagnosis of IC and beginning proper treatment for it, I have had a huge improvement of symptoms with a combination of oral medication and bladder instillations. I do the bladder instillations at home. This involves self-catheterization to instill the medication(s) into the bladder.

IT’S NOT AS BAD AS IT SOUNDS.

Anyway, I was really hurting earlier and decided it was time to do a bladder instillation, period or not. The good news is that I got SIGNIFICANT relief within minutes.

(Please note: there are a variety of different treatment methods in use by doctors for treating IC. Treatment decisions need to be discussed with your doctor. I purposely choose not to name the medications I take online as a general rule. I am not comfortable naming brands of medications in posts).

So, if you’d like to learn more about bladder instillations and interstitial cystitis, please see “interstitial cystitis” under categories in the right sidebar. (This will pull up IC posts and chronic illness posts. So you may need to sort through a bit to find posts just on IC. I’m still fine-tuning the sorting of the posts from when I switched over to this blog). Alternatively, you could search on “interstitial cystitis” in the search box (also in right sidebar).

One last note… Due to my vulvodynia, my pelvic pain specialist wisely prescribed me PEDIATRIC catheters, which are narrower than adult catheters. I have never self-catheterized with an adult catheter and don’t ever wish to. So, if you have IC or suspect that you might… this might be something to keep in the back of your mind the next time you talk with your doctor. (Obviously, I am not giving medical advice. I am simply sharing something that has been enormously helpful for me).

Last but not least, I always like to mention this organization when I blog about IC because they are fantastic!

—–> Interstitial Cystitis Association

I AM VERY GRATEFUL FOR THE RELIEF TODAY’S BLADDER INSTILLATION HAS GIVEN ME!

This post was written by Jeanne at http://chronichealing.com. Copyright © Jeanne — chronichealing.com. All rights reserved.


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Reading: Bladder Instillations Rock!

6 comments

1 YayaNo Gravatar { 09.19.09 at 10:05 pm }

I’m sorry you’re having multiple issues flaring up at once. 🙁
.-= Yaya´s last blog ..Friday Fragments/Focus Friday =-.

2 JeanneNo Gravatar { 09.19.09 at 11:45 pm }

Alicia,

It’s par for the course. I’m just in a rough patch lately. This week was stressful. (I know you can relate).

Jeanne

3 Jannie FunsterNo Gravatar { 09.22.09 at 2:57 pm }

If I ever get to that point I will for sure use the pediatric one.

Thanks Jeanne.

Hugs and love, now and always.
.-= Jannie Funster´s last blog ..Jannie Funster Blog Hits The Big Oh-1! =-.

4 JeanneNo Gravatar { 09.22.09 at 10:41 pm }

Jannie,

I honestly cannot imagine why anyone would wish to use a catheter bigger than the pediatric size for a bladder instillation. I am very grateful that my doctor thought to order the smaller size. While I hope you never need to use it, I have to say it really isn’t that bad once you get used to it… and the relief it provides is huge.

Jeanne

5 JeanneNo Gravatar { 09.22.09 at 10:43 pm }

Jannie,

P.S. Hugs and love back to you! I am so tired I’m not thinking straight. I just left you a comment birthday girl! 🙂

6 Hurting and Healthcare — ChronicHealing.com { 10.05.09 at 9:54 pm }

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