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'Jeanne's Endo Blog': "Spread The Word To End The Word"

It’s March 31, 2009…

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Special Olympics: Spread the Word to End the Word

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This article was posted by Jeanne via “Jeanne’s Endo Blog” at www.endendoat.blogspot.com.

This post was written by Jeanne at http://chronichealing.com. Copyright © Jeanne — chronichealing.com. All rights reserved.


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March 31, 2009   No Comments

"Jeanne's Endo Blog": National Suicide Prevention Lifeline Information

THIS POST IS BEING RE-PUBLISHED FROM LAST JUNE AS A REMINDER THAT THERE ARE RESOURCES AVAILABLE FOR ANYONE HAVING SUICIDAL IDEATIONS. PLEASE SEEK HELP FROM PROFESSIONALS TRAINED TO GIVE IT IF YOU ARE HAVE SUICIDAL THOUGHTS. THANK YOU!

Endometriosis pain can reach critical and dangerous levels. I have heard over the years of women who have committed suicide (women who had no other illnesses besides endometriosis).

Here is information for ANYONE who EVER feels ANY suicidal ideations. The info is from a website for the National Suicide Prevention Lifeline at:

National Suicide Prevention Lifeline

“The National Suicide Prevention Lifeline is a 24-hour, toll-free suicide prevention service available to anyone in suicidal crisis. If you need help, please dial 1-800-273-TALK (8255). You will be routed to the closest possible crisis center in your area. With more than 130 crisis centers across the country, our mission is to provide immediate assistance to anyone seeking mental health services. Call for yourself, or someone you care about. Your call is free and confidential.”

This article was posted by Jeanne via “Jeanne’s Endo Blog” at www.endendoat.blogspot.com.

This post was written by Jeanne at http://chronichealing.com. Copyright © Jeanne — chronichealing.com. All rights reserved.


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March 30, 2009   No Comments

"Jeanne's Endo Blog": My Gastroenterologist Is A Genius!

My colonoscopy is later this week. The colonoscopy is the easy part. I have been living in fear of the bowel prep.

I’ve had 3 previous colonoscopies and I’ve done bowel preps for some of my surgeries for endometriosis. I had a foot of my colon removed in 1996. So I’ve had 6 bowel preps to date. My body does NOT handle bowel preps well… at all.
Anyway, it has been a few years since I’ve had to do a bowel prep.

To make a long story short (because I’m feeling sick and spent the day in bed so I need to cut to the chase), I finally tried the blue Gatorade tonight. Now, you may be asking, “blue Gatorade?” (My prep is Thursday and my colonoscopy will be Friday). Here is why my gastroenterologist is a genius: the blue Gatorade.

Years ago, I drank some Gatorade and it was so gross that I gagged and swore I’d never drink Gatorade again. I think I even vomited after drinking it. It was that gross to me. The part I remember is swearing I’d never, ever drink Gatorade again.

Anyway, my gastro and I were going over options for bowel prep and he started talking about Gatorade and Miralax. He could see by my reaction that I was not a Gatorade fan. That’s when he brought up BLUE Gatorade.

Long story short, I ended up telling him I’d try the blue Gatorade sometime before the prep and that I’d use that method if I tolerated it better than Golytely. (Anyone who has ever had Golytely now has some idea of just how gross I found the Gatorade I drank years ago. The fact that I would choose Golytely over the regular Gatorade says something). Anyway, he walked me out to the front desk and told the receptionist to skip the citrate of magnesia part for my prep (long story from a past prep involving kidney stones and being deathly ill). Then he gave me a Golytely prescription as a backup just in case I couldn’t do the blue Gatorade.

The blue Gatorade has been sitting in my house for about 3 weeks now. I have been scared to drink it. This seems silly now but I have some very bad stories involving gag reflexes and vomiting. Anyway, with the prep coming up Thursday… I decided I really needed to try the blue Gatorade. (The Miralax is supposed to be tasteless).

To my amazement, the blue Gatorade was not bad! I’m so happy I won’t have to drink Golytely!

Now, I’m not foolish enough to think that a better tasting prep necessarily means it’ll be any easier any other way besides taste. Like I said, I’ve done 6 bowel preps and I always get really sick from them. So, if I make it through Thursday without passing out or profuse vomiting… then the blue Gatorade prep will really get my seal of approval. For now, I’ll settle for knowing I don’t have to drink Golytely this Thursday.

