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Arizona Infertility Patients’ Rights In Immediate Peril

Update as of February 17, 2010 at 5:20 pm:

Unfortunately, Arizona passed the legislation today. It is my understanding that infertility advocates did make an impact and amendments are being made to at least one of the bills.

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IMMEDIATE ACTION NEEDED IN ARIZONA

Some of you may recall that I wrote recently about pending legislation in the state of Michigan:

Privacy Rights For Infertility Patients (Updated)

Today, it was brought to my attention by Kelly Damron that Arizona is going to be voting very soon on legislation that stands to impact the rights of infertility patients of that state. Here is her post on it:

AZ Infertility Patients Rights at Risk – Immediate Action Needed

Here is an email from the Executive Director of RESOLVE, The National Infertility Association:

The Arizona legislature is quickly pushing two bills — Senate Bill 1306 and House Bill 2651 – which will impose new and unprecedented restrictions on donor egg treatment for infertility. The Senate Public Safety and Human Services Committee will hold a hearing on February 17 with the House hearing any day now.

We need your help TODAY! If you live in Arizona please tell the Committee members that you, your friends, and family OPPOSE SB 1306 and HB 2651. Please click here to send a letter to Members of the House Health and Human Services Committee and click here to send a letter to the Senate Public Safety and Human Services Committee. (Note: you must send one letter to the House Committee and a second letter to the Senate Committee.)

SB 1306/ HB 2651 interferes with egg donor treatment by —

— outlawing the compensation traditionally provided to those who donate eggs for infertile couples;

— imposing burdensome and inaccurate informed consent obligations on doctors who offer donor egg treatment;

— threatening doctors with loss of their medical licenses if they fail to follow the new informed consents to the letter.

An additional set of bills, SB 1307 and HB 2652, may impair a physician’s ability to provide the best standard of care in reproductive medicine. These bills are a hasty attempt to regulate university research but could have a negative impact on the clinical care of patients.

Please let lawmakers know that we will not let them interfere with the care of infertility patients in Arizona. Men and women in Arizona who are trying to have a family deserve to be able to have all treatments available to them as is offered in any state in the U.S. Please urge them to vote NO on SB 1306 and HB / 2651 and NO on SB 1307 / HB 2652!

For complete information on these bills and to link to copies of the bills, visit RESOLVE’s website.

Thank you for taking Action on this important legislation!

Barbara Collura
Executive Director
RESOLVE

The badge that was created to draw attention to the Michigan legislation mentioned in the link at the beginning of this post points to the RESOLVE website link provided by Barbara Collura near the end of the above letter. If you wish to support infertility patients’ rights by posting the following badge, simply use the RESOLVE website link when you install the graphic on your site.

Thank you for supporting infertility patients’ rights and for spreading the word (the quicker, the better) so that residents of the affected states can take action and write in to their representatives.

You do not have to live in Arizona to help get the word out to its residents who are quite likely unaware of this legislation, which is being moved along very quickly. If you don’t know anyone who lives in Arizona but do have a blog, please consider posting the above badge on your blog. It will direct readers who click it to the RESOLVE website for information. Thank you.

This post was written by Jeanne at http://chronichealing.com. Copyright © Jeanne — chronichealing.com. All rights reserved.


New to blog commenting? Just click “comments” below post. (If you set up a Gravatar, your picture will show when you comment).

Reading: Arizona Infertility Patients’ Rights In Immediate Peril

9 comments

1 Kelly DNo Gravatar { 02.14.10 at 5:17 pm }

Thank you for posting this on your blog and also on your Facebook page.
.-= Kelly D´s last blog ..AZ Infertility Patients Rights at Risk – Immediate Action Needed =-.

2 Infertility Patients’ Rights « Endometriosis: the silent life sentence { 02.14.10 at 11:18 pm }

[…] Posted by endochick in Uncategorized. Tagged: arizona, arizona legislature, infertiliity patients' right, infertility, invisible chronic illness, michigan legislature, Resolve. Leave a Comment Arizona Infertility Patients’ Rights In Immediate Peril […]

3 EndochickNo Gravatar { 02.14.10 at 11:19 pm }

I posted about this linking back to you! Hope it helps!

4 JeanneNo Gravatar { 02.15.10 at 4:47 am }

Kelly:

Thank you for bringing this matter to my attention! Hopefully by several people blogging about it, word will spread and enough people will write in to the legislators in time to stop these bills from passing.

Endochick:

Thank you for following up on this by writing your own passionate post on this important matter! Your assertion (in your post) that any patients’ rights could be next on the chopping block is a valid observation worth pondering!