By the way, I have been meaning to blog the whole story of why I’m having a colonoscopy this week but haven’t scraped up the energy just yet. Let’s just say that I’ve had some scary symptoms that need to be checked out. At the same time, I don’t expect him to find anything during the colonoscopy on Friday. I believe the strange symptoms I’ve been having are actually endometriosis-related.

This article was posted by Jeanne via “Jeanne’s Endo Blog” at www.endendoat.blogspot.com.

This post was written by Jeanne at http://chronichealing.com. Copyright © Jeanne — chronichealing.com. All rights reserved.


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March 30, 2009   17 Comments

"Jeanne's Endo Blog": Helen Keller's Quote

As regular readers here are aware, I love quotes. While they are often interspersed within a regular post or included at the end, I decided to post this one and just let it stand on its own. I just love Helen Keller quotes!

By the way, the transfer process for this blog is coming along. Thus, you’ll notice I am no longer including tags for posts. This new blog will be very different. It’s exciting! 🙂

“Although the world is full of suffering, it is also full of the overcoming of it”
— Helen Keller (1880-1968), author, lecturer, activist

This article was posted by Jeanne via “Jeanne’s Endo Blog” at www.endendoat.blogspot.com.

This post was written by Jeanne at http://chronichealing.com. Copyright © Jeanne — chronichealing.com. All rights reserved.


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March 27, 2009   No Comments

"Jeanne's Endo Blog": Endometriosis Associated With Periodontal Disease?

Wow! Check out this fascinating link regarding a new study that may provide clues regarding endometriosis and the immune system!

Endometriosis associated with periodontal disease

I found this article posted on twitter by:

libbyshope (Paul Cacciatore, Founder of Libby’s H*O*P*E*: *Helping *Ovarian Cancer Survivors *Persevere Through *Education)

This article was posted by Jeanne via “Jeanne’s Endo Blog” at www.endendoat.blogspot.com.

This post was written by Jeanne at http://chronichealing.com. Copyright © Jeanne — chronichealing.com. All rights reserved.


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March 26, 2009   2 Comments

"Jeanne’s Endo Blog": Guest Blog – Roberta’s Twenty Plus Year Rollercoaster… Roberta’s Experiences Following Hysterectomy…

The following Guest Blog post was written by my close friend Roberta. (She’s camera shy so there won’t be a picture for this Guest Blog). I met her through my local endometriosis support group. (For that group – which I started in 2001 – Roberta was Co-Leader with me for part of the time). I have learned an enormous amount from Roberta. Her generosity with sharing her wisdom and introducing me to new modalities is unmatched. I treasure her friendship and I am honored that she agreed to write a Guest Blog post. The story below is an excellent summary of her difficult journey. There is so much more that has gone on behind-the-scenes. Roberta is one of the strongest, most thoughtful, resilient, caring people I know. I know her story will help many. Roberta has training in everything from Reiki to colon hydrotherapy to homeopathy. She works harder than anyone I know to be well. She follows rigid diets (not weight-loss diets… I mean diets for health reasons) that I do not envy. She does physical therapy exercises and Chi Nei Tsang at home. She puts into practice what she learns. She doesn’t just talk the talk. She walks the walk. Roberta is truly one of the most thoughtful people I have ever met. She uses every ounce of adversity she has been through to help others by sharing her experiences. She is one very special woman!

My 20+ year ride on a Roller Coaster – by Roberta

At the age of 30 I was a healthy, vibrant, energetic and happy young woman. I had just gotten married for the second time and looking forward to adding to “our” family. I thank God that I was blessed with a daughter from my previous marriage.

I had never experienced many problems with my period. I had at times had some discomfort but it never lasted long nor did it incapacitate me in anyway. That was soon to change. All at once my pains were so intense that I was vomiting and having diarrhea every month. The pains would last from ovulation until several days into my period. Finally after many months and doctors and multiple tests my gynecologist suggested that I have a laparoscopy. I was undiagnosed for 1 more year. The doctor who did the procedure didn’t bother to tell me that I had endometriosis.

I quickly fired that doctor and found a doctor in my area that “specialized” in endometriosis. Confirming the diagnosis he prescribed Danocrine. Unfortunately, Danocrine can only be used for short periods of time before women develop masculine side-effects. I took Danocrine for 1 year had another laparoscopy and nothing had changed. Upon stopping the Danocrine, the pains came back with a vengeance. Two weeks out of every month I was very ill. At 34 I felt I couldn’t take the pain and sickness any longer. I decided to get the complete hysterectomy-after all isn’t that the answer to endometriosis?

I felt fine, I thought. I was put on synthetic hormones immediately and just wanted to go on with my life. Within a year I was having significant muscle pains throughout my body. Additional testing diagnosed me with fibromyalgia at 36. I continued to work part time and take care of my family and home the best I could. Then at 39 my doctor decided that my blood level estrogens were too low so he prescribed a higher dose. Within 2 weeks the estrogen killed my gall bladder so I had my gall bladder removed. I didn’t realize that gall-bladder removal would be so problematic for my digestive system.

At 44 – I have now been diagnosed with leaky gut syndrome. Anything I ate caused me great distress. It took one year to get a food allergy test that concluded I was reactive to almost every type of food. I had lost 30 lbs. in 4 months and looked very ill. After a year of struggling with the leaky gut syndrome I developed chronic fatigue syndrome. The chronic fatigue produced severe, constant flu like symptoms lasting for months.

At 46 – I started the journey of severe hormone imbalance. I developed chronic pelvic pain and for three months I felt like I was delivering a baby. My doctor prescribed a very special type of physical therapy-called a pelvic pain specialist, which provided some relief. My doctor then suggested bio-identical hormones -I got much worse. Finally my husband suggested that I stop the hormones completely-I did. While I felt better initially I still was in need of something else. At just barely 48, I went to my naturopath and was prescribed a homeopathic that helped immensely. It took only 2 months time to get my chronic pelvic pain under control. Believe me when I tell you that YOUR hormones are unique to you and cannot be duplicated in a test tube.

At 52, while having my routine mammogram (something I have done for 20 yrs. after being diagnosed with fibrocystic breast disease) the doctor found a suspicious lump. I returned in a few weeks for a biopsy – I was diagnosed with breast cancer. My lumpectomy and radiation were completed by July 2008.

I feel compelled to write about endometriosis and the over use of hysterectomies in our culture. I certainly cannot say that it could be scientifically proven that my breast cancer, fibromyalgia, chronic fatigue, and leaky gut were a direct cause from the endometriosis and my choice of a complete hysterectomy. However, in my heart of hearts I know that it is so. When we introduce artificial hormones at such an early age we create a huge imbalance of our entire body since hormones reside in every cell not just our reproductive system. I feel that it is absolutely imperative for women under 45 to keep their uterus and ovaries unless it is a matter of life or death. I truly believe that the over use of synthetic hormones is a very dangerous thing.

I have tried to condense my story. As I looked back there were many steps and processes that I didn’t include. The last 20 years of my life has been a very complicated journey. One thing that I try to emphasize to women who are considering hysterectomies is to understand that after a hysterectomy your libido is almost completely gone. There are many women in my family that have had endometriosis and have chosen hysterectomies for their “cures”. All have agreed that if they had known how negatively they would feel about intimacy and love with their husbands, boyfriends or partners that they wouldn’t have undergone such an invasive surgery. You can’t get it back-it’s permanent!!

Now I am 53, and I have fully embraced integrative medicine-(i.e.- acupuncture, homeopathics, supplements, organic foods, massage therapy, herbs, Chi Nei Tsang-chinese abdominal massage). They have been part of my life for the past 10 yrs. These modalities make my syndromes bearable. Yes, it is financially a bit more expensive but emotionally, physically and spiritually it is a bargain. While the initial choice of having a complete hysterectomy appeared to have many benefits- I have learned the hard way that for me it was the most physically debilitating life alteration experience. Personally, I believe that my choice of a complete hysterectomy significantly precipitated the downward spiral of my health.