~~

Jeanne

5 EndochickNo Gravatar { 02.15.10 at 10:36 am }

As a student of patient safety, I can see through back-door methods how legislation like this can eventually trickle down and block the medical community’s ability to effectively treat other chronic illnesses. They are not limiting infertility rights to be cruel, but to save money. Some medicines to treat diseases like endometriosis and multiple sclerosis, and others, are very expensive not only to the patient but to the insurance company. Such legislation limiting access to these meds or treatments, as we are seeing in Michigan and Arizona, does a grave diservice to patients while putting more money in the pocket of politicians and insurance companies.

This practice MUST be stopped.
.-= Endochick´s last blog ..Infertility Patients’ Rights =-.

6 FlockedNo Gravatar { 02.15.10 at 2:00 pm }

Hi,

I was looking for a while to see if there were any people who like me have pain day and night and in between! Just ALL the time, not just during my period even when I don’t have it! And I’ve had my period for about 7 months now (right after my dad left us) and I’m not sure if it’s normal that I have 17 days of period and then pain in between! I’m on birth control but I vomit 13-17 times a day! So I’m not sure if its really helping, I know I can’t take pain killers or I’ll get allergic like my mom. It’s only a short term solution but even that doesn’t help much. Doctors don’t believe that a 13 year old could have it. Do you have any advice for me?

Thanks I’d greatly appreciate it!

7 JeanneNo Gravatar { 02.15.10 at 4:24 pm }

Endochick:

I know that you’re in a university program studying patient safety and you are correct that legislation like this certainly could have a trickle-down effect for patients with other conditions. (For anyone who has not read Endochick’s post on this subject, I recommend it. She makes an argument there for what could happen next if legislation like this is enacted). I agree with you that one motive of these legislators could certainly be money. Infertility treatments are expensive. As you mentioned, other medical conditions are expensive to treat as well. I can’t think of anyone who would want his or her medical treatment for a given condition to be suddenly taken away following legislation that meddles with patients’ rights. I also agree with you that there is potential for politicians to gain financially (i.e. by accepting money from the lobbyists pushing such bills) and certainly any insurance company that currently covers such treatment would stand to benefit by the treatment becoming inaccessible or limited in some fashion.

According to the RESOLVE link accessible by clicking the yellow badge in this post, “currently only 15 states require insurance coverage for infertility treatment, and laws vary widely”. For more information about insurance coverage in your state, click on the yellow badge and scroll down to the bottom of the page under “Insurance coverage in your state” to learn which states offer coverage and what is included and excluded.

I wish that I thought money were the only motivating factor in the legislation in the states that are endangering infertility patients’ rights. Granted, that would be bad enough. However, I think it is more complicated than that. They are special interest groups that are lobbying for such legislation for other reasons, from what I’ve been able to gather.

Whatever people’s motivations may be (and they are most likely multi-factorial), the bottom line for me is that infertility patients’ rights would be trampled on if these bills get passed. Infertility patients suffer quite enough without legislators stepping in and trying to limit or take away infertility treatments that have been in use for decades. Infertility patients go through enough grief without having a major infertility treatment option (which, for some, may be their only remaining means of achieving a pregnancy) taken off the table by legislators drafting extreme bills designed to turn the clock back and take away people’s rights.

Going back to your argument that this potentially represents danger to a whole host of patients with all sorts of conditions, I wholeheartedly agree. If legislators succeed in taking away access to procedures like IVF that have been used for decades or if they succeed in passing bills that will drive away egg donors, what is to stop legislators from enacting bills that infringe upon the rights of other types of patients? I agree with you that these bills represent a danger to more than just infertility patients. It is very troubling.

Jeanne

8 JeanneNo Gravatar { 02.15.10 at 7:15 pm }

Welcome Flocked!

Thank you for commenting here. Your comment was so thought-provoking that I decided it deserved its own post in reply. This will also give your comments and questions more visibility (and potentially more feedback from more people) than if I were to respond in just a blog comment reply. Please click the link below to access the post I wrote in response to your comment. I look forward to hearing from you again soon and hope that the post is helpful to you in some way.

Just click here:

>>> Message To 13 Year Old “Flocked” <<<

Thank you and I look forward to hearing from you again soon. You are not alone!

Jeanne

9 Arizona Infertility Legislation: Kelly Damron Speaks Out — ChronicHealing.com { 02.16.10 at 5:03 pm }

[…] Arizona Infertility Patients’ Rights In Immediate Peril […]

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