Hopefully, I have planted a seed of doubt about hysterectomies being a cure all for endometriosis. Indeed they are not. There are many avenues available at this time to assist you in making a more informed decision regarding the short and long-term outcomes of a complete hysterectomy. Use all the complementary medicines that you can find and afford to help alleviate or decrease your undesirable symptoms. It will be worth it in the end. As well, talk with many women who have had the surgery. Believe what they say-they are living the truth.

This article was posted by Jeanne via “Jeanne’s Endo Blog” at www.endendoat.blogspot.com.

This post was written by Jeanne at http://chronichealing.com. Copyright © Jeanne — chronichealing.com. All rights reserved.


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March 23, 2009   12 Comments

PETITION: A Moment Of Your Time Can Support The 89 Million Women/Girls With Endometriosis!! Plus, Check Out My YouTube Channel!

Great news! We are nearing 300 signatures on the endometriosis awareness petition!

Isn’t that wonderful?

If you have not yet signed the petition, please take a moment to do so. The more names we get the better. When we approach major media outlets about getting endometriosis facts covered, we submit this petition along with our letters and emails. According to the Ohio State University Medical Center:

“It is estimated that between 2 percent and 10 percent of American women – or 5.5 million women and girls – of childbearing age have endometriosis. This makes endometriosis more common than AIDS and more common than cancer. Endometriosis is one of the three major causes of female infertility”.

Here’s where you can sign: Endometriosis Awareness Petition

Interested in checking out my videos? Here’s the place:

Jeanne’s YouTube Channel

I am grateful for any comments and ratings you can leave on the YouTube videos and would love it if you’d subscribe to my YouTube channel.

Thank you!

This article was posted by Jeanne via “Jeanne’s Endo Blog” at www.endendoat.blogspot.com.

This post was written by Jeanne at http://chronichealing.com. Copyright © Jeanne — chronichealing.com. All rights reserved.


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March 19, 2009   5 Comments

"Jeanne’s Endo Blog" Thanks Twitter Guru ‘steveweber’ For Helping Us Promote Endometriosis Awareness!

I spent some time today catching up on twitter. I highly recommend TweetDeck, by the way. It’s so much easier to manage tweets with it.

As I was getting caught up on twitter, I was messaging various people I encountered, asking them to sign our endometriosis petition.

It occurred to me that I hadn’t asked steveweber to support our cause. For those of you who aren’t familiar with him, he is what I call a “twitter guru”. Check out his twitter page and you see 21,175! When I first installed TweetDeck, he was very helpful!

Thank you to steveweber for retweeting #endo messages!!

This article was posted by Jeanne via “Jeanne’s Endo Blog” at www.endendoat.blogspot.com.

This post was written by Jeanne at http://chronichealing.com. Copyright © Jeanne — chronichealing.com. All rights reserved.


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March 15, 2009   4 Comments

‘Jeanne’s Endo Blog’: How Do I Thank Jannie Funster For Her Hard Work?

Wow! I got an email today from my buddy Jannie. I don’t know WordPress (yet!) but I am guessing that adding a petition link such as the one Jannie has added would be a challenge. She didn’t just link to the petition any old way. Check out her blog at the top right “under the eye” to see what I mean…

Click here to see Jannie Funster’s awesome petition link with an eye-catching visual!

Is that cool… or what?

This article was posted by Jeanne via “Jeanne’s Endo Blog” at www.endendoat.blogspot.com.

This post was written by Jeanne at http://chronichealing.com. Copyright © Jeanne — chronichealing.com. All rights reserved.


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March 13, 2009   4 Comments

‘Jeanne’s Endo Blog’ Thanks Tammey Of The Yahoo Group "LupusAutoimmuneSisters"

Sometimes people are just plain nice.

Recently, I met a woman on twitter named Tammey. We exchanged several messages and she was very friendly. So, I asked her the same question I ask everyone these days, “will you sign my petition?”

She kindly agreed to do so, despite the fact that she does not have endo. Then she volunteered to share the petition with her LupusAutoimmuneSisters support group and ask them to sign it too!

Twitter users, please send her a thank you tweet: Tammey

Sometimes people are just plain nice.

This article was posted by Jeanne via “Jeanne’s Endo Blog” at www.endendoat.blogspot.com.

This post was written by Jeanne at http://chronichealing.com. Copyright © Jeanne — chronichealing.com. All rights reserved.


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March 13, 2009   2 Comments